Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until You Feel Improvements?

zachyrocket

Recommended Posts

zachyrocket Newbie
zachyrocket
Posted

Hi. I was wondering how long after people started eating gluten free until they started to feel health improvements?

I am on day 7 of a gluten free diet. I have had digestive issues such as terrible reflux, gas, stomach pains, and irregular bowel movements for the past ten years or so. I also have awful body pain. For the most part i just suck it up and live with it as i have tried pt, chiro, massage, painkillers, etc etc with no positive effect, but now that i have a new hope of figuring things out i am very aware of it all. i am planning on trying the diet for 3 months regardless of how i feel, but i am trying to figure out when i should expect to feel changes.

thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted
Hi. I was wondering how long after people started eating gluten free until they started to feel health improvements?

I am on day 7 of a gluten free diet. I have had digestive issues such as terrible reflux, gas, stomach pains, and irregular bowel movements for the past ten years or so. I also have awful body pain. For the most part i just suck it up and live with it as i have tried pt, chiro, massage, painkillers, etc etc with no positive effect, but now that i have a new hope of figuring things out i am very aware of it all. i am planning on trying the diet for 3 months regardless of how i feel, but i am trying to figure out when i should expect to feel changes.

thanks!

It is different for everyone. Seven days is a very small stretch of time, and for many of us, it takes even more time to eliminate possible "hidden" sources of gluten. For me, it was things such as toothpaste, putting my hands in my mouth after using hand lotion that had wheat germ in it, etc.

Take a look at my symptoms (in my signature line). I was dying, I was in so much pain. Things are incredibly better now, and I have only been gluten-free (or almost gluten-free -- I've made a few mistakes) since September.

You're on your way to being better!

zachyrocket Newbie
zachyrocket
Posted
  • Author

i definitely didnt expect to be better this soon in the game, just keeping my eyes on the prize!

glad to hear that your life is so much better now! thanks for your reply.

ciavyn Contributor
ciavyn
Posted

I feel you! I've been doing this for three weeks or so, and I didn't feel better at all the first week. But then I cut out dairy and nuts, and let me tell you - I felt great! I screwed it up the last two days with dairy: misery. I can't get over how much better I feel when I'm not eating gluten or dairy. Just give it some time. It feels amazing once you figure out your issues. And try to toss the dairy, too, in the beginning, as I understand that it is an issue for a lot of celiacs. It's so worth it.

zachyrocket Newbie
zachyrocket
Posted
  • Author

I had considered ditching the dairy too, but i had been vegan for about a year and didnt notice any changes. If nothing changes after the 3 month trial i will try it again. thanks for the advice!

sunnybabi1986 Contributor
sunnybabi1986
Posted

I didn't start feeling better until after I was gluten free for 6 weeks, when I finally threw out all my nonstick cookware and wooden cutting boards and toaster. I was super frustrated for weeks, wondering when on earth I would start feeling a tiny bit better. However, I kept with it, and 9 weeks later, I am amazed at how much better I'm feeling! It feels like you'll never get there, but hang on, eventually you'll start feeling better! It may takes weeks, but your symptoms will eventually start fading. Good luck!

Janie

Midgie12 Newbie
Midgie12
Posted

You all give me some hope. I have been gluten free for one month, after a blood work diagnosis, the doctor still wants me to have an endoscopy, but I still feel grim, in pain and sooooo exhausted. I did however have some incidental gluten (wrong order from KFC, picked off the batter) and felt terribly sick in the mornings for 2 weeks and I realised that I have been less billious lately.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


karenhockley Apprentice
karenhockley
Posted

For me I started to notice less pain 3 weeks into the diet but it too a good 3 1/2 months for all my joint pain to go. But what I ended up doing was just getting rid of all my shampoos, tooth paste and tooth brush, lotions and hair products and went all natural and one thing you have to remember is to question everything that you put on your skin and what goes into your mouth. Good luck and I do hope you feel better soon.

jackay Enthusiast
jackay
Posted

I found it hard to break the habit of putting things in my mouth. However, I am very conscious of it now.

I discontinued the nonstick pans, plastics, etc. about two weeks ago and am noticing a few signs that I'm getting better.

I thought I could be one of those people who didn't have to go to that extreme but if it helps it is sure worth the effort.

tunibell Rookie
tunibell
Posted

It took two weeks before I felt ANY better, and more than two months before I felt significantly better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.