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redsox98

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redsox98 Newbie

I have been having issues for around a year now mine is nowhere near as bad as some experiences I have heard. However a year ago I started with upper abdominal pain and actually had to go to the emergeny room. After 2 trips in one weekend there and several ct scans they decided to go ahead and take my appendix and gallblader. That seemed to make the pain go away for a month or so but then it stated back up. I have extreme constipation I can't go to the bathroom without taking the laxitive for a colonoscopy however always feel the urge to go. In the last month I have had bloodwork come back posotive for crohns disese but the colonoscopy was "squeky clean" according to the Dr. I have had the berium dye test of my small bowl and it looked good. They wanted to do the pill endecoscopy but my insurance company said that before they would allow that the wanted a upper endecoscopy. So very reluctuntly the Dr. did it and there is where we are now. He found a "very large hiatal hernia" those where his words and my biopsy came back with abnormalitys which sent us to do blood work. We should get the results back tomorrow but the Dr. seems to thing that it is a "wheat allergy". I have cut gluten out of my diet for 5 days now and already feel better. The bathroom thing is getting better as well slowly but surely. Sorry for the looooong post and being so graphic about everything. Thanks in advance for all the useful info. :D:)


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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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