Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Gluten Advice Sought


Oxalis

Recommended Posts

Oxalis Newbie

Went out to dinner and despite careful discussion with server, I am assuming I ingested a goodly amount of wheat. I suspect it because the same dessert on a previous occasion I could not have because it had some flour, and yet this server confirmed it had no flour (should've gone with my instincts). Sigh.

I know, from my uncle's experiences, that it seems the symptoms are so much worse once you are gluten free and accidentally ingest than they were before diagnosis.

However, I would be grateful for any suggestions to alleviate or somehow resolve the symptoms more quickly than not. I see that fennel tea and possibly digestive enzymes are options.

Day 1 was constipation and not much else, but Day 2 and now 3 are headache, fogginess, bright red blood (not much, thin coating really) in stools, lower right abdominal ache, right hip and back pain. I am miserable.

Would it help to go with liquids for 12 hours to give my poor colon a chance to heal? Obviously I am not eating gluten and have been completely gluten-free (except for accidental) for almost two years.

Thanks for any advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Northern Celiac Newbie
Went out to dinner and despite careful discussion with server, I am assuming I ingested a goodly amount of wheat. I suspect it because the same dessert on a previous occasion I could not have because it had some flour, and yet this server confirmed it had no flour (should've gone with my instincts). Sigh.

I know, from my uncle's experiences, that it seems the symptoms are so much worse once you are gluten free and accidentally ingest than they were before diagnosis.

However, I would be grateful for any suggestions to alleviate or somehow resolve the symptoms more quickly than not. I see that fennel tea and possibly digestive enzymes are options.

Day 1 was constipation and not much else, but Day 2 and now 3 are headache, fogginess, bright red blood (not much, thin coating really) in stools, lower right abdominal ache, right hip and back pain. I am miserable.

Would it help to go with liquids for 12 hours to give my poor colon a chance to heal? Obviously I am not eating gluten and have been completely gluten-free (except for accidental) for almost two years.

Thanks for any advice!

I live by a simple motto, if I can't identify the source or i don't trust the source I don't eat it. Remember restuarants are in business to make sales,this has been my experience. So "WHEN IN DOUBT LEAVE IT OUT"

Good Luck

ang1e0251 Contributor

I like to eat peppermints for a tender tummy and I like Constent Comment tea. I usually take additional B12 on those days, it helps a little with the brain fog and neuro symptoms. I usually am starving those days, so I make sure I have plenty of safe foods to eat. I especially like broth with rice noodles and a little chicken.

CGally81 Enthusiast

From my experience, fish helps a lot. I mean, a lot. I once had a day, before going gluten-free, where I felt horrible the whole day but had fish for dinner. I felt fantastic the entire rest of the night.

Some say that fish contains naturally occurring L-glutamine, and that's the reason why. If that's the case, try some L-glutamine (careful, for some reason, some versions contain gluten, due to the fact that it's not just Celiacs who take it). Eat chewable L-glutamine or take L-glutamine pills, but either way, have lots of it and it should help the symptoms resolve faster.

And try eating fish if possible. It's nature's L-glutamine source.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,075
    • Most Online (within 30 mins)
      7,748

    Annevt
    Newest Member
    Annevt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Just switching to gluten free diet will answer your question without involving anyone else.  Your sister was diagnosed, that puts you at 40% risk of having it also as a first degree relative.  If you improve on a trial gluten free diet, you either have Celiac Disease (autoimmune) or Non Celiac Gluten Sensitivity (not autoimmune).  In any case it is important to address nutritional deficiencies like vitamin D.  Gluten free processed foods are not required to fortify.  The reason gluten foods are fortified is our western diet is deficient in them to the point where the government had to step in and require fortification.   Once you start GFD you'll realize it was the gluten you were afraid of all along, but nobody told you.
    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
×
×
  • Create New...