Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Whole Sordid Story, Near As I Can Figure Out


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast
Glad to hear you are doing so much better! It really is so nice to be able to exercise! Something one really appreciates when you have gone through a period of time when you can't. Stirs up the mitochondria and all that and makes you feel young again!

I suggested the olive leaf due to you mentioning the aspergillus--which I have heard is very hard to kill using standard methods.

Am fighting something off myself--haven't been quite right ever since I took that damnable clindamycin for a week for an ear infection after which I had a delayed reaction and developed a type of projectile mucous colitis for a couple of weeks. Thank god its helping to use the olive leaf as well as large doses of the the enterically coated acidophilus as well as take the marshmallow root plus the detox herbs. I am going on walks but have yet to achieve using my malibu pilates chair again. Can tell I will very soon however. Am thinking of doing yoga tonight. Meanwhile I seem to be more sensitive than usual to various foods I think because of the devastation to my intestines due to the antibiotics. The AMA approach would be to take even more antibiotics! Arrgh!

Bea

I didn't mention aspergillus as I don't even know what that is (but hope I don't have it). What I have is Asperger's syndrome, meaning that I'm mildly autistic. Gluten-free casein-free soy-free seems to be helping, however. Good luck defeating your current infection; hope it passes quickly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
Right now I'm astounded and swearing my head off (but not on this forum). I couldn't figure out why on earth my gluten intolerance issues were lessening but my RA and and glands (or thryroids) were going bonkers. Sometimes, more like rarely, I do get pins and needles. :huh:

More so tho, my elbows and hands start to ache, then progresses to my thyroid, and then I'm on that awful 'dirty drug high' as I call it and I am in pain. Even if flouride isn't the cause I am definitely going to try purifying my water and hope that alleviates the symptoms. Even that would be good.

Considering I just had a real bad attack this week, Fluffy Assassin your timing is very good. With any luck I can avoid another. And my cats thank you too. :rolleyes:

Welcome to the board! By all means, try reverse-osmosis purified water, and I hope it turns out well for you and for your cats. But again I must mention that I'm no doctor, nutritionist or dietitian. It's something worth trying, but nothing I can guarantee. You might not see any changes in yourself for a month or more, but your cats ought to be more energetic almost immediately. Anyway. that was my experience with Amelia. Good luck, and again, welcome.

The Fluffy Assassin Enthusiast

Now a reply to myself just to say: MAN I'm an idiot. As I remarked in the OP, I've been eating guacamole with practically every meal and coconut with 2 out of 3 meals (all but breakfast, in other words). Our vocabulary words for the day are vasoconstrictor and vasodilator; they mean a substance that constricts or opens, respectively, your blood vessels, be it a drug or a food. Guess what coconut and avocado are? According to stuff I've found on the Internet (so take with the usual grain of salt-- wait that's a vasoconstrictor, too) they're both vasoconstrictors. So my cold and pins and needles sensations in my hands and feet and the odd numbness in my thigh and forearm might be easily explained. Soooo I'm easing up on the guacamole and coconut unless I also eat fish or cucumbers (supposedly vasodilators).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,633
    • Most Online (within 30 mins)
      7,748

    skunk
    Newest Member
    skunk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Wishing you lots of luck--let us know how it turns out!
    • ohmichael
      Thank you both for your input! trents: yes I completely agree, it's simple anatomy. The walk-in doctor I saw even said to me, "you cannot get exposure or get sick if it only got in your respiratory system" to which I replied, "If I inhaled it, it's in the mucous I swallow that leads to my gut." I was honestly baffled I had to explain that to her. Thanks for your comments! Scott Adams: Thanks for your advice, yes I agree I think that's ultimately what I have to do especially while times are getting tougher in this current economy! Hopefully I find something new and equitable or better, in a quick manner! Please send prayers and best wishes for me to find a new job quickly, I wore the N95 masks today and it seems like I'm gonna be okay but I literally have to hazmat wash my clothes and myself when I get home. I think my current exposure will have time to recover while I'm wearing the masks at work. Thank you all again!
    • Scott Adams
      Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, there are critical reasons not to rule it out yet. First, celiac tests are notoriously unreliable in kids under 3 – their tiny immune systems often don’t produce enough antibodies to register on standard blood work, especially if she wasn’t eating consistent gluten beforehand (which you mentioned was a struggle). Her iron deficiency alone is a glaring clue, as it’s one of the most common signs of undiagnosed celiac in little ones. The fact that she’s already dairy/soy-free yet still suffering suggests something bigger is at play. It could still be celiac (a pediatric GI should consider an endoscopy with biopsies, the gold standard for diagnosis), or possibly non-celiac gluten sensitivity (NCGS) – which doesn’t show up on tests but can cause identical agony. Her recurring mouth ulcers and infections also hint at the immune dysfunction seen in celiac. Until you see the specialist, I’d quietly start a gluten-free trial (after documenting her current symptoms carefully with photos/videos of the bloating and pain episodes). If you see improvement in 3-4 weeks, that’s powerful evidence to bring to the doctors. You’re not being dramatic – you’re being the exact advocate your daughter needs. If the pediatrician brushes you off, look them in the eye and say: “What else could explain ALL these symptoms together? If it’s not celiac, what’s our next step to stop her suffering?” Keep pushing – moms’ instincts are rarely wrong about this stuff. For now, focus on small wins: snap daily pics of her belly to show the distension, ask for a fecal calprotectin test (checks gut inflammation), and know this internet stranger is rooting for you both. She’s lucky to have you fighting for her.
    • nanny marley
      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the prep tomorrow I already have very loose bowels seems a lot to go threw for 6 days ? I'm new to all this do I'm just a little confused here ant help round be appriciated 🙏 also I'm so anxious wat to expect with the colonoscopy has anyone got any advise thanks in advance 🤗
    • trents
      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...