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Another Question From A Newly Diagnosed Celiac


CecilyF

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CecilyF Rookie

Went to natural "doctor" and besides the celiac disease, he said my liver was "congested/sluggish." Has anyone gone through anything like this before? He wants me on a juice diet using a juicer at home. I have tried to drink carrot juice and Romaine lettuce juice and it's just not going down. Does anyone know of any other things I can try to detoxify my liver? Also, is this common among Celiacs?

What about Ph levels? Anyone know about that? Mine was a 4.9 and the average or recommended is 7.2. How do you raise your Ph levels?

thank you.....


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YoloGx Rookie
Went to natural "doctor" and besides the celiac disease, he said my liver was "congested/sluggish." Has anyone gone through anything like this before? He wants me on a juice diet using a juicer at home. I have tried to drink carrot juice and Romaine lettuce juice and it's just not going down. Does anyone know of any other things I can try to detoxify my liver? Also, is this common among Celiacs?

What about Ph levels? Anyone know about that? Mine was a 4.9 and the average or recommended is 7.2. How do you raise your Ph levels?

thank you.....

Yes it is very common to have a congested liver with celiac. It makes sense if you think about it since the villi get axed and then undigested proteins go into your blood stream, the lymphatic system then reacts to these "forein invaders" with inflammation and downwind of which it all toxifies the liver.

You can either juice or simply blend your veggies--or just eat lots of them. Steaming is OK if you don't like raw, and raw is harder in the winter. I often add a small zuchinni to my green vegetable drink to make it more mellow. Parsley, cucumber, beet, bok choi, celery all make good combos. And yes combos in my estimation are best for a veggie blend.

Detox herbs are also a great help. Such as dandelion in particular.

If you have difficulty with constipation etc. then taking bitters half an hour to fifteen minutes before you eat will help greatly (small amounts of dandelion and gentian root powder work well for this). These bitters also really help your liver too.

Remember to avoid tinctures since the alcohol is not likely to be gluten-free.

Bea

Northern Celiac Newbie
Went to natural "doctor" and besides the celiac disease, he said my liver was "congested/sluggish." Has anyone gone through anything like this before? He wants me on a juice diet using a juicer at home. I have tried to drink carrot juice and Romaine lettuce juice and it's just not going down. Does anyone know of any other things I can try to detoxify my liver? Also, is this common among Celiacs?

What about Ph levels? Anyone know about that? Mine was a 4.9 and the average or recommended is 7.2. How do you raise your Ph levels?

thank you.....

Cecily, UNDER NO CIRCUMSTANCES LISTEN TO THIS PERSON. Have you gotten the proper bloodwork done? Have you had an endoscopy? These can only be done by an MD otherwise4 you can risk your health by doing what this "naturopath" wants. Before I had my diagnosis I went to one and she was a "quack"claiming she could cure anything. I only went to her twice. Do your self a favour and get a regular doctor that knows about Celiac disease

Cessairskye Newbie

I would agree that you would want to have your liver function tested just to make sure you don't have anything major going on. If you have had a full blood panel done lately they are on that test.

In regards to your Ph, what are you using to test it? Or I should ask, what bodily fluid are you using? Are you doing the salivary strips? Body Ph in the mouth can be a reflection of what is going on in your body but you need to take into account what you last had in your mouth that will greatly affect the strip (if you do it after a night of a few glasses of wine or a breakfast of coffee, eggs and yogurt they are all acidic and will effect the strip). If you look on-line for foods that are more alkaline they will help balance your system a bit better, also look at what foods are acidic because you will be surprised at what is on that list, most are foods we eat daily.

Good luck on your quest for health.

Skye

YoloGx Rookie

I agree its best if you can find a regular MD and take all those tests--though as we all know (or many of us do) AMA docs aren't all up on celiac or severe gluten intolerance. Many of them are in this regard quite ignorant.

However if you already know that you can't handle the gluten (and may be way beyond the period of time when the tests won't do you any good unless you are willing to go back to eating gluten again) I see nothing wrong with seeing a good naturopath.

Just like AMA docs, some naturopaths can also be wrong about celiac however. Some are not up on the current info on it and actually still think one can "grow out of it".

This actually happened to me--after my naturopath treated me for a while I discovered he was behind the times on this matter even though he was up on all kinds of other knowledge. Four years ago my naturopath prescribed supplements for me that had gluten in them--not knowingly--instead quite ignorantly. That was before I knew all the ins and outs of having celiac--which I suspected I had. He didn't know one has to avoid all trace gluten to stay well. I had told him I thought I had celiac or gluten intolerance. He tried to have me take detox remedies that were alcohol based. Of course they did not work; and instead they made me worse. I discovered even homeopathics have either a milk or an alcohol base. He ended up thinking I was just "too sensitive"!! The only thing that worked was the mud packs! And not seeing him...

Now however more naturopaths now seem to know about celiac and overall are more open to the latest research than many AMA docs who keep thinking its a fad. At least the naturopaths are usually pre disposed to thinking that food has something to do with one's health, whereas AMA docs often basically are untrained and easily gives up in that area.

In any case, whether you see a naturopath or regular MD or just treat yourself, going the natural route by eating more greens for instance would be good for most anyone (unless one is on certain heart anti coagulant medicines that make one intolerant of eating much greens since the greens can then increase one's bruising). In my estimation, for those who have celiac or severe gluten intolerance, it really seems more important to eat greens as well as whole, non additive, non sugary laden foods than for the usual person.

As far as herbal detoxing suggestions, see my last post. I think its a very good idea esp. if one tends to be constipated. Different kinds of detoxing can also be good for those who have diarrhea too however, like saunas, exercise, mud packs and again eating or juicing or blending lots of greens--once the D has passed (otherwise its safer to eat cooked/steamed greens --the raw greens can be irritating for an already irritated gut).

What one does for one's health doesn't have to be anything radical; it should instead involve moderation and common sense.

Bea

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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