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Women And Menstruation

tmbarke

By tmbarke
in Coping with Celiac Disease

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tmbarke Apprentice
tmbarke
Posted

I'm curious if gluten intolerance, allergy, or celiacs has anything to do menstruation.

Mine are heavy with large clots and I wonder if this is common with this disorder.

I'm not sure when my next is to be as I've been becoming irregular this last year. Sometimes 2 light ones and sometimes 1 heavy one or I start later than my normal cycle - but the same results (clotting)

Has it changed for anyone else since going gluten-free?

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jststric Contributor
jststric
Posted

We had a post regarding this just recently. We don't know, lol. I, too, have had all sorts of issues, but I'm at that age too. I have not seen any research or subjects indicating there's a tie between the two, but that doesn't count for much.

Yup Apprentice
Yup
Posted

When I was in my teens I felt like I was going to die every second month. When I hit 35 my periods were becoming infrequent. One month heavy, nothing, light - you name it. When went to see the doctor he told me that I started menopause. This was before my diagnosis. Once I came off gluten my body has started to become more regular, but not always. I recently read that women with autoimmune diseases have similiar experiences.

tmbarke Apprentice
tmbarke
Posted
  • Author
We had a post regarding this just recently. We don't know, lol. I, too, have had all sorts of issues, but I'm at that age too. I have not seen any research or subjects indicating there's a tie between the two, but that doesn't count for much.

I guess I'm still learning the forum.......I'll try to find it

Swimmr Contributor
Swimmr
Posted

Up until I was going gluten free my cycles were very irregular, most times extremely painful and very very heavy. They'd last for a full 7 days.

Now they're RIGHT on schedule down to the day and are 4 days...then 3 tapering off with only slight color. Pains only on the first day and hardly no PMS (bloating, swollen/painful breasts)

One thing that hasn't changed is my emotional state. I cry the day before or the day of for unknown reasons. Then I say, "I am going to start tomorrow" and my husband says, "oohhh...yeah that's right"

Swimmr Contributor
Swimmr
Posted

oops I as well didn't realize it's posted elsewhere....how do I delete a post??

tmbarke Apprentice
tmbarke
Posted
  • Author
oops I as well didn't realize it's posted elsewhere....how do I delete a post??

I haven't a clue!

But hey - I got a little of what I was fishing for.....I am hoping for the lightening up and elimination of the clotting (it's a strange feeling when they pass by a tampon - like I wet myself!)

I have stopped getting the emotional part of it a long time ago - but I do get back cramps and a sharp pain in the lower abdomen that tells me it's on it's way.

My boyfriend said he could tell when I was going to start....but he wasn't always right.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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