Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endo/colo Of 8 Year Old In 3 Days

Karas mom

By Karas mom
in Doctors

Recommended Posts

Karas mom Newbie
Karas mom
Posted

Hi,

This is my first time to post and I hope this works.

I'm looking for some emotional support regarding my daughter's endoscopy and colonoscopy in the next few days.

My daughter is 8 years old. She has dental enamal defects on her permanent front teeth (discoloration and mottling) and her 6 year molars are also defective and are chipping away. She was not ill in the first year of her life, I never took any medications during pregnancy, and I have never taken Tetracycline. She has had intestinal problems off and on for years (cramping, gas, loose stools). Her celiac panel was negatine except that her total IgA was 31 (normal 33-236) and her IgG was 80 (normal 0-15). Her iron/plasma was 45 (normal 50-120) with MCV and MCH also lower than normal. Her absolute eosinophil count was .24 (normal .01-.19) She had a barium study which did not indicate any IBS. She has sleep problems and very obvious mood swings with irritablity. She seems to have a lactose intollerance.

Any feedback before the endoscopy/colonoscopy? I am fearful that her Peds GI will not see any Villi damage and therefore discount all of the other indications/problems that we are having. Any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvthelake21 Rookie
luvthelake21
Posted

Hi Karas mom and welcome to this forum you will great info and support on this site. My daughter was 10 when we found out she has Celiac. She is now 13. She had a Endoscopy and it was probley worse on her father and I than on her. The worse problem was when they had took her back for the procedure they left her gown open in the front some, and she was so embarrased that we ended up finding a new doctor after some time. Her stomache hurt when we came home from the procedure because I beleive they put air in your stomache to do the test. I wish we would had been warned before we went home. Gave her some pain med and she finally went to sleep. Just get all the info you can up front and everything should be fine. Good luck to her.

ravenwoodglass Mentor
ravenwoodglass
Posted

She will be fine. The hard part will be the prep the day before the colonoscopy. Make sure you have lots of stuff that she can read or coloring books etc in the bathroom as she will spend much of the day before there. The prep can give a bit of cramping when it first works but usually it is not a painful experience. The tests themselves will be easy as she will be asleep for them and they usually don't take very long. You can start her on a trial of the gluten-free diet as soon as she has the endo done. Her response to the diet may give you the answer before you even go back for the test results. Her positive blood work strongly indicates that she needs to be on the diet, IMHO so do give the diet a good strict try no matter what the test results from the endo are.

nmlove Contributor
nmlove
Posted

Hi Karas Mom, I can't help you with the colonoscopy but my four year old son just had an endoscopy. He did great and everything went really, really fast. He didn't seem too nervous until we had to leave him but the doctors and nurses said he did great and hopped up right on the bed in the procedure room. The GI doc was out in about ten minutes (maybe even sooner) with the news that he saw damage and took four biopsies. All of which came back positive just this week. His recovery was super too. No sore throat, no upset stomach, nothing other than being groggy on waking and a little cranky - probably from not eating! He was himself 100% within a few hours. Good luck, I'm sure it'll go fine!

Karas mom Newbie
Karas mom
Posted
  • Author
Hi Karas mom and welcome to this forum you will great info and support on this site. My daughter was 10 when we found out she has Celiac. She is now 13. She had a Endoscopy and it was probley worse on her father and I than on her. The worse problem was when they had took her back for the procedure they left her gown open in the front some, and she was so embarrased that we ended up finding a new doctor after some time. Her stomache hurt when we came home from the procedure because I beleive they put air in your stomache to do the test. I wish we would had been warned before we went home. Gave her some pain med and she finally went to sleep. Just get all the info you can up front and everything should be fine. Good luck to her.

Thanks so much for replying. Your daughter sounds just like mine. She would have been mortified with the gown incident. How difficult for a young girl. Thanks for the reminder that we need to be proactive and ask specific questions. I can't wait till this is over and we can move on to helping her!

Thank you!

Karas mom Newbie
Karas mom
Posted
  • Author
Hi Karas Mom, I can't help you with the colonoscopy but my four year old son just had an endoscopy. He did great and everything went really, really fast. He didn't seem too nervous until we had to leave him but the doctors and nurses said he did great and hopped up right on the bed in the procedure room. The GI doc was out in about ten minutes (maybe even sooner) with the news that he saw damage and took four biopsies. All of which came back positive just this week. His recovery was super too. No sore throat, no upset stomach, nothing other than being groggy on waking and a little cranky - probably from not eating! He was himself 100% within a few hours. Good luck, I'm sure it'll go fine!

Thank you for the reassurance. I had been wondering about the sore throat. We have a 2 hour drive back home from the hospital, so I imagine she will sleep it off. Thanks for the support!

Karas mom Newbie
Karas mom
Posted
  • Author
She will be fine. The hard part will be the prep the day before the colonoscopy. Make sure you have lots of stuff that she can read or coloring books etc in the bathroom as she will spend much of the day before there. The prep can give a bit of cramping when it first works but usually it is not a painful experience. The tests themselves will be easy as she will be asleep for them and they usually don't take very long. You can start her on a trial of the gluten-free diet as soon as she has the endo done. Her response to the diet may give you the answer before you even go back for the test results. Her positive blood work strongly indicates that she needs to be on the diet, IMHO so do give the diet a good strict try no matter what the test results from the endo are.

Thanks for the support. She is actually doing a 4 day prep which has been a bit gentler, but I expect tomorrow will be spent in the bathroom, as you said. Do you feel that just the IgG being positive would indicate the diet? That's kind of my plan, regarless of what they find. Do you think a child being officially diagnosed is less frequent because the villi take longer to become damaged as compared with an adult who has suffered many years? It's hard to only rely on the tests when your "gut" (no pun intended) is telling you what is liikely best for your child. Thanks for the support. I'm looking forward to it being over so we can move on and help her to feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

as everyone said all will be fine & you will do the suffering not the child! Parents do the suffering & worry its all natural.

Our kid was 2 1/2 & did both as well...... just pray & it will all be okay. God is great.

blessings

sande

Karas mom Newbie
Karas mom
Posted
  • Author
as everyone said all will be fine & you will do the suffering not the child! Parents do the suffering & worry its all natural.

Our kid was 2 1/2 & did both as well...... just pray & it will all be okay. God is great.

blessings

sande

Thank you for your kind words!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,049
    • Most Online (within 30 mins)
      7,748
    ChloeT
    Newest Member
    ChloeT
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Pepsid alternative

      By Scott Adams · Posted

      It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!!
    • Stephanie Wakeman
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Stephanie Wakeman · Posted

      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Pepsid alternative

      By milana · Posted

      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      gluten-free self diagnosed journey so far as well as what triggers. Eye crying like peeling onions?

      By Scott Adams · Posted

      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
×
×
  • Create New...