Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly Celiac/gluten Intolerance?


BeSeeingYou

Recommended Posts

BeSeeingYou Newbie

Hello! I'd like to thank you in advance for any help, however small, you might be able to throw my way; it looks like you get a lot of similar posts to this but I'm so unsure! I'm sorry if this is a little TMI, but it's the nature of the beast I guess!

I'm going back and forth over whether I should be tested or not, I guess I just hate the idea of going to all the trouble and it turning out to be nothing, but though my symptoms are rather mild (especially compared to some of the complaints I've read from others) they have gotten more severe over the past couple of years and I experience some of them every day to a level of some discomfort (especially in public!) and though mild it would be great to have some relief.

I never considered gluten intolerance until just this Thanksgiving. I don't eat meat and so replaced the traditional turkey with a fake meat product that is comprised almost entirely of wheat gluten (it's got a meaty texture); over the following days I experienced worse bloating than normal (and my close fit snugly but I wouldn't necessarily say my stomach was distended) as well as uncomfortable constipation and gas that was extremely foul smelling.

Outside of the more "extreme" symptoms I had following my thanksgiving meal, I experience gas and constipation on a daily basis, and diarrhea almost once a week, sometimes more and sometimes accompanied with the constipation, as well as some mild bloating throughout the week.

Daily I have this rumble in my stomach accompanied by mild gas. At work I excuse myself to the bathroom three or four times because of it, but it usually returns after ten or twenty minutes and always continues throughout the night. It feels like I need to pass gas or use the toilet but when I reach the rest room rarely does anything come.

Over the past six months or so I have had two experiences of painful sores around the corners of my mouth that I could not explain, they could be anything I guess but they were so random and having seen them on the list of possible symptoms makes me more curious if gluten intolerance or celiac might be my problem.

I bruise extremely easily, but it could be attributed to my fair skin; a hard poke will result in a bruise and I am constantly finding bruises that I can't remember getting. It got to a bit of an extreme a couple of years ago and when I was taken to the doctor for an bout of extreme fatigue I mentioned it, and she tested my hematocrit, which turned out to be low.

As a kid I had problems with ulcers as a child that the cause of was never determined; they became less frequent as I got older and disappeared for some time but I've started to experience that same pain infrequently over the past several months.

Having put them all down they seem so ambiguous and that they could be anything or a whole host of minor things, but so many appear on the list of possible symptoms that I can't help but wonder, especially after my experience after Thanksgiving.

Does this sound at all similar to anyone else's experience? Would it be worth it to be tested? Also can you experience any benefit from going gluten free in a short enough amount of time to determine whether it has any effect or not? I would love to have some kind of solution to my daily symptoms but I don't want to overreact.

Thanks again, sorry it's so rambly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast
Hello! I'd like to thank you in advance for any help, however small, you might be able to throw my way; it looks like you get a lot of similar posts to this but I'm so unsure! I'm sorry if this is a little TMI, but it's the nature of the beast I guess!

I'm going back and forth over whether I should be tested or not, I guess I just hate the idea of going to all the trouble and it turning out to be nothing, but though my symptoms are rather mild (especially compared to some of the complaints I've read from others) they have gotten more severe over the past couple of years and I experience some of them every day to a level of some discomfort (especially in public!) and though mild it would be great to have some relief.

I never considered gluten intolerance until just this Thanksgiving. I don't eat meat and so replaced the traditional turkey with a fake meat product that is comprised almost entirely of wheat gluten (it's got a meaty texture); over the following days I experienced worse bloating than normal (and my close fit snugly but I wouldn't necessarily say my stomach was distended) as well as uncomfortable constipation and gas that was extremely foul smelling.

Outside of the more "extreme" symptoms I had following my thanksgiving meal, I experience gas and constipation on a daily basis, and diarrhea almost once a week, sometimes more and sometimes accompanied with the constipation, as well as some mild bloating throughout the week.

Daily I have this rumble in my stomach accompanied by mild gas. At work I excuse myself to the bathroom three or four times because of it, but it usually returns after ten or twenty minutes and always continues throughout the night. It feels like I need to pass gas or use the toilet but when I reach the rest room rarely does anything come.

Over the past six months or so I have had two experiences of painful sores around the corners of my mouth that I could not explain, they could be anything I guess but they were so random and having seen them on the list of possible symptoms makes me more curious if gluten intolerance or celiac might be my problem.

I bruise extremely easily, but it could be attributed to my fair skin; a hard poke will result in a bruise and I am constantly finding bruises that I can't remember getting. It got to a bit of an extreme a couple of years ago and when I was taken to the doctor for an bout of extreme fatigue I mentioned it, and she tested my hematocrit, which turned out to be low.

As a kid I had problems with ulcers as a child that the cause of was never determined; they became less frequent as I got older and disappeared for some time but I've started to experience that same pain infrequently over the past several months.

Having put them all down they seem so ambiguous and that they could be anything or a whole host of minor things, but so many appear on the list of possible symptoms that I can't help but wonder, especially after my experience after Thanksgiving.

Does this sound at all similar to anyone else's experience? Would it be worth it to be tested? Also can you experience any benefit from going gluten free in a short enough amount of time to determine whether it has any effect or not? I would love to have some kind of solution to my daily symptoms but I don't want to overreact.

Thanks again, sorry it's so rambly.

Welcome! There would be absolutely no harm in trying the diet. Most experience at least some relief immediately. Caution, if you want to be tested, you have to be consuming gluten, so get tested first if you want an "official" diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.