Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Whole Sordid Story, Near As I Can Figure Out


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast
Glad to hear you are doing so much better! It really is so nice to be able to exercise! Something one really appreciates when you have gone through a period of time when you can't. Stirs up the mitochondria and all that and makes you feel young again!

I suggested the olive leaf due to you mentioning the aspergillus--which I have heard is very hard to kill using standard methods.

Am fighting something off myself--haven't been quite right ever since I took that damnable clindamycin for a week for an ear infection after which I had a delayed reaction and developed a type of projectile mucous colitis for a couple of weeks. Thank god its helping to use the olive leaf as well as large doses of the the enterically coated acidophilus as well as take the marshmallow root plus the detox herbs. I am going on walks but have yet to achieve using my malibu pilates chair again. Can tell I will very soon however. Am thinking of doing yoga tonight. Meanwhile I seem to be more sensitive than usual to various foods I think because of the devastation to my intestines due to the antibiotics. The AMA approach would be to take even more antibiotics! Arrgh!

Bea

I didn't mention aspergillus as I don't even know what that is (but hope I don't have it). What I have is Asperger's syndrome, meaning that I'm mildly autistic. Gluten-free casein-free soy-free seems to be helping, however. Good luck defeating your current infection; hope it passes quickly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
Right now I'm astounded and swearing my head off (but not on this forum). I couldn't figure out why on earth my gluten intolerance issues were lessening but my RA and and glands (or thryroids) were going bonkers. Sometimes, more like rarely, I do get pins and needles. :huh:

More so tho, my elbows and hands start to ache, then progresses to my thyroid, and then I'm on that awful 'dirty drug high' as I call it and I am in pain. Even if flouride isn't the cause I am definitely going to try purifying my water and hope that alleviates the symptoms. Even that would be good.

Considering I just had a real bad attack this week, Fluffy Assassin your timing is very good. With any luck I can avoid another. And my cats thank you too. :rolleyes:

Welcome to the board! By all means, try reverse-osmosis purified water, and I hope it turns out well for you and for your cats. But again I must mention that I'm no doctor, nutritionist or dietitian. It's something worth trying, but nothing I can guarantee. You might not see any changes in yourself for a month or more, but your cats ought to be more energetic almost immediately. Anyway. that was my experience with Amelia. Good luck, and again, welcome.

The Fluffy Assassin Enthusiast

Now a reply to myself just to say: MAN I'm an idiot. As I remarked in the OP, I've been eating guacamole with practically every meal and coconut with 2 out of 3 meals (all but breakfast, in other words). Our vocabulary words for the day are vasoconstrictor and vasodilator; they mean a substance that constricts or opens, respectively, your blood vessels, be it a drug or a food. Guess what coconut and avocado are? According to stuff I've found on the Internet (so take with the usual grain of salt-- wait that's a vasoconstrictor, too) they're both vasoconstrictors. So my cold and pins and needles sensations in my hands and feet and the odd numbness in my thigh and forearm might be easily explained. Soooo I'm easing up on the guacamole and coconut unless I also eat fish or cucumbers (supposedly vasodilators).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    2. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Scott Adams replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,263
    • Most Online (within 30 mins)
      7,748

    Fruitypebbles
    Newest Member
    Fruitypebbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.