Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Else Experienced This?


MrsWinkler

Recommended Posts

MrsWinkler Newbie

My daughter Kate has been diagnosed with "JDM" though the muscle enzyme levels are normal. She's had loose watery stools for a long time, and during this summer developed an itchy pale red rash on the face, and heliotrope type spots on the joints of her hands. We've had blood work done and until today haven't considered celiac. I've started her on a gluten free diet this morning. Also she had been diagnosed with an "expressive language delay" and is in a class for that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LJ-Mom Rookie

My daughter Kate has been diagnosed with "JDM" though the muscle enzyme levels are normal. She's had loose watery stools for a long time, and during this summer developed an itchy pale red rash on the face, and heliotrope type spots on the joints of her hands. We've had blood work done and until today haven't considered celiac. I've started her on a gluten free diet this morning. Also she had been diagnosed with an "expressive language delay" and is in a class for that.

If you haven't had your daughter tested for celiac, don't start the gluten free diet. Our doctor told us to try gluten free, and it had only mixed results. Now we're faced with going back on gluten for at least a few weeks before we can get any testing done for celiac. Push for testing now.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,626
    • Most Online (within 30 mins)
      7,748

    Durenda Driskell
    Newest Member
    Durenda Driskell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.