Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations....cold Sores In Nose And Mouth?


Jodie2DQ2

Recommended Posts

Jodie2DQ2 Apprentice

I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Heart palpitations. I have them and so do others in my family. Here is what works for me. I drink one Gatorade or Propel daily. Seems to work. My dad has atrial fibrillation so when the cardiac arrhythmia specialist at Mayo told him to try this I started it too. If I stop for a week, the flutters start again so now I just always drink one a day.

A friend went to the hospital one day with a heart beat sky high. She also has a family history of this problem. Little town with a young ER doctor. They actually gave her a shot that stopped her heart from beating. The drugs effect only lasted a few seconds and her heart started again on it's own and back to a normal rhythm. He told her he could give her a drug to regulate her heart rate or she could try an over the counter potassium pill. He said potassium sometimes can help regulate the beats. This works for her.

chatycady Explorer
I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie

YES! It was horrible. The heart Dr. said my heart was enlarged. He sent me to an endocronologist...... it's a long story.

It took awhile for me to figure it out, but my adrenal glands were in over drive pumping out adrenaline to control my blood sugar levels. Also I struggled with low blood pressure. I think I was low on every single vitamin there is! I went gluten free and then took it a step farther and went on the Specific Carbohydrate Diet. In time all the symptoms went away. It's been a year since I started the SCD.

I didn't find a Dr. who could help me. Went to 4 specialists. It was through this website that I found answers. We are all so different - so keep working. One thing I read and found out for myself was - there is no magic pill or food that will make me feel better, it was eliminating foods that caused the symptoms.

Since you said the Dr. told you it was anxiety I'm assuming you are not anemia (iron or B-12). B-12 deficiency causes cancer sores - terribly (been there done that too!) However you could be low on other B vitamins - which can lead to a racing heart too.

Find a new Dr. - or become your own Dr. You know your body better than anyone. I pray you get relief - the heart racing cause me major anxiety!!!! I'm glad it's gone.

Your gluten free aren't you? Celiac's often have cancer sores and racing hearts.

Jodie2DQ2 Apprentice

Yes, I have been gluten free for almost 3 years now! I am very careful! But this is something that has been a struggle off and on! Other things have changed this last year. I had a hysterectomy in March, ovaries were left, but I have not been the same since! The heart thing really freaks me out! So, I know I need to keep fighting just like I had to when I was sick before finding out about having Celiac. They said I was dpressed or anxious and needed a psychologist or whatever! I could have been on any meds I wanted at that time! I am not a big vitamin person as i am so sensitive, but I have started a Cal/Mag and a B complex. Thanks for your response! I will keep on trying to figure it out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.