Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Survey By Nat'L Foundation For Celiac Awareness

happygirl

By happygirl
in Related Issues & Disorders

Recommended Posts

happygirl Collaborator
happygirl
Posted

Open Original Shared Link

Info on survey states:

"The National Foundation for Celiac Awareness (NFCA) has a dual approach in our work with celiac disease: To gain a diagnosis for those who suffer with celiac disease and gluten sensitivity, and to improve the quality of life for those who have been diagnosed.

This survey is geared to help NFCA and our partners meet both aspects of this mission. We want to

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for posting the survey. I wish they had included more options under how you were diagnosed. They only list blood, biopsy and selfdiagnosed. I don't fit any of those since I was diagnosed by my allergist and confirmed by my GI when the gluten challenge resulted in an extremely severe reaction. It is nice they are trying to get some input from us but a box to write in comments at the end would have been helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,020
    • Most Online (within 30 mins)
      7,748
    tar4u2c
    Newest Member
    tar4u2c
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mettedkny
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By Mettedkny · Posted

      OMG thank you so much for validating me in my "craziness" of being on the hunt for the culprit in my case. "Unfortunately" I do not eat any of the foods you mention, but have stopped eating the crackers that are labeled certified gluten-free to see if they might be the problem. I did NOT know about chicken being injected with gluten liquid - that is horrible!  Hoping my doc will agree to retest after I have been off the crackers for a while. My biggest mystery is - why do I not have ANY symptoms of being cross contaminated or glutened? There is no damage (thank godness) to my villi, and normally I will get canker sores the moment something is even the slightest bit cross contaminated... the hunt continues and I will follow up once I find the answer. Glad you found yours! 
    • Winnie-Ther-Pooh
      Gluten found in Bob's Red Mill TVP using Elisa Technology test

      By Winnie-Ther-Pooh · Posted

      Fascinating, thanks! So Canada (at least in 2017) had changed the criteria for detection in oat products from 20 to 5ppm. If the regulation still stands in 2025 then that would mean that any product sold in Canada that contains oats and is claimed to be gluten-free must (theoretically) test less than 5ppm... 
    • maryannlove
      Searching for the source - anyone have problems with Crunchmaster crackers?

      By maryannlove · Posted

      I recently had same problem and posted on here.  My bloodwork also unexpectedly skyrocketed.  When doc sent online comment saying something like "you need to be eating gluten-free food" I was almost in tears because had been very careful.  Like you, went on a mission.  Narrowed mine down to Yasso yogurt mint chocolate chip bars (formerly had Certified Gluten Free label on package but learned now only on small boxes but not large boxes) or BJ's only mixed nuts without "may be processed on equipment that also processes ....wheat" allergy warning and said in big letters "A GLUTEN FREE FOOD."  I went off both and bloodwork drastically improved.  Still don't know if culprit one or both (will add one back in and test again).  Throwing out in case you're eating either of these.  I live in Pittsburgh and during appointment my gastro told me some U. of Pittsburgh students were having same problem.  They finally narrowed it down to liquid injected into chicken they were eating.  (Apparently to make it moist and/or plump.)  Understand how frustratitng it is when you're making all the sacrifices to be careful.  
    • gerbilgirl
      Celiac.com has tons of free gluten-free recipes

      By gerbilgirl · Posted

      Thanks for the reminder!
    • Jenny (AZ via TX)
      gluten-free stool softener needed for after surgery

      By Jenny (AZ via TX) · Posted

      Thanks for the confirmation!  I decided to get it. 
×
×
  • Create New...