Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Expect After Getting Glutened?


haleym

Recommended Posts

haleym Contributor

Hi there!

Was recently on vacation, and despite my very best efforts, I got glutened. One was eating from a platter of food that had, among other things, Spaetzle on it, and the other time was when I ordered pumpkin ice cream (which was actually pumpkin PIE) and crunched into a piece of pie crust!

There could have been a few other times, such as ordering scrambled eggs at a restaurant, ordering a hamburger without the bun... you never know, right?

The spaetzle was 2 days ago, and the pie crust was this morning.

Ive had very sporadic, short lived sharp pains in my upper GI-area, kind of like someone is poking a toothpick from inside now and then, or like I swallowed a little pokey thing and its bouncing around in there... This is not my normal, random stomach gurle that sometimes happens but something that I remember from before I found out I am gluten intolerant. But at the same time, the reaction is not extreme at all.

Ive been gluten free for 6 weeks now, and the amount of glutening seems very small compared to if I ate a piece of bread. Does this seem like a normal reaction for such a seemingly insignificant amount?

By the way, Kudos to those in Leavenworth that were understanding when I asked for the hamburger with no bun! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eyeaspire Newbie

Last March, when I started to figure out my gluten intolerance, I was really skeptical that such trace amounts could actually affect anyone. But, then, I ate a kale salad with a little bit of blue cheese on top. Turns out that the mold in my blue cheese was dusted off bread. That teeny, tiny bit messed up my entire week.

Same goes for the grilled sandwich where I took off the bread (and scraped off hte bread crumbs) and the Mocha Chip Frappucino (gluten in the chips) I had last August.

So, yeah, the littlest bit can cause a reaction. I am perpetually dumbfounded by how little it takes to make invoke a reaction.

mamies8 Newbie

As time goes on and your body starts to heal, your reaction to gluten may increase in severity. I have been gluten-free for 2 1/2 year now and something as simple as using dishes at a friends house or using a microwave that has food deposits on the roof can trigger a massive reaction for me. Yet, for some people their reactions stay mild and consistent. Just remember that even though your reaction may be mild to moderate does not mean it's effect on you immune system isn't severe. Vacations are always hard...while you are supposed to be relaxed you spend your time trying to not be a bother to those you are with while trying to ensure that the food you eat is safe. I have vowed to my self that one day when I have enough money I am going to stay at gluten-free resort(yes they do exsist) so that I can truly relax! I wish you the best in your new gluten-free life and don't give up, it gets easier over time!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.