Diagnosed When?

[beks]

I was diagnosed 3 hours ago:(

[angel-jd1]

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I was diagnosed 3 hours ago:(

AWWwwwww!!! You are in the right place to learn!! Hang in there and post if/when you have questions, there are great people here to help.

-Jessica

[beks]

Thanks very much. Everyone here has been really suppotive

[Guest Leidenschaft]

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I also never liked "bread" products that much.

Funny, I've always been that way too! Pizza and Pasta always gave me such terrible heartburn, although I usually blamed the sauce and would insist on having the "pizza bones" (edge of the crust!)

My hubby would get a Sub, and I would have the soup... I never cared much for sandwiches unless they were in a Pita Pocket, or wrap.

It's good in a way since I don't spend much on gluten-free bread! I just don't like it period! I did enjoy the gluten-free Poppy Seed bagel for awhile, but the lactose intolerance drove me away from the cream cheese, so they sit uneaten in my freezer!

I've also never been much for cereal... probably the milk gave me so much gas it just wasn't worth eating it!

Whew, if it wasn't for beer, I may have been undiagnosed for many more years!

[Ally2005]

Ditto for me too in regards to not having an appetitle for bread, pasta ect. Hey Tammy, I live in Canada too, are there any wine coolers or ciders that we can have? I've been recently diagnosed and haven't looked into it yet. I'm not a big wine fan.

Ally

[steadyed]

I finally went up to 150 pounds, though I believed I list weight recently. I am now a size 32 waist after being a 34 for a while. BTW, I'm 5'6", though my wife swears that I'm shorter than that.

I also have a "cast-iron" stomach, though I've had problems with diarrhea, gas, gas, gas, and still more gas . My wife constantly complains about it, but it doesn't seem as if I can do anything about it. It could be that something else is affecting me, of I may be sensitive to other foods.

And once, I believe that the idea that celiac can be outgrown was the prevailing thought back then. And I wouldn't eat a banana now to save my live .

ED

[pmrowley]

I was diagnosed about 25 years ago, by the then-experimental intestinal biopsy routine. At the time, I was about 4'11" and fluctuated around 95 pounds.

Currently, at age 34, I'm 5'8", 135 pounds. Not a giant, but healthy and happy.

-Pat

[lindalee]

I was a celiac baby and on the diet two years. Thought I outgrew it until this Feb. 06. I crave banannas and never cared for breads, pizza I avoided because no matter how much I ate I could never get full.

[Debbie65]

Appologies if this is duplicated, lost my post !!!!

I was diagnosed in 1966 but still a newbie as my signiture explains.

[LKelly8]

I was diagnosed just last year but my mother was diagnosed as an infant in 1938, at Yale New Haven Hospital in CT. She almost died - starved to death - before they realized it was celiac sprue. We have a pic of her and her nurse on the day she was released from the hospital, she was almost three but because of the malnutrition she looked like a limp rag doll with a big head. <shudder> It's a very disturbing photo. The first time I saw it I refused to believe that was my mother, or that it was anyone, I thought it was a doll.

She was a banana baby, they were told she'd grow out it, and it didn't "resurface" again till she was in her 30s.

As a girl my mom remembers going to a friend's house, who's dad worked a bakery, and eating huge slices of fresh rye bread! I've been thinking of getting her one of those gluten-free ryeless rye breads for her birthday.

[lindalee]

  LKelly8 said:

I was diagnosed just last year but my mother was diagnosed as an infant in 1938, at Yale New Haven Hospital in CT. She almost died - starved to death - before they realized it was celiac sprue. We have a pic of her and her nurse on the day she was released from the hospital, she was almost three but because of the malnutrition she looked like a limp rag doll with a big head. <shudder> It's a very disturbing photo. The first time I saw it I refused to believe that was my mother, or that it was anyone, I thought it was a doll.

She was a banana baby, they were told she'd grow out it, and it didn't "resurface" again till she was in her 30s.

As a girl my mom remembers going to a friend's house, who's dad worked a bakery, and eating huge slices of fresh rye bread! I've been thinking of getting her one of those gluten-free ryeless rye breads for her birthday.

Did she have any major problems after the "resurface"? I never could eat rye bread - one crumb and instant headache.

[LKelly8]

  lindalee said:

Did she have any major problems after the "resurface"? I never could eat rye bread - one crumb and instant headache.

After coming home from the hospital she stayed on the banana diet for another 2-3 years, then her parents slowly introduced other foods - including gluten - this was the official "diet plan" for celiac back then.

Although her disease was silent for many years she started having fairly typical celiac symptoms again in her thirties - she believes the disease remained active, though silent, throughout her life.

I didn't mean to imply we can eat rye. When she was a child the medical community believed children outgrew celiac. Obviously, we know that's not true.

[lindalee]

  LKelly8 said:

After coming home from the hospital she stayed on the banana diet for another 2-3 years, then her parents slowly introduced other foods - including gluten - this was the official "diet plan" for celiac back then.

Although her disease was silent for many years she started having fairly typical celiac symptoms again in her thirties - she believes the disease remained active, though silent, throughout her life.

I didn't mean to imply we can eat rye. When she was a child the medical community believed children outgrew celiac. Obviously, we know that's not true.

That is what Happened to me - just keep her on the diet for 2 years.... Started the diet in Feb. How is she doing now? I wonder how many of us that were told that don't know we don't outgrow it? Glad you found out.