Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here

redsox98

Recommended Posts

redsox98 Newbie
redsox98
Posted

I have been having issues for around a year now mine is nowhere near as bad as some experiences I have heard. However a year ago I started with upper abdominal pain and actually had to go to the emergeny room. After 2 trips in one weekend there and several ct scans they decided to go ahead and take my appendix and gallblader. That seemed to make the pain go away for a month or so but then it stated back up. I have extreme constipation I can't go to the bathroom without taking the laxitive for a colonoscopy however always feel the urge to go. In the last month I have had bloodwork come back posotive for crohns disese but the colonoscopy was "squeky clean" according to the Dr. I have had the berium dye test of my small bowl and it looked good. They wanted to do the pill endecoscopy but my insurance company said that before they would allow that the wanted a upper endecoscopy. So very reluctuntly the Dr. did it and there is where we are now. He found a "very large hiatal hernia" those where his words and my biopsy came back with abnormalitys which sent us to do blood work. We should get the results back tomorrow but the Dr. seems to thing that it is a "wheat allergy". I have cut gluten out of my diet for 5 days now and already feel better. The bathroom thing is getting better as well slowly but surely. Sorry for the looooong post and being so graphic about everything. Thanks in advance for all the useful info. :D:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc. For the holidays...
    2. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Publications & Publicity
      1

      Today Dec15 2025

      thanks for sharing!
    4. Flash1970
      - Flash1970 commented on Scott Adams's article in Skin Problems and Celiac Disease
      1

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      This explains a lot. I had a severe leg injury when I was younger. I've had several surgeries. I was super careful, but always got cellulitis. Interesting article. Even when I was gluten free and had surgery, I still got cellulitis.
    5. Flash1970
      - Flash1970 commented on Scott Adams's article in Winter 2026 Issue
      1

      Gut Healing After a Celiac Diagnosis: What Science Says About Recovery Time (+Video)

      Good article. Everyone expects healing within a few weeks. I remember not feeling good until 4 months into the gluten free diet. In fact, the first month was horrible. I felt way worse. This is due to a large part of addiction to wheat. It feels like withdrawal symptoms. Your body wants the gluten no matter what. At 4 months, I remember waking up one...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,688
    • Most Online (within 30 mins)
      7,748
    BelindaK
    Newest Member
    BelindaK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • ShariW
      My journey is it gluten or fiber?

      By ShariW · Posted

      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc.  For the holidays, I will only be baking gluten-free treats. I got rid of all gluten-containing flours, mixes and pastas in my kitchen. Much easier to avoid cross-contamination that way!
    • Scott Adams
      My journey is it gluten or fiber?

      By Scott Adams · Posted

      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent with a specific intolerance or contamination, as a high-fiber reaction typically involves more digestive discomfort like bloating or gas that lasts longer. Since the protein bar was the only new variable, it’s a strong suspect; it's worth checking if it contains ingredients like sugar alcohols (e.g., maltitol, sorbitol) or certain fibers (inulin/chicory root) that are notorious for causing acute digestive upset, even in gluten-free products. For your holiday baking, your plan is solid: bake the gluten-free items first, use entirely separate utensils and pans (not just washed), and consider color-coding tools to avoid mix-ups. Additionally, store your gluten-free flours and ingredients well away from any airborne wheat flour, which can stay in the air for hours and settle on surfaces. Keep listening to your body and introducing new packaged foods one at a time—it’s the best way to navigate and pinpoint triggers on your journey.
    • Scott Adams
      Today Dec15 2025

      By Scott Adams · Posted

      thanks for sharing!
    • Scott Adams
      Disaccharide deficient, confusing biopsy results, no blood test

      By Scott Adams · Posted

      Let us know how things turn out--good luck!
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you Scott! This is very helpful. I have a message out to my doctor and i think this guide will help me interpret the results! its very thorough. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.