Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Forum

stella1717

Recommended Posts

stella1717 Newbie
stella1717
Posted

Hello,

I recently been diagnosed with Celiac on December 23rd. Blood test and Endoscopy. I see a nutritionalist next week and have been taking 50,000 units of Vitamin D per week. I went to Whole Foods the other day and found that most of the gluten free food that I got was not the most appetizing. Is it better just do avoid these gluten free products and stick to fruits, veggies, and meat for the first couple months. This is the first week gluten is out of my system. I drink Lactaid Milk and notice it is bothering my stomach this week. Is that normal? I usually didn't have an issue with it. Any suggestions for a newly diagnosed Celiac. thanks.

Oh, and I am pretty sure I was born with this and I am 32 years old now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Hello,

I recently been diagnosed with Celiac on December 23rd. Blood test and Endoscopy. I see a nutritionalist next week and have been taking 50,000 units of Vitamin D per week. I went to Whole Foods the other day and found that most of the gluten free food that I got was not the most appetizing. Is it better just do avoid these gluten free products and stick to fruits, veggies, and meat for the first couple months. This is the first week gluten is out of my system. I drink Lactaid Milk and notice it is bothering my stomach this week. Is that normal? I usually didn't have an issue with it. Any suggestions for a newly diagnosed Celiac. thanks.

Oh, and I am pretty sure I was born with this and I am 32 years old now.

It's best to stick with whole foods: protein, fruits and veggies. Most have to give up dairy for awhile. Stay away from the gluten free products for a bit. Whole unproccessed foods are much easier on the tummy!

orchid1 Newbie
orchid1
Posted

When i was diagnosed with celiac disease several years ago, it was suggested i read the book "Breaking The Vicious Cycle" by Elaine Gottschall. It helped to put me on the road to recovery. It will help you to learn how to start the healing process. Just GOOGLLE in the title and authoress. Let the journey begin.

Tigercat17 Enthusiast
Tigercat17
Posted

When i was diagnosed with celiac disease several years ago, it was suggested i read the book "Breaking The Vicious Cycle" by Elaine Gottschall. It helped to put me on the road to recovery. It will help you to learn how to start the healing process. Just GOOGLLE in the title and authoress. Let the journey begin.

I just ordered the book tonight from amazon. I can't believe all the great reviews! It's amazing that diet alone can heal so many people.

Thanks for the recommendation! I'm really looking forward to reading it! :)

T.H. Community Regular
T.H.
Posted

First, a sincere good luck. It's tough, but at least you know what's going on with your body now, eh? that's such a huge thing!

Second, as a relatively new Celiac in her thirties (diagnosed 7/09), let me share an important statistic I found out. (you may already know, but it's such a big deal, I pass it along) If you have celiac Sprue, there's a good chance any other close family members have it, even if they have no symptoms. The rate is 1 in 22 people who have a close relative with celiac(brother, child, parent), have it themselves. I mention this because for my family, one person was diagnosed, and when we tested all the symptom-free people close to him, three more of us came back positive! So if you have loved ones, I'd seriously poke at them to get tested. :-)

On to the food, yes?

- celiac folk are more prone to food allergies, and it seems that often, after we go gluten free, we can suddenly notice reactions to them more. I never knew I had any food allergies at all, ever, and after I went gluten free, I had so many reactions it was crazy. I tested positive for a surprisingly large number of allergens. So, basically...it's normal that lactaid is bothering you, for a celiac, but as that milk IS gluten free, it's likely that something else that is IN the lactaid is the problem.

- The gluten-free products. They add in more sugar and fat to make up for the taste difference, and they don't tend to vitamin fortify if they use refined gluten-free flours (seriously - even the gluten-free chicken broth I was finding had sugar cane added!). With your body all hosed as it is, it's not going to be absorbing what it should, not until it heals, so I think that's why a lot of us did better without the gluten-free products. At least with whole foods, you have more nutrients to absorb, yes?

- however, I would add grains to your suggested diet, if they are tolerated, and drop anything, no matter what it is, if it's bothering you or your tummy in any way (vitamins, too, considering all the allergens they can have in them). If you haven't had a lot of experience with whole grains? Quinoa is a nice one to start with, I think. Buying it on-line is cheaper, though. It cooks pretty much like rice (2:1 water to quinoa ratio, bring to a boil, turn down to a simmer and cover with lid, cook 16 minutes or so). And you can use it like rice, too, as a side dish or something to put other foods on. It's not quite the same taste, but as a transition food, it's kind of a no-brainer one, so you can focus on what you need to and not spend all your time figuring out new foods.

- And just in case this helps. With the lactaid issue, I thought I would mention some gluten sources that I didn't know when I first started, in case it helps. It might be that you are getting gluten from something else, rather than reacting to the lactaid. So...here goes, gratuitous stuff I learned from friendly web folk: tea bags are sealed with gluten, lipstick and gloss often have gluten, shampoos can have gluten, soap we wash our dishes in can have gluten (maybe your soap had gluten, and didn't get rinsed all the way out of your cup used for the lactaid?). Just some ideas, if you are hoping to hang on to the the lactaid milk. :-)

Take care, and good luck. So many people here are really friendly, and helpful, and have been doing this for long enough that they are great sources of information!!

Hello,

I recently been diagnosed with Celiac on December 23rd. Blood test and Endoscopy. I see a nutritionalist next week and have been taking 50,000 units of Vitamin D per week. I went to Whole Foods the other day and found that most of the gluten free food that I got was not the most appetizing. Is it better just do avoid these gluten free products and stick to fruits, veggies, and meat for the first couple months. This is the first week gluten is out of my system. I drink Lactaid Milk and notice it is bothering my stomach this week. Is that normal? I usually didn't have an issue with it. Any suggestions for a newly diagnosed Celiac. thanks.

Oh, and I am pretty sure I was born with this and I am 32 years old now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748
    bobadigilatis
    Newest Member
    bobadigilatis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.