Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want Another Child, But Will He Have Celiac Too?


Leslielu

Recommended Posts

Leslielu Newbie

My mother in law is a diagnosed celiac. She almost died of celiac 6 years ago. They thought she had lupus, cancer, etc, etc, and so on. Basically they didn't know what was killing her but something was. She was 90 lbs. when she was diagnosed. Regardless, when we brought my son home from the hospital he had a lot of major problems, rashes, spitting up, horrible horrible diarrhea, stomach aches, constant crying at night. After being treated like an idiot by many people and doctors, it was suggested by my doula that he might have a food allergy and then it hit me celiac. I went on the diet since he was exclusively breastfed and saw DRAMATIC effects. He ended up also being allergic to casein.

Please bear with me this part is important My mother in laws whole family has symptoms of celiac and gluten intolerance. My husband included, he is one that is more severe and I see his sufferings. (He's in denial though) His sister has just put her whole family on the diet including her twins that she is still breastfeeding as well. Also, his sister has had a positive biopsy and neg. blood test, but is still in denial that she could have this problem as well. After her and her 4 children went on the diet they showed great improvement. No more stomach aches, diarrhea, or mouth sores. (Believe it or not she is still in denial.) My Mother-In-Law said that her mother diet young and suffered the same symptoms she did before being diagnosed. Her brother also has huge bump rashes all over his knees and refuses to believe that it could be gluten. (I'm like whats wrong with these people!! They like to suffer I guess)

So, my point is if someone has it in their family does that mean their child will definitely have it? I want more children, but my mother insists that if I have another child he will have celiac too! And that i would be selfish.

I have been wondering if a parent has it diagnosed or undiagnosed will that child always have an allergy to it. My son also had fetal growth restriction and was born very skinny. As soon as I started the gluten-free diet he was a chunky monkey. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coleslawcat Contributor

My mother in law is a diagnosed celiac. She almost died of celiac 6 years ago. They thought she had lupus, cancer, etc, etc, and so on. Basically they didn't know what was killing her but something was. She was 90 lbs. when she was diagnosed. Regardless, when we brought my son home from the hospital he had a lot of major problems, rashes, spitting up, horrible horrible diarrhea, stomach aches, constant crying at night. After being treated like an idiot by many people and doctors, it was suggested by my doula that he might have a food allergy and then it hit me celiac. I went on the diet since he was exclusively breastfed and saw DRAMATIC effects. He ended up also being allergic to casein.

Please bear with me this part is important My mother in laws whole family has symptoms of celiac and gluten intolerance. My husband included, he is one that is more severe and I see his sufferings. (He's in denial though) His sister has just put her whole family on the diet including her twins that she is still breastfeeding as well. Also, his sister has had a positive biopsy and neg. blood test, but is still in denial that she could have this problem as well. After her and her 4 children went on the diet they showed great improvement. No more stomach aches, diarrhea, or mouth sores. (Believe it or not she is still in denial.) My Mother-In-Law said that her mother diet young and suffered the same symptoms she did before being diagnosed. Her brother also has huge bump rashes all over his knees and refuses to believe that it could be gluten. (I'm like whats wrong with these people!! They like to suffer I guess)

So, my point is if someone has it in their family does that mean their child will definitely have it? I want more children, but my mother insists that if I have another child he will have celiac too! And that i would be selfish.

I have been wondering if a parent has it diagnosed or undiagnosed will that child always have an allergy to it. My son also had fetal growth restriction and was born very skinny. As soon as I started the gluten-free diet he was a chunky monkey. :D

I don't know what the odds are that your next child would have it, but I can't imagine it's a reason not to have more children. You are already well educated about the gluten free diet and know how to manage it. Your family already eats gluten free so it wouldn't be an extra challenge for you to have your next child be gluten free either. So long as you follow the diet I don't see celiac as a reason to restrict the size of your family. If you were dealing with a condition that doesn't have a cure or treatment then that would be a different concern. Of course it's up to you whether or not you want to take the risk. This next time around you would know to cut gluten out of your diet early on if the next child shows the same symptoms as your first.

tarnalberry Community Regular

The odds are 1 in 10 he will develop celiac.

