Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello From Maine!


cadams5120

Recommended Posts

cadams5120 Newbie

Hello!!

I've been gluten-free for a few months now. I'm just getting to the point where I'm getting kind of sick of telling everyone exactly what celiac disease is, so I thought I'd join a forum where I don't have to explain myself to everyone!

I had given up meat just a few months before the diagnosis. I have always been an on again off again vegetairan, but this time I've stuck with it. Not only for moral reasons, but because I had honestly thought it was making me sick. I felt better about the choice I had made, but physically, I was still sick. So I threw in the towel and called my Dr. He got me in for a SDV and lectured me on how harsh digestive problems can be for the body. He did some blood work and wanted me to call the gastro dr. So I got home and called. Later that week I went to see the GI. He had my lab results, that I would've gotten sooner, had my husband given me the message that my Dr called.

So here I am now. I have to tell you that I feel great. As someone who has been struggling with acne since the age of 13 (i'm now 23), its amazing to see how fast my skin cleared up. I've been told that the gluten was probably always a toxin to my body, it just didn't know how else to tell me (I like that fairy tale version, don't ruin it!). People who have known me for a while stop me and ask me whats different. It's both embarassing and great to say "well my skin has cleared up to the point where I can wear make up". In fact, I just had a follow up with the dermatologist. We were going to discuss starting me on accutane, but guess what! I don't have to start it anymore! :)

I miss nothing, really. If anything, I miss meat more than I do gluten. So anyway, I look forward to having intelligent, helpful conversations with people on this forum.

Scratch that, I miss sour cream. I can't find any that don't make me sick!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

Welcome! I love it here. You can find an answer to ANY question you ever had!!

My daughter was a vegetarian for many years... not for moral reasons... just because she didn't like meat. When she was diagnosed with celiac, she went back to meat cause she was afraid she wasn't getting the protein she needed. She was surprised to find how much she liked it and missed it!

Does dairy bother you too? Cause there are sour creams on the market that are gluten free.

Again... welcome!!

blancasagro Newbie

I have been gluten free for like 8 months, and is weird sometimes, but friends tell me that I look prettier than before. This is the good part about this, you feel and look better, the bad part for me is the mental fog, but not everyone has it and I think I learned to live with it. I don't miss a thing (just cheese, and ice cream a bit, cause I'm lactose free too) but I don't miss any gluten at all. I feel very happy about you, and believe me, you will find very good advice here :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748

    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.