Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy Vs celiac disease


Chev

Recommended Posts

Chev Newbie

I am confused. I have been on a gluten free diet , or trying to be on one, for almost a year. I swear i felt stronger before this diet. I sometimes think i may just have a wheat allergy and not celiac disease as i just sneeze, cough, breakout in my face and get sinus issues if i eat bread or pasta and so forth. However, I got low on nutrients when i cut out the breads and cereals and was told to eat brown rice and more protein. I got better after eating more of that stuff to replace the wheat in my diet. I got the worst gas after that which lasted like almost a month. I thought it was celiac disease again but found out after that it as the pro-biotic vitamins (multibionta) that had caused it. After cutting the tabs out and finally eating some raw garlic to kill those suckers (pro-biotics), i finally got rid of the gas just like that!

So, all that to say this, Could i just be allergic to wheat and not gluten? Whenever I got sick was when i ingested something that actually had WHEAT Flour in it. In the beginning before i even knew about celiac disease I actually switched to Barley flour and was doing quite well my face even cleared up. I live in the Caribbean and I feel so alone as no one here seems to really make time for this stuff. If any Caribbean people out there please give me a heads up on which island is best for this stuff.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
I am confused. I have been on a gluten free diet , or trying to be on one, for almost a year. I swear i felt stronger before this diet. I sometimes think i may just have a wheat allergy and not celiac disease as i just sneeze, cough, breakout in my face and get sinus issues if i eat bread or pasta and so forth. However, I got low on nutrients when i cut out the breads and cereals and was told to eat brown rice and more protein. I got better after eating more of that stuff to replace the wheat in my diet. I got the worst gas after that which lasted like almost a month. I thought it was celiac disease again but found out after that it as the pro-biotic vitamins (multibionta) that had caused it. After cutting the tabs out and finally eating some raw garlic to kill those suckers (pro-biotics), i finally got rid of the gas just like that!

So, all that to say this, Could i just be allergic to wheat and not gluten? Whenever I got sick was when i ingested something that actually had WHEAT Flour in it. In the beginning before i even knew about celiac disease I actually switched to Barley flour and was doing quite well my face even cleared up. I live in the Caribbean and I feel so alone as no one here seems to really make time for this stuff. If any Caribbean people out there please give me a heads up on which island is best for this stuff.

thanks

I know someone who cannot eat wheat but claims that rye and barley don't bother her. I don't know if she has ever been tested for celiac. For what it's worth.... She also cannot eat potato. Have you ever actually been tested for celiac, or maybe since you live in the Caribbean there is no testing available there???

seashele2 Newbie
I am confused. <cropped>

So, all that to say this, Could i just be allergic to wheat and not gluten? Whenever I got sick was when i ingested something that actually had WHEAT Flour in it. In the beginning before i even knew about celiac disease I actually switched to Barley flour and was doing quite well my face even cleared up. I live in the Caribbean and I feel so alone as no one here seems to really make time for this stuff. If any Caribbean people out there please give me a heads up on which island is best for this stuff.

If you can tolerate barley flour, then you are probably not celiac. From a non-medically tested observation, you are probably just allergic to wheat. If you were celiac, you would react equally to the proteins in wheat, barley and rye.

The only way to tell for sure is to go back to eating all of it and be tested, via labs and endoscopy. Short of that, if eating barley doesn't bother you, go with the idea that you have a wheat allergy and just avoid that. A wheat allergic person's food selections are vastly increased in the U.S. over a celiac's choices. I wish that's all I had to avoid!

~Michelle~

ravenwoodglass Mentor

An allergist should be able to tell you whether you have a true allergy to wheat. I am assuming you were diagnosed with celiac. The sudden additon of more fiber in our diets, like when you added in the brown rice can cause us to develop more gas until our body adjusts to the added fiber. Increasing it slowly can help. I am glad you were able to figure out that the probiotics were bothering you. I usually go with yogurt and saurkraut when I feel I might need probiotics instead of the pill form. For me that seems to work.

One other note, I think some of us, myself included, can have different symptoms from the different glutens. Barley for me cause tooth and jaw pain that wheat does not and the GI symptoms are milder than they are with wheat unless I continue it daily for a while.

Chev Newbie
An allergist should be able to tell you whether you have a true allergy to wheat. I am assuming you were diagnosed with celiac. The sudden additon of more fiber in our diets, like when you added in the brown rice can cause us to develop more gas until our body adjusts to the added fiber. Increasing it slowly can help. I am glad you were able to figure out that the probiotics were bothering you. I usually go with yogurt and saurkraut when I feel I might need probiotics instead of the pill form. For me that seems to work.

One other note, I think some of us, myself included, can have different symptoms from the different glutens. Barley for me cause tooth and jaw pain that wheat does not and the GI symptoms are milder than they are with wheat unless I continue it daily for a while.

Thank you guys so very much. This iste is a real help as where i live, this is not something people really know about.

Thanks

Chev Newbie
I know someone who cannot eat wheat but claims that rye and barley don't bother her. I don't know if she has ever been tested for celiac. For what it's worth.... She also cannot eat potato. Have you ever actually been tested for celiac, or maybe since you live in the Caribbean there is no testing available there???

That's the thing I am not aware of testing down here. i am going to do some blood work tho to test to make sure i do not have any deficiencies. I will try also to find out somehow!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.