But seriously, not being able to eat wheat, rye, barley, and (possibly) oats is a reason to not have a kid? I mean, how many people have food aversions and won't eat, say... tomatoes? or cheese? or chocolate? (Those three happen to be my husband's big three aversions. He has others. :P) Do we say that they shouldn't procreate either, because their kids might not like every food? What about all those kids who hate vegetables, and continue doing so as an adult? Do we say that they shouldn't have kids because they don't like their veggies? Bah! I find the logic spurious at best.

OptimisticMom42 Apprentice

I could follow your mother's logic if we were talking about down syndrome, cancer, missing limbs.... to intentionally bring a child into the world to live a pain filled life so that you could have your very own baby would be selfish.

But....celiac isn't a anything like that. Yes, the diet takes some getting use to but it's just a diet not chemo or a heart transplant.

This site is full of loving parents who have a houseful of celiac children.

Tell your Mom that you've decided the next child will be muslim and therefore pork free or that the next baby will have different parents! Don't explain, just let her think about it. <_<

Leslielu Newbie

Thank you guys for responding and for your positive input. It's nice to here what other people think. I think more than anything what is bothering me is my consciouns(sp?).

My mother-in-law (celiac)had the same reaction as you guys. She said it would be different if it was like some sort of birth defect or something severe that didn't have a cure.

My mom is just using this as an excuse for telling me she doesn't think I should have another baby cause she worries about everything. She always tells me you know it'll be easier to just have one.

Whatever...now she has given me a complex about this.... You guys are right, it's not that big of a deal my son is now 18 months old and will never know the difference it won't bother him at all-he'll be healthier

CeliacMom2008 Enthusiast

It is completely you and your husband's decision. I wouldn't let the fear of having another child with Celiac affect your decision. I will say that I think your mom is right that having one is easier. But that's not just with Celiac in the mix. We have one child and I admit frequently that we have it pretty easy. It's much easier to stay dialed in to one kid, to help one kid with homework, to shuttle one kid to extra-curricular events, and yes, with a child with Celiac it is much easier to be able to provide gluten free treats at school, gluten free parties, etc. with just one; but it's just a fact that more kids take more time - in every aspect of life. With or without Celiac.

But we all know mom's know best ;) and we're not hearing her side. If you almost died in childbirth and your doctor told you additional kids would be very risky or you can barely make ends meet and another kid will put you in the poor house or something else that has your mom justifiably worried, then you might want to listen to her... :)

karenhockley Apprentice

I feel for situation. I have celiac and quite a bit of my side of the family has celiac. I have 3 children (2,4 and 6)and one of them is showing symptoms of celiac. Follow your heart, if you want another have another. I'd have a house full if I could :D The family is mostly gluten free but I do know that my kids eat healthier than their friends and it has a lot to do with the gluten-free diet. Yes when it's time for you children to go to school you may have a few obstacles than other parents but you can handle it, I believe your given what you can handle. Good luck and don't worry so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancy LC Newbie

Seems to me being a celiac in a family of people with gluten issues wouldn't be so bad. At least everyone around you would be eating the way you need to eat. They'd grow up understanding why they can't eat gluten and wouldn't miss it. I didn't give up gluten until my 40's and it really hasn't been a hardship. I suspect I'm a lot healthier than non-celiacs eating gluten.

sandsurfgirl Collaborator

Celiac isn't a death sentence. And honestly even if something more serious ran in the family, there is no way of telling what your child will or won't have. If you want another child, have another child. I can't believe your mom is meddling in something so personal as the decision about whether or not to have more kids. That's between you and your husband.

Every family has genetic weaknesses. That's just life, until we all become clones or genetically engineered, but then we'll probably all die from no immune system or something weird like that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.