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redsox98

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redsox98 Newbie

I have been having issues for around a year now mine is nowhere near as bad as some experiences I have heard. However a year ago I started with upper abdominal pain and actually had to go to the emergeny room. After 2 trips in one weekend there and several ct scans they decided to go ahead and take my appendix and gallblader. That seemed to make the pain go away for a month or so but then it stated back up. I have extreme constipation I can't go to the bathroom without taking the laxitive for a colonoscopy however always feel the urge to go. In the last month I have had bloodwork come back posotive for crohns disese but the colonoscopy was "squeky clean" according to the Dr. I have had the berium dye test of my small bowl and it looked good. They wanted to do the pill endecoscopy but my insurance company said that before they would allow that the wanted a upper endecoscopy. So very reluctuntly the Dr. did it and there is where we are now. He found a "very large hiatal hernia" those where his words and my biopsy came back with abnormalitys which sent us to do blood work. We should get the results back tomorrow but the Dr. seems to thing that it is a "wheat allergy". I have cut gluten out of my diet for 5 days now and already feel better. The bathroom thing is getting better as well slowly but surely. Sorry for the looooong post and being so graphic about everything. Thanks in advance for all the useful info. :D:)


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    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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