Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time To Conception From Starting Diet


gf2010

Recommended Posts

gf2010 Newbie

I have a friend who has not yet been diagnosed with Celiac(hopefully having test soon), but suspects gluten sensitivity. She has had 4 miscarriages in the past 2 years. She carried a baby to full term almost 10 years ago, so her doctors are puzzled as to why she is unable to carry a baby to full term now. She is just starting to believe there might be a connection to gluten intolerance.

I am trying to find information for her on how long the body can take to repair itself(in relation to fertiity) once you go completely Gluten Free. She tried Gluten Free for 4 months(maybe longer) and when she was unable to convceive, she became unmotivated to continue on with the diet.

I am trying to find information to encourage her to stay on the diet for a while, and to give her body a chance to repair. But I can't find information specifically relating to recommendtions on how long to try Gluten free, especially if you have not been diagnosed with Celiac yet.

( I also want to note that I know you should have the test before going gluten free, but she is having some insurance isses with the test, so is looking to make some improvements in the mean time.)

Thanksfor any help.

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

The tests will be useless if she's been gluten free before them, so she needs to decide if she's going to stick with the diet OR get tested before starting it.

What I've read generally recommends being gluten free for six months prior to trying to conceive. Four months is not very long to correct nutritional deficiencies if she has any, especially if she wasn't tested for and specifically treated them.

If she notices a difference on the diet, or gets a positive test, however, she should *stay* gluten free, as that is clearly evidence she needs to. There may be a secondary complication causing infertility, but if the diet makes a difference, and she doesn't stay on it, she'd then have two things contributing to infertility, one of which she already knows about.

gf2010 Newbie

I will absolutly inform her again,that if she is going to do the testing, and wants it to be reliable, she is going to need to wait to start the diet. My son has lived with Celiac for 9 years, so I understand it is imparitive to test before eliminating gluten. I think she has foud ome resistance wtih her doctor and is having trouble getting the test covered by insurance, so she is trying to decide if she should give it a go, and see if she is able to conceive. They have had every infertility test in the book.. so she is very hopeful this will work.

I was pretty certain that 4 months gluten-free would not be enough to help, so I will pass along what you have shared.

Thanks so much for the help.

:)

Laree Foss Newbie

I am in the same boat but went gluten free on a suspicion before knowing that the test would be inaccurate.. I lost my baby a year and a half ago (and have been trying again since) and got really sick and didn't know what was wrong with me (before I was diagnosed). I have now been gluten free and symptom free for 4 months but have not been able to conceive since my last loss... really being gluten free is a healthier way to live anyway so you friend should stick with the diet and make a permanent change and instead of trying to get her insurance to pay for the celiac testing she should get her hormones and fertility system checked. also it might help her to track her ovulation. Fertilityfriend.com has free charting system to keep track of her fertility signs and has free education on how to maximize her chances. I've been doing it since september and it's helped I think a lot putting pressure off trying to have lots of sex and not knowing when to do it...so to be so TMI and I am not trying to sound like an infomercial but the way you do it is with that website and a bassel body temp thermometer. I might have spelled it wrong but it's like 7 dollars at walmart and much cheaper then fertility tests that do the same thing. I agree with tarnalberry about not adding to the fertility problems by going back on gluten just to get a positive test result. It will put her progress back at least another 6 months and I know from experience of doing that. Tell her to stick with it if it makes her feel better and use her good health as the motivation. She should also maybe talk to someone to get her frustrations out. Worrying about getting pregnant is just going to cause her to have fertility issues. Stress never helps. Hope this helps.

  • 2 months later...
shandango Newbie

I was gluten free for 5 years with occasional gluten cheating and now have been completely gluten free (no intensional cheating) for 1 year before I got pregnant. I was not intentionally trying to get pregnant either, it's almost as if my body just all of a sudden decided to become fertile after years of not ever worrying about becoming pregnant. I have had 2 miscarriages since I was 22 (also both not intentional pregnancies), I am now 30 and years of using NO birth control (at least 10 years to be exact). I never had the infertility looked into because I wasn't concerned about having kids so it was quite convenient for me.

Then last November I went in for a routine pap smear and while getting the check up my doctor examined my breasts which were terribly sore and we talked about my 12 hour menstruation in October and he decided a pregnancy test was necessary. Test came back positive and I was needless to say shocked as hell.

So please let your friend know it can take a long time to correct the infertility Celiac causes, but patience is a virtue.

Also I did not wait until I was diagnosed to go gluten free, my tests will never be conclusive but I know in my heart what is wrong with me and going gluten free cured all of my symptoms and lead to a much more productive life. I do not recommend my methods but my gastroenterologist told me himself the tests are not 100% reliable and he is certain I have Celiac, positive test or not.

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.