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Help, Please?

itsjustme

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itsjustme Newbie
itsjustme
Posted

Hi. Thank you for taking the time to read this. I'd appreciate any type of a response as to if you think I should ask my pcp for a celiac test this afternoon.

I've had a variety of symptoms, most of which I chalked up to different reasons, but, here is my list, broken up into when I noticed the symptoms.

Most of Adulthood:

Back Pain (chalked up to being overweight and a family history of early arthritis)

Severely Dry Skin

Upset Stomach whenever I would eat pizza or pasta with any type of greasy or rich foods. (Figured I was sensitive to the grease.)

Last Year (following gallbladder removal):

Stomach cramps (chalked up to losing gallbladder)

Fatigue

Anxiety

This Year (following a miscarriage in July):

Body Aches. I feel like I've run miles and my muscles are sore, but I have done nothing and stretching doesn't help.

Mouth Ulcers which reoccur. I've never had canker sores and started getting them this October.

A small rash on my neck appeared last month, which has yet to completely go away.

Nausea. Pops up periodically. I thought maybe I was pregnant again, but I'm on birth control and keep having regular periods.

Finally going to the dr today at 2 p.m. EST because the canker sores, body / back pain, and nausea / vomiting are getting to be too much.

I'm thinking it may be Celiac disease, but goodness, I hope not! I am a carbohydrate junkie and love my beer. :blink:

Please let me know if this sounds familiar to any of you. I just want to figure out what is wrong and go back to feeling healthy again. :(

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sick2long Newbie
sick2long
Posted

Morning,

I just found out last week that I have Celiac Disease. I had years of severe health problems....

Have you seen a Naturopathic Doctor?

My GP was unable to diagnose for 10+ yrs.

Hi. Thank you for taking the time to read this. I'd appreciate any type of a response as to if you think I should ask my pcp for a celiac test this afternoon.

I've had a variety of symptoms, most of which I chalked up to different reasons, but, here is my list, broken up into when I noticed the symptoms.

Most of Adulthood:

Back Pain (chalked up to being overweight and a family history of early arthritis)

Severely Dry Skin

Upset Stomach whenever I would eat pizza or pasta with any type of greasy or rich foods. (Figured I was sensitive to the grease.)

Last Year (following gallbladder removal):

Stomach cramps (chalked up to losing gallbladder)

Fatigue

Anxiety

This Year (following a miscarriage in July):

Body Aches. I feel like I've run miles and my muscles are sore, but I have done nothing and stretching doesn't help.

Mouth Ulcers which reoccur. I've never had canker sores and started getting them this October.

A small rash on my neck appeared last month, which has yet to completely go away.

Nausea. Pops up periodically. I thought maybe I was pregnant again, but I'm on birth control and keep having regular periods.

Finally going to the dr today at 2 p.m. EST because the canker sores, body / back pain, and nausea / vomiting are getting to be too much.

I'm thinking it may be Celiac disease, but goodness, I hope not! I am a carbohydrate junkie and love my beer. :blink:

Please let me know if this sounds familiar to any of you. I just want to figure out what is wrong and go back to feeling healthy again. :(

itsjustme Newbie
itsjustme
Posted
  • Author

As of now, I have seen no one. I am finally at the point that I am fed up and am going to my PCP to discuss.

Yup Apprentice
Yup
Posted
Hi. Thank you for taking the time to read this. I'd appreciate any type of a response as to if you think I should ask my pcp for a celiac test this afternoon.

I've had a variety of symptoms, most of which I chalked up to different reasons, but, here is my list, broken up into when I noticed the symptoms.

Most of Adulthood:

Back Pain (chalked up to being overweight and a family history of early arthritis)

Severely Dry Skin

Upset Stomach whenever I would eat pizza or pasta with any type of greasy or rich foods. (Figured I was sensitive to the grease.)

Last Year (following gallbladder removal):

Stomach cramps (chalked up to losing gallbladder)

Fatigue

Anxiety

This Year (following a miscarriage in July):

Body Aches. I feel like I've run miles and my muscles are sore, but I have done nothing and stretching doesn't help.

Mouth Ulcers which reoccur. I've never had canker sores and started getting them this October.

