Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having A Poor Me Day


SharonF

Recommended Posts

SharonF Contributor

Yes, it's great to be feeling better and not exhausted tired all the time, but man, why me? I just want to eat a piece of pizza. Or a bagel. And not those rice flour substitutes, which are just not as good. I just want a piece of Papa Johns pizza.

Grr.

/rant


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Is it really that bad? I mean look at other things you could be suffering from. What about alot of people that don't even have food to eat? Does it really matter that we can't have this crap? We can have food that tastes just as good and won't hurt us.

For everything with gluten there is something without it too.

There are bagels, etc..that are just as good that are gluten free

Think about it ...it could be worse.

There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well. She has 3 young kids....6, 3, and 1. Looking at those situations really hits me hard...I have no right to complain..I have been so blessed.

I hope you feel better, I know how those days are..I had a lot of them when I first was dianosed.

Wandering Hermit Contributor

Yep, Kaiti is right, in the grand scheme of things celiac is not so bad. I have a friend with Ulcerative Colitis - yeah, he can eat bread and drink beer, but he will likely have to have his colon removed someday. I'd rather have this problem.

I have bad days too, so I totally sympathize. I walked by a pizza place a few days after going gluten-free and I almost strated crying from the smell.

The way I look at it, this wole thing is just an opportunity to make myself a better, mentally tougher person. I love challenges. Bring it on.

tarnalberry Community Regular

This just means it's time to find a new "I must have some" food that is gluten-free. Think of the taste exploration this means! :-D

Emme999 Enthusiast

Sharon,

I am sorry that you are having a rough day. I've had a lot of them myself lately.

We both know that there are a lot of other people who have it a lot worse and I don't think that either of us would be likely to change positions with burn victims or cancer patients or whatever. But *right now* hurts and I think it's okay to feel that.

I wish that I could be a nearby friend and we could go out on a screaming/ranting/damn-it-all rampage, but I'm not :( So, maybe you ought to do something that an old friend and I used to do when we came to struggles:

Make the maddest face you can, and then repeat: "I HATE my stupid life! I HATE my stupid life!" - do it until it gets you silly and you realize how dumb it sounds.

I'm certain you are a very intelligent person with countless beautiful qualities. Make a list of them. Make yourself feel better. Turn on your favorite music really loud and dance and sing your guts out.

But I don't think that denying yourself a little self-pity in the short-run is such a good idea. Just try to keep it short ;)

Honor yourself.

- Michelle

thomas3000 Rookie

Hey Kaiti,

I noticed you have graves disease...What are you doing about it? Did you know that gluten sensitivity and graves share the same genetic marker??I can steer you in the right direction if i'm aloud to post a website on here...It's a company that I've been working with...have a great day..

KaitiUSA Enthusiast

Hey~

The graves disease is in beginning stages so I am not on medication or anything yet. They are just monitoring it every couple months. What annoys me about it is that every test I have had done it has got worse so I'll probably have to get on meds at some point.

I know that thyroid disorders are common among celiacs. Do you have that as well? You can email me anytime as well....and yes you can post links on here :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
There is a lady we know who is 41 I believe and she is a cancer survivor. Well she just found out not only did it come back but it spread to her liver as well.
There are a lot of people suffering from cancer... I mean prayer lists at my church and bible studies are growing with more and more people that have cancer. It's really sad.

In my opinion, I think that we are lucky in many ways. (1) I mean this disease won't kill us as long as we stick to the diet. (2) We are forced to eat a lot of veggies and fruits and scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer. Personally, before I got celiac, I hardley ate enough veggies and fruits, but know I have no choice! and it's only for the best. (3) we've all found a lot of nice people on this site!

I still have days where I wish that I could eat fast food but overall, I am happy with the gluten-free diet and all the yummy things we can eat.

ianm Apprentice

Yes it could be worse. All we have to do is not eat gluten and we can enjoy good health. I am more than happy to give up pizza so that I can finally feel alive. It is not a hard sacrifice to make. Eat pizza=feel like crap or Don't eat pizza=feel alive.

stef-the-kicking-cuty Enthusiast
scientists are finding now that veggies + fruits like broccoli, cauliflower, cabbage, tomatoes, blueberries, and cranberries are helping to slow down, prevent, and/or stop cancer.

Hello Carrie,

did you find that on an internet page? If yes, would you give me the name? I'm very interested in that.

Hugs, Stef

KaitiUSA Enthusiast

I have heard as well from various sources that eating proper veggies/fruits etc. can help prevent cancer.

stef-the-kicking-cuty Enthusiast

Hey Kaiti,

I heard that, too. It just sounded like if medaka ment that those fruits/vegetables are even helping more than normal fruits/vegetables.

Hugs, Stef

Carriefaith Enthusiast

Hey stef_the_kicking_cuty, I am also very interested in this research. I have read/heard that broccoli, cauliflower, cabbage, blueberries and cranberries, and tomatoes have phytochemicals that help prevent cancer. I know people that do research on blueberries and cancer. I could ask for their journal article references if you are interested.

Here are some links from the net:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I personally think that a lot of cancer can be prevented by proper diet and exercise. There are a lot of things that can cause cancer that we cannot avoid in certain situations like second hand smoke for example. But I think that eating healthy and excerising should help reduce this risk.

I also try and buy as much orgainc food as possible and if I can't, I'll usually just wash the non-organic stuff very well. It's just that non-organic stuff may contain pesticide residues and if not washed proporly you could injest them which = bad.

Hope this helps.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748

    Nicole Poirier
    Newest Member
    Nicole Poirier
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.