Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations....cold Sores In Nose And Mouth?

Jodie2DQ2

By Jodie2DQ2
in Related Issues & Disorders

Recommended Posts

Jodie2DQ2 Apprentice
Jodie2DQ2
Posted

I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ahorsesoul Enthusiast
Ahorsesoul
Posted

Heart palpitations. I have them and so do others in my family. Here is what works for me. I drink one Gatorade or Propel daily. Seems to work. My dad has atrial fibrillation so when the cardiac arrhythmia specialist at Mayo told him to try this I started it too. If I stop for a week, the flutters start again so now I just always drink one a day.

A friend went to the hospital one day with a heart beat sky high. She also has a family history of this problem. Little town with a young ER doctor. They actually gave her a shot that stopped her heart from beating. The drugs effect only lasted a few seconds and her heart started again on it's own and back to a normal rhythm. He told her he could give her a drug to regulate her heart rate or she could try an over the counter potassium pill. He said potassium sometimes can help regulate the beats. This works for her.

chatycady Explorer
chatycady
Posted
I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie

YES! It was horrible. The heart Dr. said my heart was enlarged. He sent me to an endocronologist...... it's a long story.

It took awhile for me to figure it out, but my adrenal glands were in over drive pumping out adrenaline to control my blood sugar levels. Also I struggled with low blood pressure. I think I was low on every single vitamin there is! I went gluten free and then took it a step farther and went on the Specific Carbohydrate Diet. In time all the symptoms went away. It's been a year since I started the SCD.

I didn't find a Dr. who could help me. Went to 4 specialists. It was through this website that I found answers. We are all so different - so keep working. One thing I read and found out for myself was - there is no magic pill or food that will make me feel better, it was eliminating foods that caused the symptoms.

Since you said the Dr. told you it was anxiety I'm assuming you are not anemia (iron or B-12). B-12 deficiency causes cancer sores - terribly (been there done that too!) However you could be low on other B vitamins - which can lead to a racing heart too.

Find a new Dr. - or become your own Dr. You know your body better than anyone. I pray you get relief - the heart racing cause me major anxiety!!!! I'm glad it's gone.

Your gluten free aren't you? Celiac's often have cancer sores and racing hearts.

Jodie2DQ2 Apprentice
Jodie2DQ2
Posted
  • Author

Yes, I have been gluten free for almost 3 years now! I am very careful! But this is something that has been a struggle off and on! Other things have changed this last year. I had a hysterectomy in March, ovaries were left, but I have not been the same since! The heart thing really freaks me out! So, I know I need to keep fighting just like I had to when I was sick before finding out about having Celiac. They said I was dpressed or anxious and needed a psychologist or whatever! I could have been on any meds I wanted at that time! I am not a big vitamin person as i am so sensitive, but I have started a Cal/Mag and a B complex. Thanks for your response! I will keep on trying to figure it out!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748
    BJ OConnor
    Newest Member
    BJ OConnor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.