Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group In Michigan?


Guest GFLisa0405

Recommended Posts

Guest GFLisa0405

Are there any support groups in Michigan? I live in southeast michigan, but go to school at Central michigan in mt. pleasant. Anyone else from Michigan?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SofiEmiMom Enthusiast

Hello. I'm from Michigan too...Macomb Twp. Here is a link to all of the Michigan celiac support groups.

Open Original Shared Link

I went to CMU too...little older though - graduated in '91 :huh:

Fire up Chips!!

celiac3270 Collaborator

Michigan

Coldwater - Resource:

Contact: Bruce & Ruth Young

335 Barnhart Road

Coldwater, MI 49036

Tel: (517) 278-8248

Escanaba - Resource:

Contact: David A. Jondrow

312 Minneapolis Ave.

Gladstone, MI 49837

Tel: (906) 428-1621

Flint - Support Group

Contact 1: Nyla E. Wilson

Mid-Michigan Celiacs

11029 Phyllis Drive

Clio, MI 48420

Tel: (810) 686-2539

Contact 2: Lucille & Richard King

5417 Sunset

Midland, MI 48640

Tel: (517) 631-5640

E-mail: RKing2388@aol.com

Gladstone - Resource:

Contact 1: David A. Jondrow

312 Minneapolis Avenue

Gladstone, MI 49837

Tel: (906) 428-1621

Grand Rapids -Support Group

Contact: Mitzi J. Berkhout

West Michigan Celiac Support Group

753 Parkway Dr NE

Grand Rapids, MI 49505

Tel: (616) 363-5749

Contact 2: Sue Baker

686 Carpenter N.W.

Grand Rapids, MI 49504

Tel: (616) 691-4906

Contact 3: Rosalynn Hausman

E-mail: mwhausman@aol.com

Lansing - Support Group

Contact 1: Marian Narodowiec

Michigan Capital Celiacs/DH

204 N. Matthews St.

Mason, MI 48854-1339

Tel: (517) 676-1882

E-mail: MLNarodowiec@cablespeed.com

Contact 2: Greta DeWolf

1815 Sandhill Rd.

Mason, MI 48854

Tel: (517) 349-0294

E-mail: kwpq50a@prodigy.com

Contact 3. Kelly Yoakam

E-mail: BYoakam@aol.com

Support Group

Contact: Donovan J. Sprick

Mid-Michigan Chapter (CSA)

Tel: (313) 733-6857

Dryden - Support Group

Tri-County Celiac Support Group, SE Michigan

Newsletter information:

Spru-Nik Press, Editors:

Contact 1: Robin Donagrandi

21580 Birchwood

Farmington, MI 48336

E-mail: TCCSG@twmi.rr.com

Contact 2: Marcia Campbell

47829 Vistas Circle N

Canton, MI 48188

E-mail: MARCIA1@prodigy.net

Tel: 86-NOGLUTEN

Internet: www.tccsg.com

Traverse City - Support Group

Contact: Sandra Cartwright

Traverse Area Gluten Free Support Group (CSA/USA chap. #21)

PO Box 4112

Traverse City, MI 49685-4112

Tel: (231) 947-8324

E-mail: Scarttc@aol.com

Contact 2: Carolyn Hollenbeck

Tel: (231) 947-9372

Contact 3: Joe Galea

Tel: (231) 264-6272

E-mail jtg@prodigy.net

From the celiac.com list.....

Guest GFLisa0405

Wow thanks! Do any of you go to support groups? What are they like? Hey another Chippewa! What'd you major in?

celiac3270 Collaborator

Nope, I don't go to any of those... I live in New York City, lol :lol: . Just got the list off this site...

Oh! Oops, you mean support groups in general :) ...I haven't. I like these online ones and most of them aren't in Manhattan--they're in some other borough, often Long Island. I thought about it in the beginning, but found this board to be a more valuable resource ;)

DoctorDave Newbie

I went to some support groups a few times when I was younger w/ my mom. THey were actually in michigan too! I think they helped me as a kid because it was the first time I saw other people like me. We didn't have the internet back then and stuff like that. I think they help because you get to talk to people and get stories about how they handle things and what they do. But as celiac3270 said, this online thing is kinda just the same. But I encourage you to go though. They may be different by now, I went when I was about 12 and now i'm 23 so i'm sure they have changed, You are from the south east, the Tri County Group down there does a lot of stuff. They even have a website www.tccsg.com. Actually on the 30th of april they are having a food fair. Anyways hope this helps.

Dave

Currently going to Ferris State

Guest GFLisa0405

Thanks Dave, yeah I'm defiantely glad for this website- it helps out a lot. I don't thikn I'd be very comfrotable going to a support group. Where are you from? When does Ferris state get out? I'm finally done with classes- only 2 days of finals left!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



somersocial Newbie

Hello! I am new to this also, and I too live in Michigan! I am in the Thumb area on the sunrise side! Thanks Dave for the Tri-County info site. Looks like I am a day late for the Food Fair. I am sure there will be more! I look forward to chatting with you all! Have a great Monday!...... Niccole.

mommida Enthusiast

I went to the gluten-free food fair on Saturday.

Whole Foods market was there with samples of the gluten-free bakery items. They were great! The products are in the store available this week!

If anyone wants doughnuts, I suggest Celiac Specialties in Chesterfield, Mi. If you live downriver, Celiac Products www.celiacproducts.net they are in Wyandotte, Mi. The store is opening this week, no specific date was given. They are going to carry Celiac specialty bakery products and they are very nice people to talk to.

There were to chefs that would cater special events. One was selling special spice blends. One was offering in home services. He will come into your house and prepare meals in advance for you.

Bean flour and bean flour products were everywhere.

The gluten free beer was great! Never realized I missed til I tasted it.

I had a nice time. They were a lot of knowledgeable people there. I even got to see a Detroit sports icon there too.

L.

  • 2 months later...
BabySnooks Rookie
Are there any support groups in Michigan? I live in southeast michigan, but go to school at Central michigan in mt. pleasant. Anyone else from Michigan?

<{POST_SNAPBACK}>

:unsure: My doctor told me there is a support group here in SE Michigan, but I forgot which city it was in. Today is the first day I am on the diet. From what I see so far, this is a great site.

BabySnooks

  • 3 months later...
valeriemates Newbie
Are there any support groups in Michigan? I live in southeast michigan, but go to school at Central michigan in mt. pleasant. Anyone else from Michigan?

<{POST_SNAPBACK}>

I've started a tiny support group in Ann Arbor. You can find it at

Open Original Shared Link

-Valerie Mates

darlindeb25 Collaborator

Wow--look at all of you from Michigan. Michigan is where I was born and raised. I also raised my children there and my grandkids are growing up there. I live on Long Island New York now and love it. My sister is a member of the Lansing area celiac group. I have gone to a celiac group here---Suffolk County Celiacs. The meetings are nice, but it's always about tasting foods and they meet often at restuarants and I just dont enjoy it. There are so many things I cant have now. We had gluten-free pizza and gluten-free choc cake one night and I was so sick in the morning, I almost missed work. I dont enjoy that--so, I normally dont go. I did attend the night that Dr. Peter Green from Columbia U came and that was very interesting. Deb

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.