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Endoscopy And Biopsy!


LoraW76

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LoraW76 Rookie

I'm having my first endoscopy and biopsy of my small intestine this Friday. I am worried. Anyone with great words to say in regards to the proceedure?


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ravenwoodglass Mentor

The worst part about it is when they put an IV in. And even that's not bad. You'll go in, go to sleep and wake up and go home. Some will have a bit of a sore throat for a day or so but not everyone does. Try not to worry, it is one of the easiest procedures I have had done. You will not be able to drive that day and do be sure to make sure that someone is with you to drive you home.

You also can go ahead and start the diet the day of the procedure, if you have had all your blood work etc for celiac screening done. Your body may tell you the test results before you even go back to get them. Also a negative biopsy is NOT absolute proof you are not celiac as false negatives do occur. Give the diet a couple of months or so to see if helps regardless of the results.

Lynayah Enthusiast

See this resent thread as well -- it talks about the same thing, and it will help you feel better:

https://www.celiac.com/gluten-free/index.php?showtopic=64212

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    • Scott Adams
      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
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      Yes, an IgG panel is the logical next step. However, you would still need to be consuming normal amounts of gluten to ensure valid IgG testing. Since it has only been a week that you have been off gluten, there is still likely time to restore antibodies to detectable levels before the blood draw. IgG antibody tests are not quite as specific for celiac disease as are the IGA tests but they are certainly valuable in the case of IGA deficiency. They also seem to have a little more "staying power" in the sense of detecting celiac disease in the case of those who may have already started a gluten-free diet as long as they haven't been on it for an extended period of time. But don't rely on that. Get back on gluten if you can possibly endure it if you intend to go forward with IgG testing. This might be helpful:   
    • SEQ
      Thanks @trents. I have exchanged some messages with the clinic today, and they are saying that the reason there is no result for the total IgA levels is because I don't have any. Apparently a negative result means that it does not appear as a line on the results at all. I am not sure I buy this, but it is what they are telling me. I am leaning more towards the theory that they didn't test it in the first place. But, working on the basis that the test result was zero, I asked what the next steps would be, given that I apparently have no IgA antibodies. They have asked if I now want to have a tTG-IgG and a DGP-IgG test. Is this really the next step if I have no total IgA?
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      IGA deficiency is a lot more common than we used to think but I can't give you a number. Doctors used to believe it only happened in children but we know better now. Every doctor should order, at the very minimum, total IGA and tTG-IGA. It may be true that you don't have to worry as much about cross contamination if you have NCGS but that is not a given. By the way, welcome to the forum, @SEQ!
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