Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Not Have Celiac Disease?

jimbob2225

Recommended Posts

jimbob2225 Newbie
jimbob2225
Posted

Hi, hope you can help me...

Basically I'm and 18 year old male and I think I have coeliac disease, because I match a number of the symptoms....however, in July I did a self test for the condition (Open Original Shared Link) , and it was negative. Does this mean I don't have it?

Thanks for your time! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


twe0708 Community Regular
twe0708
Posted
Hi, hope you can help me...

Basically I'm and 18 year old male and I think I have coeliac disease, because I match a number of the symptoms....however, in July I did a self test for the condition (Open Original Shared Link) , and it was negative. Does this mean I don't have it?

Thanks for your time! :)

A self test? Why not just get a blood test so you know for sure? Or just go on a gluten free diet and if you feel better, even if you have the blood test and it tells you your not, then stick with gluten free.

JillianLindsay Enthusiast
JillianLindsay
Posted

Hi Jim and welcome,

No test is 100% conclusive for celiac disease. Even the same test done at your DRs office can still show a false negative. The best way to diagnose celiac disease is through an endoscopy (a camera down your throat into your stomach/small bowel). You have to continue eating gluten in order for these tests to be accurate.

Others just choose to go gluten-free to see if it helps. Some feel better very quicly and for others it can take 6 months or up to a year, everyone heals at a different rate. Some need more evidence before taking on a high-maintenance diet, and others are just happy to feel better!

My advice would be to see your family DR first about your symptoms and let a professional make an attempt to diagnose you, but that's easy for me to say because I live in Canada, land of free health care :)

What are your symptoms? If you care to share them here, perhaps people on this forum can be of assistance.

Good luck!

Jillian

Hi, hope you can help me...

Basically I'm and 18 year old male and I think I have coeliac disease, because I match a number of the symptoms....however, in July I did a self test for the condition (Open Original Shared Link) , and it was negative. Does this mean I don't have it?

Thanks for your time! :)

jimbob2225 Newbie
jimbob2225
Posted
  • Author
A self test? Why not just get a blood test so you know for sure? Or just go on a gluten free diet and if you feel better, even if you have the blood test and it tells you your not, then stick with gluten free.

it was a blood test....but would one with the doctor's be more accurate? And I heard you should get diagnosed first before cutting out gluten?

thanks :rolleyes:

JillianLindsay Enthusiast
JillianLindsay
Posted
it was a blood test....but would one with the doctor's be more accurate?

Probably, if only because your DR and the technicians would know how to do it properly, however it still can show a false negative.

And I heard you should get diagnosed first before cutting out gluten?

IF you need a diagnosis, then yes, you should continue eating gluten! If you want to test out the gluten-free diet without going through the medical testing, then you can do a trial and see if you feel better. Some aren't able to "rest" until they have an answer, so this isn't a good option if you want an official diagnosis. In that case, a healthcare professional needs to give you one.

modiddly16 Enthusiast
modiddly16
Posted

I had a diagnosis but that's only because Celiac Disease wasn't as commonly know about as it is now. If going on a gluten free diet helps you feel better and be symptom free, I wouldn't need a doctor's diagnosis to feel healthy!! If making changes to your lifestyle helps, then I say go for it!

jimbob2225 Newbie
jimbob2225
Posted
  • Author
Hi Jim and welcome,

No test is 100% conclusive for celiac disease. Even the same test done at your DRs office can still show a false negative. The best way to diagnose celiac disease is through an endoscopy (a camera down your throat into your stomach/small bowel). You have to continue eating gluten in order for these tests to be accurate.

Others just choose to go gluten-free to see if it helps. Some feel better very quicly and for others it can take 6 months or up to a year, everyone heals at a different rate. Some need more evidence before taking on a high-maintenance diet, and others are just happy to feel better!

My advice would be to see your family DR first about your symptoms and let a professional make an attempt to diagnose you, but that's easy for me to say because I live in Canada, land of free health care :)

What are your symptoms? If you care to share them here, perhaps people on this forum can be of assistance.

Good luck!

Jillian

Thanks for the reply. I'm actually in England so healthcare is not a problem. However, I'm a bit reluctant to go, basically because I went like 10 times to the doctors a few years ago, and their best diagnosis was chronic fatigue (rubbish in my opinion!).

Well the main problem was fatigue that started around 5 years ago - I took a bit of time of school then. However, other problems include

-sickness in the morning occassionally, that I can only just stomach breakfast!

-small heart tremours or something

-mild diziness

-the normal bowel problems - diarrhea, gas, bloated, small stomach cramps etc

-leg ache (especially when younger)

- occassional headaches

-myopia (although this may just be a unrelated problem)

-...and maybe a few more I can't remember.

also, the doctor said I had low iron, and tried to put me on lots of iron which didn't help!

that's more or less it I think

Thanks so much for your help :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dagwood Newbie
Dagwood
Posted
I had a diagnosis but that's only because Celiac Disease wasn't as commonly know about as it is now. If going on a gluten free diet helps you feel better and be symptom free, I wouldn't need a doctor's diagnosis to feel healthy!! If making changes to your lifestyle helps, then I say go for it!

I know that gluten free makes me feel much better but have decided to get endoscope and colonoscopy just to make sure everything is ok. I will continue to be gluten free regardless of diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they...
    2. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      Was the card itself lost or just the record or both?
    3. Francis M
      - Francis M posted a topic in Gluten-Free Restaurants
      2

      The Happy Tart review

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally...
    4. trents
      - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

      Do you or anyone know alot about ibuprofen I wasn't sure if I was eating too much apple sauce. Something is making my pain so much worse I'm referring to the intense pins and needles in my feet and lower legs. Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    Cherie T
    Newest Member
    Cherie T
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Francis M
      The Happy Tart review

      By Francis M · Posted

      When my wife attempted to open the online card in the store with a cashier, it would not work. We then showed the owner the link to the card, the online receipt that I got upon purchase, and even my bank statement confirming the purchase. That did not satisfy her, since she said she needed the link to open to reveal the gift ID num. They even admitted they had a systems problem around that time.
    • trents
      The Happy Tart review

      By trents · Posted

      Was the card itself lost or just the record or both?
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Ibuprofen

      By trents · Posted

      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.