Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Protein Intolerance


kannne

Recommended Posts

kannne Explorer

Hi

I have celiac and have been on gluten-free diet for 9 years and SCD the last year.

My father has always had problems with his stomach but he don't have celiac.

I also have protein intolerance and can not break down casein, egg, soya and corn because I have aspergers syndrome.

My father also have protein intolerance against gluten and casein. The urin test showed he did not break down gluten and casein.

Does anyone have any experience about protein intolerance?

He don't want to start diet. He says it is enough if he only reduce the amount of casein he is eating. He is not so tired and is function much better fter he reduced the casein intake. But I really would like him to stop completly with it.

Does anyone know about long term effect of eating gluten/casein when the body can not handle to break the peptid down?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

My understanding is that a real, generalized, protein intolerance also means you cannot tolerate any meats/fish/game/etc. The protein sources you list there are all common allergens. Does the protein problem extend to other forms of protein?

kannne Explorer

Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

tarnalberry Community Regular

Oh sure, there is some use of the gluten and casein free diet for Autistic Spectrum kids here in the US too. It's just referred to as the gluten free casein free diet (Gluten-free Casein-free). There are some people who have problems digesting most all proteins, not just those two, hence the confusion. There are a number of people on the board who are using such a diet (either for Autism or other reasons).

Long term consumption of gluten is a problem - if he is celiac, which you don't mention tests for celiac. Eating gluten can cause serious long term side effects for a celiac - nutritional deficiencies leading to anemia or osteoporosis, cancers of the digestive system, neurological imparement, and more. I don't think there is any clear cut evidence on what the long term effects of someone gluten sensitive continuing to eat gluten - but it's a constant stressor on the immune system. Ditto for dairy - I don't think there are clear studies.

GFinDC Veteran
Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

Hi,

I have read that some people think a gluten / casein free diet is helpful for people with autism. I don't have autism, but I do avoid gluten and casein, as I have problems with both of them. For me casein affects my sleeping, and I can't get to sleep for several days if I eat it. It also affects my gut and irritates it. Gluten really messes me up in my gut and all over.

There is some info on the web about gluten and opiates. With celiac people sometimes have a "leaky gut". That doesn't mean you have actual holes in your gut. It means that your gut/intestine membranes are more likely to let some larger protein bits through to the bloodstream. So, the way I see it, the gliaden or casein proteins can sometimes get through the gut lining into the bloodstream. Then they can affect various parts of the body including the brain, joints, thyroid etc, etc.

For me if I eat casein for several days running the affects get worse and worse. So I suggest you are right, getting off it completely is the way to go!

Welcome to the forum! :)

Many people use the abbreviations Gluten-free Casein-free here, for gluten free /casein free diet.

YoloGx Rookie

Just wanted to add that taking olive leaf extract or olive leaf tea might really help against the aspergillus! Start slow and work your way up. I don't know what kind of fungus I have but whatever it is it has been intractible. This olive leaf is really helping.Good against all kinds of fungus, microbes, bacteria, viruses... Am taking it with a few other things too like dandelion and yellow dock since I also tend to get a little constipated (they help release bile which helps with peristalsis and also acts as a kind of "bitters" that helps with digestion in the stomach). They also help against some aspects of the allergic reaction or "leaky gut" by helping to clean out the liver and are also very good for the kidneys and overall are very detoxing. I use marshmallow root to soothe and heal the lining of my intestines plus again it helps with the kidneys. Also I am sure you have heard that digestive enzymes like bromelain/papain and/or pancreatin can help with the protein digestion--though of course avoiding allergens is always best...

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.