Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore, Sad, And Sick Of Getting Sick!

8Curvey8

By 8Curvey8
in Coping with Celiac Disease

Recommended Posts

8Curvey8 Rookie
8Curvey8
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Hi Curvey,

I can really feel the pain of this. Have had my own difficulties this Fall after working too hard and getting exhausted. I am totally with you on not eating out. I take my food with me everywhere. It is just food after all; just tell whomever you are too sensitive for it to be worth the chance of getting ill.

The thing is to look at why you have gotten so sensitive. I suggest going back to square one and baby your digestive system. Thus go back to no grains at all for a while, no sugars and eat a basic cave man like diet. It is very healing of the gut.

I also think taking some healing herbs from time to time might help -- though of course they aren't right for everyone. But many are helped by marshmallow root for instance. You also might look into taking basic plant digestive enzymes. I have found enterically coated acidophilus to be a great help. As is making my own 24 hour fermented yogurt (I am not allergic to casein, but do have a problem with lactose--the long fermentation of the yogurt gets rid of the lactose).

Again, try eating lots of vegetables--they really help. If your gut is too sensitive for raw veggies, steam them. Also consider blending them now and then so you get the benefits of the uncooked enzymes.

I have also found that taking olive leaf tea and/or extract capsules regularly (make sure of course they are gluten free!!, i.e., no alcohol extraction) is really helping me to restore myself. Daily use Olive leaf counteracts bad bacteria, viruses and fungi that many other things miss. Initially you might get a Herxheimer effect where you feel worse after the first 2 or 3 days, but that is a sign its working. Continue and I am betting soon you will feel way better than you have in months. And of course, drink lots of water!

Bea

rueyn Apprentice
rueyn
Posted

I have been gluten free for 3 years now and have had the best quality of life ever, until this past year... I got 2 stomach flus in the Spring that seemed to damage my intestinal track - has this happened to anyone before?

Slowly recovering I got glutened (sushi cc) and was again sick for another good 3 months of recovery. I was finally on track this fall, but got gluten'd at New YEars (sushi cc again).

My sweet husband got me some gluten free treats from a bakery that had CC and am back sick again on day 3 of recovery. I've officially decided to not eat anything I have not made myself anymore.

I have my parents watching my child all the time it seems, and I'm struggling through each day trying to run my business and take care of my family and home. It hurts that I need so much help taking care of my own child.

The fear of getting sick is also taking over my life as I have been sick, more than well, this past year. I don't even feel like eating anymore and no inspiration or energy to cook something.

Please tell me this is normal and will get better.

Just wanted to offer a possibility for you to look into...

Small intestine bacterial infections (SIBO). My husband has had this before (once was from a stomach flu and once was from taking a round of antibiotics for a sinus infection). If you're not familiar with SIBO, Open Original Shared Link.

It can cause symptoms similar to Celiac (bloating, diarrhea, nausea, et cetera) and makes your stomach super-sensitive. They test for SIBO through a simple breath test, and you have to go on a course of special antibiotics to fix it.

8Curvey8 Rookie
8Curvey8
Posted
  • Author

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

Just wanted to offer a possibility for you to look into...

Small intestine bacterial infections (SIBO). My husband has had this before (once was from a stomach flu and once was from taking a round of antibiotics for a sinus infection). If you're not familiar with SIBO, Open Original Shared Link.

It can cause symptoms similar to Celiac (bloating, diarrhea, nausea, et cetera) and makes your stomach super-sensitive. They test for SIBO through a simple breath test, and you have to go on a course of special antibiotics to fix it.

Karena Newbie
Karena
Posted

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

I was diagnosed with SIBO and have had the course of antibiotics for treatment. I still have issues from time to time. It's a process of keeping the gut bacteria balanced and balancing soluble and unsoluble fiber in my diet. I also started taking VSL #3, a probiotic, that is sent refrigerated and been tested to deal with SIBO. I have seen a marked difference. Take one day at a time and de-stress in whatever way is best for you. Karena

YoloGx Rookie
YoloGx
Posted

Wow, thank you both so much! I have made a dr.'s appointment with my Natureopath this week, but maybe I should see my GP too for the SIBO - that could be it too! It is so hard to diagnose and differentiate between symptoms from Celiac or something else.

Just make sure if you go to the MD to make sure they do a culture. I would not be too quick to take antibiotics--they can mess you up, esp. if they are too strong (like what happened to me this fall--the antibiotic was worse than the ear infection and messed up my gut flora awfully).

No matter what I agree its good to get checked out esp. if something keeps hanging on and other remedies don't work.

Bea

8Curvey8 Rookie
8Curvey8
Posted
  • Author

I agree - I am on probiotics already and will try that Marshmallow root for sure ;) I heard slippery elm was good too, but I think it also makes you go to the bathroom? Maybe not good right now? I don't ever take antibiotics and I see a Natureopath, I think they won't prescribe that either, possibly some kind of alternative ~ I'm seeing her Thursday. Getting tested is the best start and this may be the bases of my problems that is weakening me and makes complete sense.

I can see why killing all your bacteria with antibiotics then replenishing only good bacteria may be the best answer though, which I am open too. I love all your feedback and time and care ~ much appreciated!!! Finding this forum has been making me feel like I'm not the only celiac out there...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I agree - I am on probiotics already and will try that Marshmallow root for sure ;) I heard slippery elm was good too, but I think it also makes you go to the bathroom? Maybe not good right now? I don't ever take antibiotics and I see a Natureopath, I think they won't prescribe that either, possibly some kind of alternative ~ I'm seeing her Thursday. Getting tested is the best start and this may be the bases of my problems that is weakening me and makes complete sense.

I can see why killing all your bacteria with antibiotics then replenishing only good bacteria may be the best answer though, which I am open too. I love all your feedback and time and care ~ much appreciated!!! Finding this forum has been making me feel like I'm not the only celiac out there...

You should also see your regular doctor and get stool tests done. You may have had more than just a stomach flu. If you had or have something like salmonella you may need an antibiotic to clear it up. I had salmonella once for over a month of misery and although my doctor insisted it was just my IBS getting worse after she finally did the stool tests I got a big apology and a script for antibiotics that cleared it up very quickly. If you make sure you consume some yogurt or other probiotics while you are taking the antibiotic it will prevent the die off of the good bacteria.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,952
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.