Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those In College...


ciavyn

Recommended Posts

ciavyn Contributor

I'm way too old to be in college...however, that is exactly what I'm doing. I take part in a low-residency grad program with Wilkes University. We stay on campus for one week,twice a year, and needless to say, my next residency had me beside myself with fear over what I would eat. They charge us for the meal plan and we eat fatty, gluten-laden foods all week.

Long story short, with trepidation I called the food service department and asked if they had suggestions or if I should have the meal plan removed and try to eat in my room (while all my other cohort/class members eat together in the raucous, exciting venue of the cafeteria). :( The food service manager - the boss - was baffled why I was so worried. They regularly accommodate students with Celiac, and have no problem cooking me up special meals with special utensils and plates. He insisted they had no problem whatsoever doing it, and gave me the chef's direct line so I can coordinate with him based on what I can eat, since I have other food issues as well.

Can we say shocked? So perhaps it's worth talking to your school - see what they may be willing to do for you. Mine is being incredible about it, and now I can't wait to stay on campus next year! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cessairskye Newbie

That is AWESOME that you were able to talk to them and get better than expected results. Many times the food and nutrition services department at a college is part of the learning process for students of culinary, hospitality and nutrition and having the opportunity to make changes for folks like ourselves is a great learning opportunity for their students.

You have to let us know what yummy meals they come up with for you!!

Skye

ciavyn Contributor

Seriously, Skye, I was shocked. The guy said to me, And why do you think this is a big deal? I about fell out of my chair. I love this school, anyway, because of how they value their students, and this is yet one more time they prove my loyalty right. Very cool.

AKcollegestudent Apprentice
Seriously, Skye, I was shocked. The guy said to me, And why do you think this is a big deal? I about fell out of my chair. I love this school, anyway, because of how they value their students, and this is yet one more time they prove my loyalty right. Very cool.

Can I switch to your school? I've been sick since fall semester started because even after repeated discussions--and planning, and time out of my day--my school has not gotten better about accommodating my issues. Anyway, I'm glad that it worked out so well.

ciavyn Contributor

AK - I'd take it to the next level if you can. I talked to the chef yesterday, and he said to come in when I get there, and we can discuss, I can look at ingredients, and he will do everything he can.

See who's heads up that department, and who is the head of that person. There are more students than just you with issues - Wilkes assures me they have many students who diabetic, celiac, one allergic to onions, etc. And they accommodate them to the best of their ability. I don't expect them to be perfect, but it they make the effort, and I can have input, I'm thrilled.

Of course, I'm also not in my twenties anymore, and I have no problem being noisy about things. :lol:

And yes, Wilkes is currently accepting students, and they are wonderful! They treat their grad students as though we are bestowing liquid gold upon their campus. I've seriously never been catered to like this. I don't know how they are with their undergrad, but I can't imagine it is that much different. Truly an awesome college experience.

Ahorsesoul Enthusiast
Of course, I'm also not in my twenties anymore, and I have no problem being noisy about things. :lol:

Well said.

avceliacmom Newbie
I'm way too old to be in college...however, that is exactly what I'm doing. I take part in a low-residency grad program with Wilkes University. We stay on campus for one week,twice a year, and needless to say, my next residency had me beside myself with fear over what I would eat. They charge us for the meal plan and we eat fatty, gluten-laden foods all week.

Long story short, with trepidation I called the food service department and asked if they had suggestions or if I should have the meal plan removed and try to eat in my room (while all my other cohort/class members eat together in the raucous, exciting venue of the cafeteria). :( The food service manager - the boss - was baffled why I was so worried. They regularly accommodate students with Celiac, and have no problem cooking me up special meals with special utensils and plates. He insisted they had no problem whatsoever doing it, and gave me the chef's direct line so I can coordinate with him based on what I can eat, since I have other food issues as well.

Can we say shocked? So perhaps it's worth talking to your school - see what they may be willing to do for you. Mine is being incredible about it, and now I can't wait to stay on campus next year! :D

My daughter's university is also very informed and cooperative, but she doesn't take advantage of it and still eats whatever gluten-free items are available!! So she eats lots of salad and grilled meats. On the plus side, she's lost weight and feels great. But on the minus side, she takes too many risks and unfortunately has gotten sick a couple of times in her first semester (violent vomiting until everything is purged then needs a day to recover). Any ideas on how I can convince her it's not worth getting so sick? I tried the Celiac Disease Foundation's motto, "when in doubt, do without" but that's not making much of an impression. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

You know the old saying...you can lead a horse to water...She'll have to decide when she's had enough of being sick. I felt like crap for years, but no one ever mentioned this way of life to me. Then two years ago, when my symptoms were beginning to get really, really bad, a friend of mine told me to try it, as it saved his life. Nope, way too restricting. Two years later, I'm not making it to the bathroom in time, regularly publicly embarrassed by my GI symptoms, and starting to get scared because everything I eat is making me sick. Now, it's worth it to me, and I'm sticking to it because I feel better.

It's tough in college, if you've always been part of a crowd, so to speak. As a lifelong loner, I don't mind sticking out so much, and now I'm too old to care, anyway. But when you are young, used to fitting in, to look like a dork, not be able to party with your friends and travel in that wonderful carefree way of young adults...that is hard. She'll have to decide what it's worth, and then she'll discover who her friends truly are.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.