Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Gluten Free

CoCo-Rojo

By CoCo-Rojo
in Coping with Celiac Disease

Recommended Posts

CoCo-Rojo Newbie
CoCo-Rojo
Posted

I've been gluten free for a year which has made it the best year of my life! Aside from accidentally being served gluten at restuarants 3 or 4 times, I've been able to easily steer clear of gluten.

However, today I ate soup (a brand I've never eaten before) that said "No Gluten" on the label and within an hour I KNEW I had eaten gluten! Ugh! Now I'm in for 2 days of... well, you know.

Has anyone else ever eaten something that said it was gluten-free, but you KNOW it had gluten in it anyway? Please tell me I'm not crazy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

That's how I feel about Amy's frozen dishes. They gluten and dairy free, two of my big no-no's, yet I feel like crap afterwards, and have all the symptoms of having eaten gluten. You are definitely not alone!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Many times, probably because of cross contamination issues.

CoCo-Rojo Newbie
CoCo-Rojo
Posted
  • Author

Ciavyn, I've never had a problem with Amy's. I eat it often, but I only eat the Mexican dishes.

Today it was Dr. McDougall's Right Foods Tortilla Soup that got me. I usually wouldn't eat a pre-packaged food with as many ingredients as this soup. "Natural Flavorings" at the end of the ingredient list always makes me nervous. But this one said "no gluten" so I trusted it.

So what does this mean? Should I not trust when a food or restaurant says "gluten free?" Do most of you just eat natural foods? I find I eat a lot more fruit now that I'm gluten free. When I eat a strawberry, I know there is no wheat hiding in it!

AKcollegestudent Apprentice
AKcollegestudent
Posted

Ciavyn, I've never had a problem with Amy's. I eat it often, but I only eat the Mexican dishes.

Today it was Dr. McDougall's Right Foods Tortilla Soup that got me. I usually wouldn't eat a pre-packaged food with as many ingredients as this soup. "Natural Flavorings" at the end of the ingredient list always makes me nervous. But this one said "no gluten" so I trusted it.

So what does this mean? Should I not trust when a food or restaurant says "gluten free?" Do most of you just eat natural foods? I find I eat a lot more fruit now that I'm gluten free. When I eat a strawberry, I know there is no wheat hiding in it!

I can eat the prepacked boxed soups that are gluten free by McDougall, but I too had a similar reaction to the tortilla soup. My solution has been to cook as much of my own food as possible; for me, it's easier to make soups and stews in bulk than to buy prepacked anyway. I also have a similar issue with fruit--I ate nearly an entire flat of clementines by myself in about two days over Christmas.

LDJofDenver Apprentice
LDJofDenver
Posted

I can eat the prepacked boxed soups that are gluten free by McDougall, but I too had a similar reaction to the tortilla soup. My solution has been to cook as much of my own food as possible; for me, it's easier to make soups and stews in bulk than to buy prepacked anyway. I also have a similar issue with fruit--I ate nearly an entire flat of clementines by myself in about two days over Christmas.

Heck, yes! I've come to learn that anything can say "GLuten Free" on the label if they don't add gluten (wheat , rye or barley). However, many many supposed gluten free grocery items say right on the label that it's processed on equipment that also processes wheat, etc.

Now I look for the gluten free items that are certified,with the little gluten-free or some other celiac certification symbol on them.

It is frustrating, when you're trying to be so careful, I know. I hate set-backs!

mysecretcurse Contributor
mysecretcurse
Posted

I no longer eat anything processed for this reason.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,088
    • Most Online (within 30 mins)
      7,748
    Clare Durham
    Newest Member
    Clare Durham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.