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For Those That Had A Biopsy.

Jeffiner

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Jeffiner Apprentice
Jeffiner
Posted

How detailed of a result did you get? Did the doctor just look for the celiac disease or did they look for other conditions associated with it at the same time? Did you just get a simple, "you have celiace disease" ? What kind of information did you get?

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Roda Rising Star
Roda
Posted

How detailed of a result did you get? Did the doctor just look for the celiac disease or did they look for other conditions associated with it at the same time? Did you just get a simple, "you have celiace disease" ? What kind of information did you get?

Here is my pathology report from my small bowel biopsy:

DIAGNOSIS

Duodenum, 3rd part, biopsy:

1. Duodenal mucosa with acute and chronic inflammation and villi blunting. See comment.

2. Negative for parasites and malignancy.

Comment

The boipsy demonstrates lamina propria expansion with predominately chronic inflammation consisting of lymphocytes and plasma cells. Neutrophils are also present within the lamina propria and crypts. Villi blunting with focal crypt hyperplasia is seen. Increased intraepithelial lymphyocytosis is mild and is below that which woud be expected in celiac disease. However, serologic testing may be warrented if there is clinical suspicion of a gluten sensitive enteropathy as serologic changes precede clear cut histologic changes. No evidence of parasites is seen. Clinical correlation is required.

This was Oct. 24, 2008. When I had the egd they also took a biopsy in the stomach for H pylori and it was negative. I was also told I had distal esophagitis and a small hiatal hernia. I had already had a positive tTg a month before this and the GI doctor called to tell me that the duodenal biopsy was consistent with early celiac sprue. I've been gluten free since.

plantime Contributor
plantime
Posted

When I got my diagnosis, the doctor was looking for ulcers. He found red inflamed patches, so he took biopsies from them. The only report I got was the referring doctor reading me the lab's conclusions, that the villi were blunted, indicating celiac disease. By that point, however, I had been telling doctors that I have celiac disease, and I had been following a glutenfree diet. I think the doctor figured all I needed to know was that I was right, and that I needed to keep following a glutenfree diet.

Reba32 Rookie
Reba32
Posted

I got color photo print outs of everything from my throat on down! Each photo is captioned to explain what it is, and what the doctor saw in it. I've got a medium hiatal hernia, atrophy and erythmea in the second part of the duodenum and erosions in the antrum and distal body.

No ulcers though! :D

At my follow up, the PA said that all of it was positive for Celiac Disease, but on the 1 to 5 scale that they normally use, I was only a 2 for intestinal damage. However, that was after a 7 or 8 week gluten challenge, after I'd been gluten free for about 9 or 10 months!

So yes, I'd say gluten can do it's damage quite quickly and quite handily!

Jeffiner Apprentice
Jeffiner
Posted
  • Author

Thank you for the replies. I forgot to subscribe to my thread so I didn't realize anyone had replied yet. :) I am just hoping that he checks for everything while he is in there.

Peace41 Rookie
Peace41
Posted

Thank you for the replies. I forgot to subscribe to my thread so I didn't realize anyone had replied yet. :) I am just hoping that he checks for everything while he is in there.

Hope he does for u too. For my experience I went to an ENT first to make sure there was no obstruction in my throat and the Ent said everything was fine along with the tests, but the Gastro guy, told me I had dysphagia, along with the endo and dilatation they did the biopsy, and told me he would take a good look at my throat and everything. He then said, that he hoped the dilatation would not make it worse, that didn't make me feel very good. But I had it, and and I first got a photo with a written out quick report with a diagram and that they will then follow up with a more detail report to my GP. When I went back the week later, he told me that something came back from the biopsy, but I had to wait a moment to know what it was. And then he said I am gluten intolerant, and I said like Celiac diseas and he said yes. And then told me I had bacteria and we couldn't do anything about that right now. He also told me I had lining damage but I forget in which part of the digestive system, probably the bowels. And on the written report it came back with Esophgigitis and Gastritis, to go along with the gerds I already have and IBS and everything else. He did not go thrugh it thoroughly with me, but I am going to leave that for me to go through it throughly with my doctor, who is excellent. And said that we are only going to de the dilatation and diet at present, I can't have antibiotics. And deal with it, very slowly, one thing at a time. But I am also going ahead to get allergy tested as well.

Its worry before u go through it, but afterwards its good to know exactly what u r dealing with, and then u can work with that. So hope it all goes well with u, if u feel up to sharing, u can update us.

I am having another dilatation of friday and they got written down and endo, so I have to make sure they just do the dilatation.

Peace 4 1

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