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Guest 6kmom

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Guest 6kmom

We are suspecting that my 9 year old has celiac or a very severe gluten intolerance. He has always had headaches, muscle cramps, very sensitive stomach and very irratable (no wonder). He had a 4 day spell where he could keep nothing down. After going to the doctor and having some normal tests done I decided to pull him off of gluten. He was wonderful for 10 days. He kept everything down and said he felt better than he has ever felt. When I talked to the doctor about getting testing done she said put him back on gluten and come back in a month. Within hours of ingesting the gluten, he was sick again. After several days of not keeping anything down I talked to the pediatric GI. They said get the blood work done right away. He has been back off of gluten since and still hasen't keep anything down. We are now at 1 week of throwing almost everything up.

Does anyone have any hints for me? Help!


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Jestgar Rising Star

How scary for you! What is he eating? Have you tried plain white rice and applesauce?

AlwaysBrightMorningStar Newbie

Just to let you know right now I hate typing so if I get sloppy....My daughter who is 8 was just diagnosed with celiac disease february 10th. Before that she had throwing up bouts that could last for days. She would just throw up bile for hours and hours. went to the hospital a couple of times for dehydration too. Dont know if this would help your son or if its even the same circumstances really but i gave my daughter a drug that they use for chemo patients. Its for nausea and vomiting and it would stop it instantly for her. If you havent tried that it might be worth a try. Its called Ondansetron and i do believe its generic. I always got the kind that just gets held under the tongue and disolves that way you dont have to worry about trying to take in water if its a pill( my daughter would definately not have been able to do that) Well I hope that this will be of some help for you,if not now, maybe in the future because im praying that your son is already on the mend.:)

Chelsea-A Rookie

We are suspecting that my 9 year old has celiac or a very severe gluten intolerance. He has always had headaches, muscle cramps, very sensitive stomach and very irratable (no wonder). He had a 4 day spell where he could keep nothing down. After going to the doctor and having some normal tests done I decided to pull him off of gluten. He was wonderful for 10 days. He kept everything down and said he felt better than he has ever felt. When I talked to the doctor about getting testing done she said put him back on gluten and come back in a month. Within hours of ingesting the gluten, he was sick again. After several days of not keeping anything down I talked to the pediatric GI. They said get the blood work done right away. He has been back off of gluten since and still hasen't keep anything down. We are now at 1 week of throwing almost everything up.

Does anyone have any hints for me? Help!

What did the blood work show?

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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