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90% Sure I Have It - Biopsy On Monday


wendysmiling

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wendysmiling Newbie

Hi,

I'm pretty sure I have celiac. I have dx or gastroparesis (gut paralysis) and IBS. I also get a blisty rash that peels the layers of my skin off on both palms when I get stressed. The bolded words are the symptoms I'm having and have had for about 5 years....some go back to childhood.

Classic symptoms include:

o Abdominal pain

o Anemia

o Cramping

o Intestinal gas (foul)

o Indigestion

o Distention - huge (over 10 inches).

o Bloating

o Constipation

o Diarrhea (chronic)

o Nausea

o Steatorrhea (fatty stools)

o Vomiting

o Weight gain

o Weight loss with large appetite

Other symptoms:

o Aphthous ulcers (canker sores)

o Bone or joint pain

o Dental enamel defects

o Depression

o Lack of concentration (foggy)

o Poor memory

o Fatigue, weakness and lack of energy

o Infertility (male and female)

o Irritable bowel syndrome

o Elevated liver enzymes

o [b]Migraines

o Muscle cramps

o Osteoporosis

o Panic attacks

o Peripheral neuropathy ?? (gastroparesis?)

o Rheumatoid conditions

o Vitamin Deficiencies in B12, D, and K.


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mushroom Proficient

Welcome, Wnedysmiling.

Yes, from your list of symptoms, I am pretty certain that you have "it" too. Whether that "it" turns out to be confirmed celiac disease or "merely" gluten intolerance, I think that you should try the gluten free diet right away, because the solution is the same for both conditions. Many people test negative for celiac even with these symptoms. They are either false negatives, or the person is non-celiac gluten intolerant/sensitive which is equally serious but not regarded so by many doctors. Many doctors will tell you if you don't have celiac you can continue to eat gluten. Don't listen to them. The only way you will know if gluten is causing your problems is to completely eliminate it from your household (see Bea's response to Chanterelle (I'm so Frustrated) on this page of the board).

Good luck with your biopsy results. It does help many people to have that definitive diagnosis, makes them more strict with the diet :o

But whichever it turns out to be you should be just as strict.

Neroli

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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