Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh My Poor Baby


mommaofthreebeans

Recommended Posts

mommaofthreebeans Rookie

Hi I am new here.

My 11 month old soon is allergic to wheat ( and soy, and rice, and eggs, oh joy) lol

My 4 yr old son had a biopsy done when he was 2, they said there was damage to his intestines but couldnt conclusively say it was celiac. ( which I am still confused about). But anyway, with my youngest's obvious reaction to all things wheat I have decided to just make the leap and have at least the kids and I go completely gluten free.

the baby was diagnosed with the allergies when i was breastfeeding, I was told that I was no longer able to breastfeed and adhere to his diet with us both staying healthy, so we switched to Alimentum (which he reacted to), and then we switched him to goat's milk, and with a more serious food screening we discovered he was not allergic to lactose so we switched to cows milk around 7 months coupled with iron drops.

The poor boy's excema is awful and so are his reactive rashes. Just glad to have found a place to learn from and get support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Momma and Welcome!

I always marvel at the strength of mothers, when their children have special diet needs.

We have many moms who will share their experience with you. How long has your family been totally gluten free? Do your or the father, or grandparents have digestive issues? Twenty percent of first degree relatives can develop Celiac Disease.

Blunted villi is not conclusive for Celiac, but coupled with the rest of the family history, it may be likely.

I would put the entire family on a 100% gluten free diet for several months. I bet you would be surprised at the improvement.

C.com is full of useful information, with hundreds of moms who have walked in your shoes to guide you along. You have come to a great place.

mommaofthreebeans Rookie

thanks for the warm welcome I appreciate it!

My husband thought that I was overly worried about my oldest son, but now with the baby's allergies he is coming around. But of course he worried about cost.

nmlove Contributor

Welcome! If there's something positive to be said for kids on special diets, it's that they quickly adapt to it and also what great stuff there is out there now (products and info). Though I'll be the first to admit that some days I just want to throw in the towel...

I hope that your littlest one outgrows his allergies. And hopefully his eczema clears up soon. That's so hard for little ones. I'm nervous to introduce food to my baby as she's definitely reacting to some of what I eat through breastmilk. Just wondering though why they said you couldn't still breastfeed? I've had to cut out dairy/soy and doing well without it. And joy of joys, I was able to have chocolate for the first time since June a few weeks ago. Heaven!

taweavmo3 Enthusiast

If your husband is worried about cost, the diet can be done frugally with planning and organization. I'm a stay at home mom of four kids, and I feed us all gluten/dairy free for about $120 a week or less. And that includes a 10 year old who is quickly becoming and endless pit : )

I cook everything from scratch, and scour gluten free blogs for simple recipes. My gluten-free flour essentials are brown rice flour, white rice flour, potato starch, tapioca starch, and sorghum. Also, I try to sub guar gum (it's half the price) for xanthan gum in my baked goods....but not bread! You need Xanthan in bread I have found.

Is corn a problem for your kiddos? We do alot with corn tortillas, and I also make different things out of Maseca masa harina..it's dirt cheap, and I only mix it with water to make a dough. My kids favorite is to roll out the dough really thin, fry it up, then slather it with a butter sub and some cinnamon sugar. Tastes almost like a cinnamon roll!

Lunches are the hardest I have found....kids usually have a sandwich and fruit, or leftovers. Also, Angel Food ministries has an allergen box filled with kid friendly food like chicken nuggets, chicken tenders, etc. that is free of the top eight allergens.

I hope that helps some! If you need menu planning ideas or anything, just send me a message and I'd be happy to help. This board is a great resource, especially when you are just getting started. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    2. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,232
    • Most Online (within 30 mins)
      7,748

    Linda1964
    Newest Member
    Linda1964
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.