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Severe Stomach Cramps


anglepoise

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anglepoise Apprentice

Hi, I've had some weird things happen to me in the last month. Several weeks back, I got what looked like food poisoning, & wound up in the hospital, where I had to get rehydrated with an IV. So there was that, then a few days back, my fiance & I were on a road trip, when I started to get these waves of stomach cramps. They soon became terribly severe & started migrating to my intestines. Pretty soon, both my stomach & intestines were cramping in waves, so bad that I was screaming into a pillow. I felt like I'd been shot. This went on for an hour & 1/2. I honestly thought I was dying. We were in the mountains, nowhere near a medical facility, so we just pulled over & I hoped they would pass. All in all, I had the cramping for 4 1/2 hours. It was a nightmare. I've never had anything like that before. I've been gluten free for about a year & wonder if I got contaminated in both instances. Blood tests showed that I didn't have food poisoning after all in the 1st instance. Has this stuff happened to others here?

angel


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KaitiUSA Enthusiast

I was in the ER 4 times before my diagnosis because of what they thought was dehydration. Blood tests found nothing wrong with me either. I thought I had food poisoning and it turns out before I was diagnosed I had not only ecoli(from a McDonalds Big Mac <_< ) but I also had mono...so there was my trigger

Anyways I know what you have been through(haven't had severe stomach cramps but I have had alot of other stuff)...since being gluten free that hasn't happened at all so maybe you were contaminated...did your fiance eat something then kiss you and you got contaminated that way? Have you checked lipsticks, shampoos, and lotions already? Try to track down every possible way you think you could have been contaminated.

mela14 Enthusiast

I also had the same thing happen. I wound up in the hospital several times with stomach pain, diahrea, dizzy, muscle pain, fatigue....each time I was rehydrated by IV and told it was probably the flu. Once they even told me I had Giardia and put me on Flagyl for it. when the stool test came back it was negative. I was actualy tested a few times and each time was negative for parasites and ova.

In hindsight it was probably gluten or some other food intolerance that I never suspected. I never thought I had a food intolerance but am realizing more and more that diet is key.

hang in there til you figure out what you can eat and try to scrutinize everything.

B)

Canadian Karen Community Regular

I have also experienced those kinds of pain attacks throughout my years, both before and after the gluten free diet. Mine also passed after about the four to five hour period. The only thing that helped me was my heating pad, on the floor, rocking back and forth, humming to myself, trying to get myself into a "place in my mind" where I didn't feel the pain...... I have never figured out through what has brought them on.... For me, it kind of felt like there was a vice grip in my abdomen pulling it apart.....

Karen

anewsprue Newbie

That's the kind of pain I had last time I was in the ER, before the final diagnosis of celiac disease. I had that kind of pain once before when I had a bladder infection with spasms, lasted about four to five hours and they think I passed a kidney stone. Might want to have a UA and be checked for an infection. Hurt like childbirth. :o

hsd1203 Newbie

just FYI... the only time I get stomach pains that bad (WAY worse than getting glutened) and literally want to die, is when I eat something with aspartame. even suger free gum is enough to give me a little tummy ache. sounds weird, I know, but it happens to my mom and aunt too. maybe on your road trip you were eating different than usual?

just a thought

anglepoise Apprentice

Thanks, everyone, for your views. It makes me feel better to know that I'm not alone in this.

On another note, I downloaded the radio show on Celiac called "Gut Reaction," from Audibles.com & gave it a listen. It's very moving & powerful, but left me confused. Everyone at the end of the show was saying that the gluten-free diet was a like a miracle cure & that they feel so much better. I've been on the diet now about a year, as strictly as possible, & although I've seen a decline in bowel problems & migraines, I still have a lot of other problems, like joint/muscle pain & fatigue. I definitely cannot call the gluten-free diet a miracle cure, but it's certainly helped some.

angel


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ianm Apprentice

Every one responds differently. Some people take longer to heal than others. I would have to put myself into the group of people who call the gluten free diet a miracle. I didn't heal overnight either. My life is now the polar opposite of what it was. Keep at it, it will get better.

  • 2 weeks later...
antmimi Rookie

Have you been tested for food allergies? Sometimes that can cause the symptoms too. Rice kills my stomach.

mela14 Enthusiast

ok.......suffering here too......I am learning that soy is worse for me than gluten!

last night I had a gluten-free cookie that clearly stated on the package that it is produced in a facility that also uses dairy, eggs, soy, peanuts and tree nuts! Unfortunately I didn't bother to read that part but hubby read it this morning only AFTER I was so sick. I must be THAT sensitive! I am trying to stay positive but feeling so poorly just gets me down. I can't seem to get it right. there are so many things to watch out for! soy is a killer for me! :blink:

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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