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How Will I Ever Learn It All?


Kelynn

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Kelynn Apprentice

I'm in the process of being diagnosed with Celiac's. Both the doctor and myself are pretty confident that I have it. I'm waiting to get the results of my bloodwork back, but will be eating gluten-free regardless because I have been for a week or so now and I feel SO much better- my symptoms have disappeared.

I'm one of those people that will be at the library, online and talking with everyone I can to fully educate myself about Celiac's. I'm very health conscious and "do things right" when it comes to eating. I know the big obvious no-no's for Celiac's- bread, pasta, pretzels, cakes, cookies, etc. I'm feeling overwhelmed seeing that things like coctail sauce, soy sauce, etc. can have gluten without having the words "gluten" in the ingredient list. I also feel overwhelmed about how to eat out- things I would think would be "safe" I'm learning may not be.

How will I ever get this all straight? Any words of wisdom for me?


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RideAllWays Enthusiast

KEEP READING. It's great that you are taking the initiative to do so. Watch out for hidden gluten such as Malt, and be careful about cross-contamination...new toaster, new bread knives, new fry pans...keep reading on this site, there are so many people that can help you and share your feelings. Feel free to email me at d.hoholuk@hotmail.com for meal ideas and recipes, or just to chat!

Wolicki Enthusiast

OK, the first thing you need to do is BREATHE :D This is just something new you have to learn. :D Like times tables or square roots. You get to become a detective!

Seriously, I've only been at this for 4 months, and I am already somewhat of an expert :D My kids just started gluten-free two weeks ago, so I am learning how to bake gluten-free for them. This site is by far more helpful than any book or nutritionist visit, IMO. Everyone here has been through what you are going through and are more than willing to share tips and advice. Consider us your new extended family :P

Though you will find some who disagree with this, I found Elizabeth Hasselback's new book to be very helpful. Ask any questions you have, and you will get help quickly here!

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    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
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      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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