Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Expect After Getting Glutened?


haleym

Recommended Posts

haleym Contributor

Hi there!

Was recently on vacation, and despite my very best efforts, I got glutened. One was eating from a platter of food that had, among other things, Spaetzle on it, and the other time was when I ordered pumpkin ice cream (which was actually pumpkin PIE) and crunched into a piece of pie crust!

There could have been a few other times, such as ordering scrambled eggs at a restaurant, ordering a hamburger without the bun... you never know, right?

The spaetzle was 2 days ago, and the pie crust was this morning.

Ive had very sporadic, short lived sharp pains in my upper GI-area, kind of like someone is poking a toothpick from inside now and then, or like I swallowed a little pokey thing and its bouncing around in there... This is not my normal, random stomach gurle that sometimes happens but something that I remember from before I found out I am gluten intolerant. But at the same time, the reaction is not extreme at all.

Ive been gluten free for 6 weeks now, and the amount of glutening seems very small compared to if I ate a piece of bread. Does this seem like a normal reaction for such a seemingly insignificant amount?

By the way, Kudos to those in Leavenworth that were understanding when I asked for the hamburger with no bun! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eyeaspire Newbie

Last March, when I started to figure out my gluten intolerance, I was really skeptical that such trace amounts could actually affect anyone. But, then, I ate a kale salad with a little bit of blue cheese on top. Turns out that the mold in my blue cheese was dusted off bread. That teeny, tiny bit messed up my entire week.

Same goes for the grilled sandwich where I took off the bread (and scraped off hte bread crumbs) and the Mocha Chip Frappucino (gluten in the chips) I had last August.

So, yeah, the littlest bit can cause a reaction. I am perpetually dumbfounded by how little it takes to make invoke a reaction.

mamies8 Newbie

As time goes on and your body starts to heal, your reaction to gluten may increase in severity. I have been gluten-free for 2 1/2 year now and something as simple as using dishes at a friends house or using a microwave that has food deposits on the roof can trigger a massive reaction for me. Yet, for some people their reactions stay mild and consistent. Just remember that even though your reaction may be mild to moderate does not mean it's effect on you immune system isn't severe. Vacations are always hard...while you are supposed to be relaxed you spend your time trying to not be a bother to those you are with while trying to ensure that the food you eat is safe. I have vowed to my self that one day when I have enough money I am going to stay at gluten-free resort(yes they do exsist) so that I can truly relax! I wish you the best in your new gluten-free life and don't give up, it gets easier over time!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.