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redsox98

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redsox98 Newbie
redsox98
Posted

I have been having issues for around a year now mine is nowhere near as bad as some experiences I have heard. However a year ago I started with upper abdominal pain and actually had to go to the emergeny room. After 2 trips in one weekend there and several ct scans they decided to go ahead and take my appendix and gallblader. That seemed to make the pain go away for a month or so but then it stated back up. I have extreme constipation I can't go to the bathroom without taking the laxitive for a colonoscopy however always feel the urge to go. In the last month I have had bloodwork come back posotive for crohns disese but the colonoscopy was "squeky clean" according to the Dr. I have had the berium dye test of my small bowl and it looked good. They wanted to do the pill endecoscopy but my insurance company said that before they would allow that the wanted a upper endecoscopy. So very reluctuntly the Dr. did it and there is where we are now. He found a "very large hiatal hernia" those where his words and my biopsy came back with abnormalitys which sent us to do blood work. We should get the results back tomorrow but the Dr. seems to thing that it is a "wheat allergy". I have cut gluten out of my diet for 5 days now and already feel better. The bathroom thing is getting better as well slowly but surely. Sorry for the looooong post and being so graphic about everything. Thanks in advance for all the useful info. :D:)

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    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
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      Positive biopsy

      By pothosqueen · Posted

      26F!
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      Celiac for dummies

      By pothosqueen · Posted

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      Positive biopsy

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      Would it be rude to ask your age?
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      Positive biopsy

      By pothosqueen · Posted

      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
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