Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Protein Intolerance


kannne

Recommended Posts

kannne Explorer

Hi

I have celiac and have been on gluten-free diet for 9 years and SCD the last year.

My father has always had problems with his stomach but he don't have celiac.

I also have protein intolerance and can not break down casein, egg, soya and corn because I have aspergers syndrome.

My father also have protein intolerance against gluten and casein. The urin test showed he did not break down gluten and casein.

Does anyone have any experience about protein intolerance?

He don't want to start diet. He says it is enough if he only reduce the amount of casein he is eating. He is not so tired and is function much better fter he reduced the casein intake. But I really would like him to stop completly with it.

Does anyone know about long term effect of eating gluten/casein when the body can not handle to break the peptid down?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

My understanding is that a real, generalized, protein intolerance also means you cannot tolerate any meats/fish/game/etc. The protein sources you list there are all common allergens. Does the protein problem extend to other forms of protein?

kannne Explorer

Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

tarnalberry Community Regular

Oh sure, there is some use of the gluten and casein free diet for Autistic Spectrum kids here in the US too. It's just referred to as the gluten free casein free diet (Gluten-free Casein-free). There are some people who have problems digesting most all proteins, not just those two, hence the confusion. There are a number of people on the board who are using such a diet (either for Autism or other reasons).

Long term consumption of gluten is a problem - if he is celiac, which you don't mention tests for celiac. Eating gluten can cause serious long term side effects for a celiac - nutritional deficiencies leading to anemia or osteoporosis, cancers of the digestive system, neurological imparement, and more. I don't think there is any clear cut evidence on what the long term effects of someone gluten sensitive continuing to eat gluten - but it's a constant stressor on the immune system. Ditto for dairy - I don't think there are clear studies.

GFinDC Veteran
Maybe it is called something else?

I norweigan we call it protein intolerance.

It is the "autism diet". Does anyone know what I mean? Autistick people can't break down gluten and casein and they can turn into morphine.

Hi,

I have read that some people think a gluten / casein free diet is helpful for people with autism. I don't have autism, but I do avoid gluten and casein, as I have problems with both of them. For me casein affects my sleeping, and I can't get to sleep for several days if I eat it. It also affects my gut and irritates it. Gluten really messes me up in my gut and all over.

There is some info on the web about gluten and opiates. With celiac people sometimes have a "leaky gut". That doesn't mean you have actual holes in your gut. It means that your gut/intestine membranes are more likely to let some larger protein bits through to the bloodstream. So, the way I see it, the gliaden or casein proteins can sometimes get through the gut lining into the bloodstream. Then they can affect various parts of the body including the brain, joints, thyroid etc, etc.

For me if I eat casein for several days running the affects get worse and worse. So I suggest you are right, getting off it completely is the way to go!

Welcome to the forum! :)

Many people use the abbreviations Gluten-free Casein-free here, for gluten free /casein free diet.

YoloGx Rookie

Just wanted to add that taking olive leaf extract or olive leaf tea might really help against the aspergillus! Start slow and work your way up. I don't know what kind of fungus I have but whatever it is it has been intractible. This olive leaf is really helping.Good against all kinds of fungus, microbes, bacteria, viruses... Am taking it with a few other things too like dandelion and yellow dock since I also tend to get a little constipated (they help release bile which helps with peristalsis and also acts as a kind of "bitters" that helps with digestion in the stomach). They also help against some aspects of the allergic reaction or "leaky gut" by helping to clean out the liver and are also very good for the kidneys and overall are very detoxing. I use marshmallow root to soothe and heal the lining of my intestines plus again it helps with the kidneys. Also I am sure you have heard that digestive enzymes like bromelain/papain and/or pancreatin can help with the protein digestion--though of course avoiding allergens is always best...

Bea

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.