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Not Dealing Well At All!

Brooklyn528

By Brooklyn528
in Coping with Celiac Disease

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Brooklyn528 Apprentice
Brooklyn528
Posted

Hey everyone. I had one heck of a night! If it wasn't enough that both of my kids came down sick, I come home from the ER with a shiny new diagnosis. My daughter started running a temp when she came home on wednesday night, so I kept her home from school on thursday. Friday morning, still had the temp and coughing with leg pain. I took her to the doctor. They checked her for the flu(yikes!!!). I was scared to death that she was going to have it. That would be horrible for me to get while on 50mg Prednisone. I was afriad I would end up in the hospital. Her swabs came back negative, thank God! So, we just went about having a normal relaxing night. Kids were in bed by 9. My boyfriend was out of the house for a bit playing cards. So I got in my recliner after taking my nightly meds and eating at about 9:30p. I had been sitting there at rest for almost two hours, when my heart literally started jumping out of my chest. I could sit and watch to count my pulse. I thought it was just anxiety. So, I just sat there and took deep breathes. After five minutes and it still pounding, I decided I needed to go to the ER. I went and told them what was going on. They checked me in, did an EKG, and so on. After some IV fluids and Ativan, it finally started calming down. Calming down to them though was 117/70. My blood pressure usually runs about 90/52, techinally hypotension caused by my Celiac Disease and perniscious anemia. That inturn would make that a very high blood pressure for me. They diagnosed me with SVT supraventricular tachycardia and prescribed me Metroprolol to regulate my heart. I feel horrible today. I definitly have whatever bug the kids have and my chest hurts. Has anyone else been diagnosed with this? Is it just complications of my prednisone? I know that I am strictly gluten free. It's hard for me right now because I don't know anyone that is or has been in the kind of situation that I am in. My boyfriend tries to understand, but he comes from the old thinking that if it's not killing you your ok. How do I get him to understand the severity of the situation at hand? I'm sure he is not dealing well with the fact that his young girlfriend is very sick. I just don't know where else to turn. I need some support, someone that understands.

Thanks for your time,

brooklyn

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Northern Celiac Newbie
Northern Celiac
Posted
  Brooklyn528 said:
Hey everyone. I had one heck of a night! If it wasn't enough that both of my kids came down sick, I come home from the ER with a shiny new diagnosis. My daughter started running a temp when she came home on wednesday night, so I kept her home from school on thursday. Friday morning, still had the temp and coughing with leg pain. I took her to the doctor. They checked her for the flu(yikes!!!). I was scared to death that she was going to have it. That would be horrible for me to get while on 50mg Prednisone. I was afriad I would end up in the hospital. Her swabs came back negative, thank God! So, we just went about having a normal relaxing night. Kids were in bed by 9. My boyfriend was out of the house for a bit playing cards. So I got in my recliner after taking my nightly meds and eating at about 9:30p. I had been sitting there at rest for almost two hours, when my heart literally started jumping out of my chest. I could sit and watch to count my pulse. I thought it was just anxiety. So, I just sat there and took deep breathes. After five minutes and it still pounding, I decided I needed to go to the ER. I went and told them what was going on. They checked me in, did an EKG, and so on. After some IV fluids and Ativan, it finally started calming down. Calming down to them though was 117/70. My blood pressure usually runs about 90/52, techinally hypotension caused by my Celiac Disease and perniscious anemia. That inturn would make that a very high blood pressure for me. They diagnosed me with SVT supraventricular tachycardia and prescribed me Metroprolol to regulate my heart. I feel horrible today. I definitly have whatever bug the kids have and my chest hurts. Has anyone else been diagnosed with this? Is it just complications of my prednisone? I know that I am strictly gluten free. It's hard for me right now because I don't know anyone that is or has been in the kind of situation that I am in. My boyfriend tries to understand, but he comes from the old thinking that if it's not killing you your ok. How do I get him to understand the severity of the situation at hand? I'm sure he is not dealing well with the fact that his young girlfriend is very sick. I just don't know where else to turn. I need some support, someone that understands.

Thanks for your time,

brooklyn

how long have you been on the prednisone?,l when I take it it's only for 5 days at a time

Brooklyn528 Apprentice
Brooklyn528
Posted
  • Author

I've been at 50 mg a day for two weeks. It's for treatment of my autoimmune hepatitis. I am supposed to take 50 mg a day for one more week then i step down to 40mg a day for two weeks, then 30mg two weeks, until i hopefully can be on just 10 mg a day to control.

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