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Can I Eat Anything?


fnord

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fnord Rookie

I've spent these early morning hours reading through the forum and I see a number of people with Celiac/GI also having intolerance to other foods; namely dairy, soy, and nuts. I imagine process of elimination is the simplest way to determine which food items are causing problems...but there's almost nothing left for me and I'm feeling overwhelmed.

I self-diagnosed myself with gluten intolerance last year, after 4 years of suffering and denial. The occasional times when I slip off the gluten-free wagon the results are painfully obvious, so I don't do it often. A couple of beers is usually OK, but a slice of bread can shut down my intestinal system for an entire day or two.

I'm finding that when I'm on long kicks of eating gluten-free, I will occasionally get hit with what feels like I've been glutened: the "block of cement in my stomach" feeling (or the GLUE of gluten), the bloating, the tummy rumbles, loose stools, the mental fog, depression, etc. I can be sure when I'm gluten-free because I make all my food from scratch, so there is little possibility of gluten contamination. Being vegan I already avoid all dairy products & eggs. More and more, I'm pinpointing these gluten-like symptoms to nuts. Now that SUCKS big time. To those who avoid nuts: all nuts? Is one kind worse than another? Another possibility is soy, eaten in the form of tofu and edamame (soybeans). Another blow to the vegan diet! To those who avoid soy: what were your symptoms? What other foods might be triggering tummy troubles like this? Some days I just don't want to eat anything period, and I've been losing weight. If nuts & soy end up being no-nos then I'm just not going to thrive on a vegan diet and it'll have to come to an end.


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jackay Enthusiast

Do you eat corn? I had corn last night and feeling bad today. It could be that the corn was contaminated but from the strong reaction I got, I figure it was the corn itself.

bethlany88 Newbie

If you have a gluten issue then the occasional beer unfortunately is not really ok, though you dont feel horrible. Your bowels will never heal from that exposure to gluten and your tolerance for other foods will then never be optimal.

On a good note: ANHEUSER-BUSCH, INC makes gluten free Redbridge Beer and let me tell ya its Great! Man did I miss beer! You can usually find it at Wal-mart for $7-8 a 6 pack

Also I thought I was gluten free and feeding my autistic daughter gluten free, yet we were still sick. Little did I know that many items that contain no gluten but that are made on the same product lines often contain 300-3000 or more ppm of gluten and it only takes 50 ppm to get a celiac sick, or keep a gluten intolerant from healing the bowels.

I never loved walmart till now, but they are now labeling all of their great value products with either a wheat warning or if its truly gluten free it is labeled gluten free. Whole Foods Store also has a wealth of gluten-free products but you often have to have wealth yourself to shop there lol. Im using my Celiac as a tax write off for the extra cost of food so if you can ever get a bowel endoscopy to truly rule in celiac that would be helpful in dealing with the cost of gluten-free foods.

Also Nearly 1/2 of Celiacs are lactose intolerant as Im sure you know and soy is also a big problem for alot of us, especially since soy interfeers with optimal thyroid function which causes some similar symptoms such as brain fog etc and alot of people with celiac also have low, or lower than optimal thyroid.

I notice that peanuts are worse for me than any other and I seem to tolerate almonds well. You can still eat well, trust me I LOVE to eat and eat any typical meal others do, even pizza. Udi's is the new bread that is gluten, dairy, nut, and soy free and MAN is it good! I will never eat another gluten-free bread! You can order it online too at Open Original Shared Link and their blueberry muffins are to die for.

If you need some meal suggestions just let me know and I can surely give you some. my email, since i dont check on here alot for anyone needing some meal ideas or just an ear is bntburris@yahoo.com

Take good care! Tracy

fnord Rookie
Do you eat corn? I had corn last night and feeling bad today. It could be that the corn was contaminated but from the strong reaction I got, I figure it was the corn itself.

Odd - and no, haven't had corn lately in any form. I tend to avoid any product with high fructose corn syrup anyway, and eating natural corn or corn tortillas never seems to bother me.

If you have a gluten issue then the occasional beer unfortunately is not really ok, though you dont feel horrible. Your bowels will never heal from that exposure to gluten and your tolerance for other foods will then never be optimal.

I notice that peanuts are worse for me than any other and I seem to tolerate almonds well.

Thanks for a helpful post, bethlany. You do make a good point of the potential damage I do by having a few beers thinking I can "get away with it", but the continued exposure to gluten could be whacking out my whole system. As a former homebrewer, the loss of beer in my life has been especially disappointing and sometimes I cheat because I stop caring.

Interesting about peanuts because that seems to be what triggers the tummy trouble for me. Usually I snack on mixed nuts, so I'll have to do some elimination experiments.

YoloGx Rookie

I had to give up being a vegetarian twice since it wrecked havoc with my health. It turned out I was too allergic to too many things, including all nuts and beans...!! so now I eat meat but still eat lots of vegetables. I also now have yogurt--but the home made 24 hour variety since that way it gets rid of all the lactose.

Ahorsesoul Enthusiast
Thanks for a helpful post, bethlany. You do make a good point of the potential damage I do by having a few beers thinking I can "get away with it", but the continued exposure to gluten could be whacking out my whole system. As a former homebrewer, the loss of beer in my life has been especially disappointing and sometimes I cheat because I stop caring.

Looks to be that you do not need to give up your homebrewing! I only did a fast search so I'm sure there are other places with gluten free beer info.

Open Original Shared Link

GFinDC Veteran

I don't do soy because I think it is bad for people. You can decide for yourself though. Just a do a little searching and read up on "soy infant formula" or "soy intestine damage".


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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