Celiac.com Sponsor (A1):

Join eNewsletter

Celiac.com Sponsor (A1-m):

Join eNewsletter


This topic is now archived and is closed to further replies.


Symptoms - Should I Get Tested? Tired Of Being Told "no"

Recommended Posts

A friend's daughter was just recently diagnosed with Celiac Disease and the symptoms were hauntingly similar. I'm hoping someone will look at my symptoms and tell me if it's worth getting tested. I just don't want to be told "No" again and feel like a crazy person who's making up symptoms to a phantom disease.

My symptoms:

-very irritable bowels; diarrhea several times a week

-BMs are often loose / "mucus-like"

-BMs can take several trips to the bathroom

-urgent BMs that send me running (have had a couple "accidents")

-bloating: I get a little buddha belly that looks almost like a pregnancy!


-upset stomach after eating (it's hard to make a gluten connection because it pretty much in everything I eat)

- fatigue / need to nap in the afternoon*

*however had a normal iron count recently in a blood test.

- gallbladder disease (removed in 2001)

-Father passed away of a GI cancer

The last GI doctor I went to performed a negative endoscopy (NO celiac test), prescribed me prevacid and told me to stop drinking red wine with dinner. I'm a little frustrated and embarrassed and want to make sure it's worth it to be tested.

Thank you for the support, Kate

Share this post

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Well, I see it as you have 2 choices:

1. Demand a Celiac test. Hopefully it gives you the right answers.

2. Go gluten free and see if it helps.

I personally went with the latter. My doc basically refused to give me the test, and I know from being on a gluten free diet a few years ago that my symptoms all went away. I didn't even realize it at the time, but I do recall after going back on a regular diet thinking to myself that I didn't feel right. And I haven't felt right since, til I went back on the gluten-free diet...

My own symptoms were so random that I never put 2 and 2 together...


-excessive gas

-allergy brain 'fog'


-joint and muscle aches and pain

-intermittent diarrhea and constipation


-persistent hunger

-trouble losing weight (gee, cause I was hungry ALL the time!)

-constant exhaustion (if I didn't have 2 kids and absolutely no chance to nap, I would've napped!!), but trouble sleeping (insomnia)

Now, most of my symptoms are gone. I have a degenerating disc in my lower back that has been debilitating for over a year. I was supposed to have surgery on it last summer, but the insurance company denied it. It was horrible, to the point where I couldn't walk somedays, let alone carry my 2 year old around. Now, it RARELY hurts. I carried my 26 lb son on a mile long walk. I used to cry nearly daily from the pain... Now I can wear heels again! I still get occassional migraines, but they are also triggered by chocolate/caffeine, so I have to watch that. I still have some constipation issues, but NO diarrhea issues. I am no longer hungry all the time either! And I no longer look pregnant, despite going to the gym 3-4 days a week ;).

If having a positive result is really important to you, then get the testing done now, before you go gluten-free. Once you go gluten-free, the testing is pretty inaccurate. I cannot put myself through the pain to go through the testing right now. I might decide to in a few years, to get a definite diagnosis (actually, I'm thinking I'm going to go the genectic test if I can save the money).

Good luck!


Allergic to gluten - or possibly Celiac, testing very soon, and many seasonal environmental allergies. Mom of 2. #1 is anaphylactic to dairy, and allergic to soy and gluten. Dx'd with Autism 1/09, and responding very well to the gluten-free diet. #2 has outgrown all food allergies, but developed seasonal allergies that vary with the season.

Share this post

Link to post
Share on other sites