Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeking Celiac Pro Opinions


Mr-Canadian

Recommended Posts

Mr-Canadian Newbie

Hello everyone - I'm new to all this and was seeking a dialogue and second opinion(s) based on what's happened to me, and if anyone could help me better define the cause:

Symptoms -

Extreme fatigue with shortness of breath

Dizzy, faint, with tunnel vision (especially when rising)

Chest pains; sometimes dull, sometimes very sharp; heart beats "hard" then relaxes

Irritated bowels; bloated, diarrhea, gas, urgency, cramps

Often feel extremely cold

Sometimes when I pee, there's a white powder / burning

Aching muscles that spasm, feel weak

Pins and needles in hands, feet; easy to lose circulation

Face numb with weird taste in mouth

Palms often dripping wet with sweat

Mental fogginess, anxiety, depression, dream-like, everything "delayed"

Migraines and tension headaches; head sometimes vibrates with ringing in ears

Timeline:

Last Winter Vertigo and more / more severe bowel irritation than usual

July / August Increased bowel irritation

Early September Bouts of unexplained anxiety / depression and sudden nausea

Onslaught of migraines and severe bowel irritation

Mid September Insomnia, nausea and bowel irritation

Anxiety attacks began

Nose also became stuffy

Other History:

Migraines since childhood, about 1-2 a year (until 3 over a few days in early Sept.)

Constant tension headaches, 2-3 a week

Irritated bowels throughout life, with "episodes" every 2-3 days

Kidney stones several years ago, still have powder in urine / severe irritation

I ordered a celiac test with the following results:

IgA - 1.2 (out of 11.99)

IgG - 12.4 (out of 11.99)

IgA AB - 2.3 (out of 9.99)

Any insights would be greatly appreciated - thank you very much for your time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You do have a lot of possibly celiac related symptoms. If you are planning on having a biopsy keep eating gluten until that is done. When a celiac related testing is finished do give the diet a good strict try for a couple of months. Read as much as you can here and ask any other questions you need to.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.