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Mini Gluten Challenage


NE Mom

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NE Mom Apprentice

I've been gluten free for about 2 1/2 months. All tests were negative but I'm still waiting on the results from Enterolab. I reintroducted gluten this weekend (today is the third day) and I was expecting to be really sick by now but that isn't the case. I've noticed that I have a burning sensation in my legs and arms, feel more tired than a few days ago, today I have a slight headache, heart palpatations last night, and a little bit of brain fog. I feel like if I wasn't paying close attention I could easily miss these symptoms. I've never had GI symptoms.

If you reintroduced gluten did it take a while before you noticed major symptoms?

I'm feeling confused since I haven't been extremely sick the last few days. I did feel extremely better after removing the gluten two months and all my Fibro symptoms seemed to disappear.

I'd love to hear some of your experiences.....


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ravenwoodglass Mentor

When I did my challenge my doctor told me it might take from 3 days to a week for the upset stomach to hit but that I might get other issues first, like a headache etc. He was right. My ataxia gets worse right away, I get real depressed and sometimes a headache for the first 3 days then the D hits then I get the bone and muscle pain. The doctor said sometimes it can take a little while for the antibodies to build back up again and that is what can cause a delay in some of the symptoms.

jackay Enthusiast

I'm thinking of doing a gluten challenge just to see what happens. I would only eat a small amount of gluten.

I don't know if this is a wise thing to do or not. The only reason I would consider it is that I still am having alot of issues and I want to figure out if it is from cc or from some other food intolerance, which I have plenty of.

When I went off gluten and got careful not to cc, my severe anxiety and diarrhea went away. I still have insomnia most every night, depression some days and pain in my neck, shoulders and back. I get occassional diarrhea.

I want to see if the anxiety and diarrhea return just as a check to help figure out if I've got cc issues. I just dread getting worse but am pretty frustrated with where my health is now.

If it can take three to five days to react to gluten, I still may not have a clear picture. I don't get a stomach ache from it.

NE Mom Apprentice

One of the reason's I choose to go ahead with the challenage is because the pain had returned in my legs and arms. I also was trying to locate the suspected cc but couldn't find anything. Interestingly, the soreness in my thighs (now I have it in my lower legs)has actually disappeared since eating gluten again-makes me suspect that I may also be intolerant to one of the gluten-free flours or starches.

I had a very difficult time taking that first bite-I was ready to burst into tears at the restaurant. My seven year old was very cute-she stared at me like she was waiting for me to pass out or throw up. LOL

I feel more confused than ever about the gluten since starting this challenage.

jackay Enthusiast

One of the reason's I choose to go ahead with the challenage is because the pain had returned in my legs and arms. I also was trying to locate the suspected cc but couldn't find anything. Interestingly, the soreness in my thighs (now I have it in my lower legs)has actually disappeared since eating gluten again-makes me suspect that I may also be intolerant to one of the gluten-free flours or starches.

I suggest you give up the gluten-free flours and starches for now and stick with your basic foods including meats, veggies, fruits and rice. See what happens with that.

Keep us posted.

NE Mom Apprentice

Day four and I finally hit the brick wall. Terrible headache, fogginess, can hardily keep my eyes open, little tummy ache, constipated.

Looks like I may be on the right track after all.....

ravenwoodglass Mentor

Day four and I finally hit the brick wall. Terrible headache, fogginess, can hardily keep my eyes open, little tummy ache, constipated.

Looks like I may be on the right track after all.....

Yep it does sound like you are on the right track. If you don't have to continue with the challenge I would stop it and get back on the diet.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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