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Completely Miserable...need Advice


mamaesq

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mamaesq Rookie

Somehow about a week ago, I fell victim to cross contamination. I have spent hours trying to figure out where it came from, but I am at a loss. Anyway, last week, the horrible gas, the distended belly (it's seriously hard as a rock), canker sores, diarrhea, cramping and stomach gurgling came back big time. I've been glutened about 4-5 times in the year since my diagnosis, most within the first few months. Back then, it only lasted for a day or so, never longer than a weekend. This time, however, it's been ridiculous. I am a week into it and I still look about 6 months pregnant, I have horrible gas, my stomach is still cramping...pants that fit me last week are too tight for me now, I couldn't even button my suit jacket this morning...This evening I burped (which I rarely do anymore) and my five year old told me that I burp like a boy!

I almost want to detox myself and eat nothing but rice and bananas over the next few days, but that's going to be tough with Christmas coming...and I really need to eat all those delicious gluten free cookies I baked all weekend!

Does anyone have any suggestions on how to kick this? My bowels are improving but the gas and bloat raages on and on. I am seriously miserable. I'm guessing part of it is that I am much more sensitive than I was a year ago (when the last of my bad glutenings happened). BLEH.


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YoloGx Rookie
Somehow about a week ago, I fell victim to cross contamination. I have spent hours trying to figure out where it came from, but I am at a loss. Anyway, last week, the horrible gas, the distended belly (it's seriously hard as a rock), canker sores, diarrhea, cramping and stomach gurgling came back big time. I've been glutened about 4-5 times in the year since my diagnosis, most within the first few months. Back then, it only lasted for a day or so, never longer than a weekend. This time, however, it's been ridiculous. I am a week into it and I still look about 6 months pregnant, I have horrible gas, my stomach is still cramping...pants that fit me last week are too tight for me now, I couldn't even button my suit jacket this morning...This evening I burped (which I rarely do anymore) and my five year old told me that I burp like a boy!

I almost want to detox myself and eat nothing but rice and bananas over the next few days, but that's going to be tough with Christmas coming...and I really need to eat all those delicious gluten free cookies I baked all weekend!

Does anyone have any suggestions on how to kick this? My bowels are improving but the gas and bloat raages on and on. I am seriously miserable. I'm guessing part of it is that I am much more sensitive than I was a year ago (when the last of my bad glutenings happened). BLEH.

Yeah. I think maybe I got something too.

First things first--baking soda in water helps get rid of the gas.

Then, at least an hour later:

L-Glutamine helps soothe the irritated intestines.

So does marshmallow root--takes down inflammation, soothes..

Enterically coated acidophilus improves intestinal flora. Plain real yogurt helps too--even better if its home made and fermented 24 hours.

Dandelion root helps out the overtaxed liver.

Cleavers helps relieve the overtaxed lymphatic system.

Pineapple and papaya or bromelain/papain enzymes help heal the damaged/scarred villi.

Walks etc. help get the stuff out of your system.

Drink tons of water to flush it out too.

Good luck!

Fiddle-Faddle Community Regular

I wonder if this might be a virus?

I had something very similar last week, although mine only lasted a couple of days--and I was preparing everything from scratch, at home (gluten-free kitchen), so I don't see how cc could have played a role (plus my reactions to gluten are not that extreme).

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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