Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Glutening?


Frances03

Recommended Posts

Frances03 Enthusiast

I've been gluten free for about a month, and still don't feel right yet. Therefore, I'm not really sure what is a glutening and what isn't for me yet. Last night I ate a chili at wendy's, plain no cheese or onions, and a plain baked potato, and a coke. This morning, I am absolutely NAUSEOUS. I should explain that before I was diagnosed, I was nauseous all the time and I just assumed it was one of the many meds I was on. However, I haven't been on those meds since diagnosis, and I haven't been nauseous like that in a while. This is the kind of nausea I would have when pregnant, and I actually gag while going about my business, and feel like I need to EAT something or I will throw up. This was the first time I have been out to eat anywhere in a long time now. I just didn't feel like cooking. Another thing is I have gained 2 pounds for no reason. The only other things I ate yesterday were a small bowl of cereal with rice milk, a rice cake with a tablespoon of almond butter and some jam, and a bowl of homemade chicken soup. I dont think that should cause me to gain 2 pounds.

The problem is, I am just not feeling much better at all yet on this diet! I have days where I feel okay, and then days where I am bloated again, and gain weight again for no reason, I have had so many many headaches since starting gluten free that I can't even count them. I've got 4 or 5 small itchy bumps on my arms, they are like little bumps that pop up, itch to death, I scratch them and they scab over and stop itching, I've never had these before. I am also feeling totally depressed now! I dont even want to get out of bed the last several days. My bowels still aren't working right. Is this EVER going to change?? It seems so hopeless!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frustrated09 Newbie

It's not completely hopeless. You just gotta figure it out. Chili and coke i would not trust. If you have skin issues, have you changed out shampoo, deoderant, lotions, toothpaste. Dove and Neutrogena products are safe. Some people don't have issues with these things but some do (and I'm one of them). check your vitamins or anything else you take.

Days when you're good and days when you're not.....figure out what you do different those days, write it down, try an elimination diet. start with 2-3 foods that you know are ok and then slowly add to figure out what the bad is. I just did it a couple days ago and I pretty much ruined it first thing in the morning but it got me thinking and by the time i got home from work i had severe bloating and it all came from soy.

when i gluten myself i don't wanna get outa bed either and the day is depressing with no energy. oh weight gain...gluten free products have a ton of carbs, also when the intestines are healing they absorb the nutrients completely. laying around probably won't help it either :)

Marsha

-self diagnosed gluten/dairy/soy intolerant

Wolicki Enthusiast

The first couple of months are hard. I promise it gets better. I've been gluten-free for 5 months and it's gotten MUCH better. Remember, it took a long time to mess up your intestines, and it will be ahwile There will be ups and downs, but soon, more ups than downs. It's frustrating I know! I thought "AHA they know what's wrong with me, now I will be all better!" Unfortunately, it takes a while for your body to heal and to relearn how to digest stuff.

Eat as clean as you can, check to make sure there's no gluten anywhere and you'll make steady process. WE're all here for you ;)

Frances03 Enthusiast

Thanks you guys. I just wanted to emphasize that I do not eat high carb gluten free products. In fact I haven't purchased a single "gluten-free" product like breads, cakes, cookies, etc. I normally eat either a smoothie with fruit and rice milk, or cereal and rice milk for breakfast, sometimes eggs, maybe once a week. For lunch I just snack on leftovers usually. For dinner I've been making taco salad, roasted chicken with veggies, stew, big salad.

Why would coke from Wendy's cause a problem? I know their chili is gluten free but it could easily have been cc'd.

I have not tried eliminating soy but I'm not sure if I've been eating it either.

Juliebove Rising Star

What brand of rice milk? Rice Dream contains gluten. As for Wendy's, that food could have easily been cross contaminated.

Frances03 Enthusiast

I have the Pacific plain rice milk. I found out about the Rice Dream after I bought a case at Costco. I returned it all after I drank some and didn't feel well. I wish Costcto would carry the Pacific brand!!

dhd2000 Newbie

I don't know why, but I can't tolerate coke anymore either, and neither can my sister, both diagnosed celiacs. I think maybe it's the high fructose corn syrup that's just too much for intestines that are still healing??? I also can't tolerate diet-coke, maybe the artificial sweetners? Hang in there, the healing isn't quick, but it does happen.

Thanks you guys. I just wanted to emphasize that I do not eat high carb gluten free products. In fact I haven't purchased a single "gluten-free" product like breads, cakes, cookies, etc. I normally eat either a smoothie with fruit and rice milk, or cereal and rice milk for breakfast, sometimes eggs, maybe once a week. For lunch I just snack on leftovers usually. For dinner I've been making taco salad, roasted chicken with veggies, stew, big salad.

Why would coke from Wendy's cause a problem? I know their chili is gluten free but it could easily have been cc'd.

I have not tried eliminating soy but I'm not sure if I've been eating it either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.