Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Oklahoma


Ivyblaze

Recommended Posts

Ivyblaze Newbie

Well I found you thanks to a good book called the Gluten-Free diet. I have read the entire book in a day and found hopefully many answers.

My history is I have had abdominal pain for years and it is only getting worse. I have had numerous cat scans and was even hospitalized for 6 days a few years ago....noone could figure it out! My maternal aunt was recently diagnosed with ulcerative colitis, my maternal grandmother died from malignant colon cancer, there are numerous people on my mothers side whom have died from cancers, they had arthritis, thyroid issues, heart issues etc.....My mother died 5 years ago almost from unexplained issues. My family has issues with depression, anxiety, and ADHD, diabetes.

I look back and remember my grandmothers bathroom smelling horrible when she was done in there a smell that would linger. One of my maternal aunt's now deceased, had several autoimmune disorders.

I have lived with diarrhea, constipation, pain, fatigue, horrible gas, headaches, joint pain, smelly stool exactly like my grandmothers, and all the sudden my teath are in decline. I am needing to get several fillings. Also my concentration is awful and I spend great amounts of time in the restroom almost directly after eating. Sometimes it feels like my intestines are on fire.Also I have been trying to have a baby with no success for over two years, my cousin has one child and has been unable to conceive again and has been trying for over 10 years now.

I'm allergic to a lot of things, MSG, Grain dust, mold, mildew, pollen etc... They never tested me for food allergies other than the MSG. I have lost 8 immediate family members in the last four years and my own health I feel is in jeopardy. Could I have Celiac disease? Is this possible? Any help would be great. I am currently unemployed without insurance so testing at this point would not be an option.

Thank you,

Deedra in Oklahoma


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I think that this belongs in the pre-diagnosis forum, so I am moving it there.

Your symptoms are consistent with celiac disease, but could also have other causes. Since testing is not an option, I would suggest that you try the gluten-free diet and see what happens. If your health improves on the diet, you don't need a doctor with an official diagnosis to confirm what you body is telling you.

Ivyblaze Newbie
I think that this belongs in the pre-diagnosis forum, so I am moving it there.

Your symptoms are consistent with celiac disease, but could also have other causes. Since testing is not an option, I would suggest that you try the gluten-free diet and see what happens. If your health improves on the diet, you don't need a doctor with an official diagnosis to confirm what you body is telling you.

Thank you sooo much! What are the general costs for the blood work to be done? Does anyone know? At this point I am just glad to "maybe" have an answer. My significant other has no health problems and he loves anything fried....I'm so afraid I am going to be fixing two seperate meals every night which is more cost and more time spent. Can you make traditional southern foods celiac friendly? Are gluten free foods more expensive than regular?

At this point I have so many questions and few answers. Last night we had chicken fried steak, baked potato, macaroni and cheese, green beans and hot rolls and I paid for it....almost immediately after I was in the bathroom and uncomfortable the rest of the night....today I am still paying for it...

Jestgar Rising Star

I can't tell you how much the blood tests would cost, but seriously, you don't need them. Change your diet and see if you feel better. What you eat is under your control. You will undoubtly get a variety of opinions on this, but mine is - why pay for something that you can do for free?

Ivyblaze Newbie
I can't tell you how much the blood tests would cost, but seriously, you don't need them. Change your diet and see if you feel better. What you eat is under your control. You will undoubtly get a variety of opinions on this, but mine is - why pay for something that you can do for free?

I was looking at the cost of gluten free food and man it is expensive stuff! I looked at my local grocery store and they sure did not seem to have much available. I know there are more options on things I can try and have than what they showed surely. How long do you think it takes being on the diet to see results one way or the other? If it helps me I will definately stick with it...

Jestgar Rising Star

I had results immediately, some people say it took weeks...

I don't buy any specialty foods, just basic fruits, veggies and meats. If you think about it, the wheat based stuff is mainly cheap filler. You can skip the substitutes and be healthier for it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,160
    • Most Online (within 30 mins)
      7,748

    lindasandors7059
    Newest Member
    lindasandors7059
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
×
×
  • Create New...