Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Encouraging New Celiac Disease Drug - Celiac.com


Scott Adams

Recommended Posts

Scott Adams Grand Master

Open Original Shared Link

Open Original Shared Link

Celiac.com

Even with the proof in the pudding (or gluten) my doctors now want me to ingest gluten to test for celiac-no can do. Celiac.com 03/12/2010 - According to ...

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

It would be so nice to be able to eat out and not worry about getting glutend. But wouldn't this drug make us want to eat gluten all the time?

Takala Enthusiast

Well, yes, ingesting small amounts of gluten all the time is not going to stop the auto immune reaction and all its side effects, including craving more gluten, <_< and maybe that is the point- creating a drug that has to be taken all the time.

Like you can't be just a little bit alcoholic.

Read the link, this drug is only reducing negative reactions from "50% to 15% in intestinal damage. " Well, it's not defining what the 15% means, because Celiac and gluten intolerance is not just intestinal damage but a complete auto immune reaction that damages many other systems in the body. That is just crazy to think that you can deliberately damage a person only 15% of the time and play eating poison roulette if only you take a pill, and keep a disease under control, when you can easily really control the disease just by eating properly- avoiding gluten. .

From the other link, it says this drug is being developed by a Univ of Alberta doctor who has done one of three trials. Yet the other article says "this drug has been proven in clinical trial (s) to greatly reduce the negative reactions.... "

that's bunk. One trial so far. Nothing "proven." And certainly the long term effects have not been studied.

If this pill is being falsely hyped and marketed to do what it doesn't, (we aren't "extremely limited" when it comes to eating, just limited at eating out in restaurants that have no idea what is really in their food, and don't care. And we are the canaries in the coal mine when it comes to food cross contamination issues in general, and we need MORE strict labeling and manufacturing in the United States and worldwide, not less !!! ) it is going to encourage people to damage themselves by being careless with what they eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
    • Scott Adams
    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.