Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help For Dry Skin/rashes

VAGuy

By VAGuy
in Dermatitis Herpetiformis

Recommended Posts

VAGuy Apprentice
VAGuy
Posted

I do not have DH but I do have terribly dry skin and problems so I thought I'd toss these out.

Johnson & Johnson First Aid Cream is what I use, almost anything else seems to irritate problem areas. It will act as a moisturizer and aids healing, and is not real greasy.

Lanacane has a similar vehicle or base, but contains something that acts like a mild anesthetic.

If the skin is only dry, with no rash or whatever I use Vaseline Intensive Care Lotion - some others seem to bother.

Minimizing contact with water can help also, chlorine acts as a drying agent, and the ph levels of water vary quite a bit - even rinsing my hair daily sends my scalp into orbit.

  • 10 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chronic Newbie
chronic
Posted

I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

flagbabyds Collaborator
flagbabyds
Posted

FOr really dry skin I use Carmol 10

  • 2 months later...
snoopylian Apprentice
snoopylian
Posted

a friend of mine told me that her son's orthodontist told her...toothpaste has SLS - sodium lauryl sulfate in it. The ortho said that some people get ulcers or sores in their mouths because from the SLS. So switch to a toothpaste that doesn't have SLS in it and see if that helps.

  • 3 weeks later...
tiny86 Newbie
tiny86
Posted
I have DH along with the other symptoms but one that hasn't been addressed by anyone else is mouth and back of the throat blisters. Do any of the readers have this exrtreme problem. Chronic

Yes have gotten them in my mouth. They are miserable :( . Not sure what to do about them once I get them.

  • 4 weeks later...
foodphobic Newbie
foodphobic
Posted

You should get a biopsy of your mouth. I didn't know I had celiacs until I woke up one morning with the inside of my mouth all enflamed. Long-story-short...

They did a biopsy, discovered I had Oral Lichen Planus, which is chronic, incurable, and only occurs in people whose immune system is compromised. That promted a lot of tests which finally resulted in my being diagnosed with Celiacs. There is no cure or real treatment for either disease, but if you can get the Celiacs under control, and keep your mouth really clean, there's a chance it will go away on its own.

I have found that using normal toothpastes and mouthwashes aggravates it. Alcohol and peroxide inflame it. Sugar seems to feed it.

If you have little white veins in the lining of your cheeks, blisters, and maybe redness or roughness in places along the gum line, you probably have it, but a biopsy is necessary to rule out cancer, and two other similar diseases that are much more dangerous.

If your doctor diagnoses you with Lichen Planus, there isn't much they can do to help you. What has helped me a lot is using Tea Tree Oil toothpaste and mouthwash that I buy at the health food store. I also make sure I brush, floss and gargle several times a day, and take it easy on sweets. It has dialed it way back and seems to keep it in check. I am working on the Celiacs, and as I get better at avoiding Gluten, I think the lichen planus is losing its grip. It appears to be healing slowly, but it's very aggressive. I have to be dilligent about keeping my mouth clean and limiting my sugar intake. Not easy on a diet based on rice.

I hope you don't have it, but you should definitely see a doctor about it.

Foodphobic.

pixiegirl Enthusiast
pixiegirl
Posted

Yes do rule out mouth/tongue cancer... my brother has no mouth cancer risk factors, has never smoked and is not and has never been a alcoholic and he is battling mouth cancer right now.... it started with just a small white spot on his tongue, its certainly not common, so don't freak out.... but rule out the bad stuff.

Just as an FYI so far my brother is doing ok!

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
chronic Newbie
chronic
Posted

Thanks for all the messages concerning mouth blisters. For sure I will ask the Doctor about this problem on Monday.

Sometimes my blisters act like a allergy reaction, or at least during regular allergy outbreak. Come to think about it I have both everyday so this isn't really a viable thought.

Chronic :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.