Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Hunger?

mobrien

Recommended Posts

mobrien Rookie
mobrien
Posted

Does anyone with celiac disease remember if they had Chonic or excessive hunger before diagnosis when they were eating gluten? Also what is the signifignance of low Siga? Is Secretory IgA important or no?

I had very low Siga 11 (400-800) Does this make my gut leaky to the point where I would not absorb food causing my weight loss as well?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rubyred Apprentice
rubyred
Posted

I was excessively hungry for several months before going gluten-free. It got progressively worse..and I was always craving cereal and wheat-y foods. It was pretty miserable because every time I ate, I'd feel so full, bloated, gassy, and just total discomfort but my stomach would be empty within an hour of eating and I'd feel like I needed the food. Vicious cycle! After going gluten-free, my hungry eventually subsided and I don't crave cereal at all anymore. (and when I say crave, I was going through a box a day! It was almost all I was eating). I'm not sure about your other questions, though.

mobrien Rookie
mobrien
Posted
  • Author

I was excessively hungry for several months before going gluten-free. It got progressively worse..and I was always craving cereal and wheat-y foods. It was pretty miserable because every time I ate, I'd feel so full, bloated, gassy, and just total discomfort but my stomach would be empty within an hour of eating and I'd feel like I needed the food. Vicious cycle! After going gluten-free, my hungry eventually subsided and I don't crave cereal at all anymore. (and when I say crave, I was going through a box a day! It was almost all I was eating). I'm not sure about your other questions, though.

I know ! same cravings for cereal and wheat before.

Reba32 Rookie
Reba32
Posted

when I was doing the gluten challenge I noticed that I was always hungry (despite the bloating and gastric discomfort!).

No idea about your blood tests though.

mobrien Rookie
mobrien
Posted
  • Author

when I was doing the gluten challenge I noticed that I was always hungry (despite the bloating and gastric discomfort!).

No idea about your blood tests though.

Well I had a postive anti-giladin along with that, but am uncertain that that is enough to confirm.

kdonov2 Contributor
kdonov2
Posted

I used to have that problem. I was ravenous all the time and could eat anyone under the table. I never seemed to reach a point of satiety. After gowing gluten free, my hunger cues are different and it does not take much to fill me up. For being so short and petit, it must have been a sight to see little me consuming practically an entire table full of food. I am now able to tell when I have been accidentally glutened simply based on the fact that I will finish all of my food; I simply will not get full. I have also noticed that when I am glutened (I am intolerant and have somewhat silent symptoms),my alcohol tolerance is extremely high also. When I am not glutened, I have to be careful about my wine consumption, even though I enjoy red wine very much, 2 glasses will get me intoxicated, unlike before my diagnosis when I would have been able to drink 2 bottles.

mobrien Rookie
mobrien
Posted
  • Author

I used to have that problem. I was ravenous all the time and could eat anyone under the table. I never seemed to reach a point of satiety. After gowing gluten free, my hunger cues are different and it does not take much to fill me up. For being so short and petit, it must have been a sight to see little me consuming practically an entire table full of food. I am now able to tell when I have been accidentally glutened simply based on the fact that I will finish all of my food; I simply will not get full. I have also noticed that when I am glutened (I am intolerant and have somewhat silent symptoms),my alcohol tolerance is extremely high also. When I am not glutened, I have to be careful about my wine consumption, even though I enjoy red wine very much, 2 glasses will get me intoxicated, unlike before my diagnosis when I would have been able to drink 2 bottles.

were you also losing weight?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kdonov2 Contributor
kdonov2
Posted

were you also losing weight?

No, actually. I had been severely underweight my entire life up until about mid-puberty when I had a BMI that would be considered average. Although, for my bone structure it may have been borderline chubby. I attribute the weight increase to my body's adaption to gluten, which just made me eat like crazy. last year before going gluten free I was 105 lbs at 5'0, but have now dropped 30 lbs. It seems that each person has their own different type of weight issue in regards to pre- and post- gluten diets.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,161
    • Most Online (within 30 mins)
      7,748
    DAR girl
    Newest Member
    DAR girl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...