Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Loss, Drop On Growth Chart And Mild/intermittent Symptoms...


SED

Recommended Posts

SED Newbie

Just took my child in for a pedi checkup. She is 10. Within the last month she has had an unintentional 5 lb. weight loss. I wasn't too worried since there were really no *new* associated signs and symptoms. However, once at the peds office he voiced some concern since she had dropped from the 90th percentile in height a few years ago to the 50th now.

Since being home, I've started to wonder about some other mild to moderate symptoms that are seemingly intermittent and up til now, seemingly unrelated.

1. She gets canker sores a lot. At least 1-2x/ month.

2. She has intermittent times when she has a few days of diarrhea or loose stools. She doesn't seem overly bothered by it, but she does have some abdominal cramping and urgency. We've always chalked it up to a mild lactose intolerance, but she hardly ever drinks milk anymore and these things sometimes happen when no milk products have been consumed.

I called the ped back just to let him know about these two things that I didn't think to tell him about. I spoke with the office "nurse" who proceeded to tell me he thought these things were unrelated :rolleyes: . I said "yeah, well, maybe..but when you combine them with unintentional weight loss and a pretty significant growth chart drop then I thought Dr.X may want to be the one to decide that."

Any and all thoughts are welcome, thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I would ask them to do a full celiac panel on her.

momxyz Contributor

Your daughter sounds like my daughter at age 11. I have posted her story elsewhere on this board (see also my profile)

I would pursue testing, but be aware that false negatives or inconclusive results are not infrequent, especially if symptoms are not all that obvious - on the mild side like you described.

Other problems and manifestations may show up down the road. If I knew back then what I know, I would have considered the gluten free diet sooner rather than later.

Please let us know how things go....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.