A small rash on my neck appeared last month, which has yet to completely go away.

Nausea. Pops up periodically. I thought maybe I was pregnant again, but I'm on birth control and keep having regular periods.

Finally going to the dr today at 2 p.m. EST because the canker sores, body / back pain, and nausea / vomiting are getting to be too much.

I'm thinking it may be Celiac disease, but goodness, I hope not! I am a carbohydrate junkie and love my beer. :blink:

Please let me know if this sounds familiar to any of you. I just want to figure out what is wrong and go back to feeling healthy again. :(

I had similar problems. Constant back and hip pain. Super sry skin. Had problems getting pregnant and staying pregnant. Over weight - diets never worked. Tired and anxious. I had a rash on my knee for two years! Was diagnosed March 6th and I am now just starting to feel better on some days. Hang in there.

gf-soph Apprentice
gf-soph
Posted

You've probably seen here that the list of possible symptoms of celiac/gluten intolerance is long and varied. I had some obvious ones (gastric upset, pain etc), but the mouth ulcers was one I never thought about until they disappeared completely within 2 weeks of going gluten-free. The only time I've had them since is after a glutening!

As a general recommendation I would ask to get copies of your blood tests, especially if they say that gluten is not an issue for you. i had a positive blood test but negative biopsy, so was told categorically that gluten was not the cause of my problems. I kept eating it for another year until another GP took one look at the original blood tests and told me immediately to to gluten free. You can always post your results here for expert eyes to take a look at!

Sophie

itsjustme Newbie
itsjustme
Posted
  • Author

Thanks for the responses.

I had a full metabolic and Celiac blood panel done yesterday, along with a urinalysis.

As I've noticed with some GP's, he was very anxious to give me things to fix the symptoms. Rash cream, dental paste for the canker sores, and Prilosec for my stomach.

But, he did recommend that I try a lactose free diet or a gluten free diet for the three weeks before my next appointment to see if it helps me.

So... as much as I hate the thought of never having my beer, pasta, or white bread again, I am officially starting my gluten free diet this morning. *sigh*

Wish me luck!

I'll post the test results here in a few weeks to see what you all think.

ktnhsv Newbie
ktnhsv
Posted
Thanks for the responses.

I had a full metabolic and Celiac blood panel done yesterday, along with a urinalysis.

As I've noticed with some GP's, he was very anxious to give me things to fix the symptoms. Rash cream, dental paste for the canker sores, and Prilosec for my stomach.

But, he did recommend that I try a lactose free diet or a gluten free diet for the three weeks before my next appointment to see if it helps me.

So... as much as I hate the thought of never having my beer, pasta, or white bread again, I am officially starting my gluten free diet this morning. *sigh*

Wish me luck!

I'll post the test results here in a few weeks to see what you all think.

I've been on gluten-free for 3 days, good luck! You can do it! :) (I'd do whichever one you think is bothering you the most-dairy doesn't bother me)

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Jean'sBrainonGluten Newbie
Jean'sBrainonGluten
Posted

Check the web - There are gluten free versions of beer, pasta and bread - so life as you know it doesn't have to end. :)

itsjustme Newbie
itsjustme
Posted
  • Author
Check the web - There are gluten free versions of beer, pasta and bread - so life as you know it doesn't have to end. :)

Thanks! :)

I was hoping I would hear back on some test results tonight, but no such luck.

Oh well, day 1 down! :)

Jean'sBrainonGluten Newbie
Jean'sBrainonGluten
Posted

If the lab results come back negative please don't get discouraged. You could still be reacting to gluten or wheat. Wheat has about 500 proteins in it and gluten is an enormous molecule. The test they use look only at whether you are reacting enough to a small part of the gluten molecule to damage your gut. You could have wheat allergy or gluten sensitivity or even (like me)grain allergy). You might look at the youtube videos I list below and try a gluten free diet (paying lots of attention to the issues of cross contamination and the way grain derivatives are used for flavoring/texture in many foods.

Good Luck!

9minutes from Gluten Intolerance Group

long - from the William Warren Celiac center in San Diego - I found the first 30 minutes and last 5 minutes (Q&A) to be most helpful.

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