Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Blood Test, But Have Questions


renoyogamom

Recommended Posts

renoyogamom Newbie

Hi all,

I just got the results of my antibody blood tests, and they were all within the normal range. My GP ordered t-Trangslutaminase IgA and IgG, and deamidated Gliadin Abs IgA and IgG. Is this everything that was needed? Incidentally I had been on a low/no gluten diet for a few months and did a 5 week gluten challenge before the tests, so there is a slight possibility of false negative from that.

I do notice gluten sensitivity (it my not be celiac obviously, but I do feel like it makes a difference) and my vitamin D levels were VERY low, indicating possible malabsorption (though I am also dairy intolerant so I don't drink fortified milk). Thoughts?

I fully intend to go back on my low/no gluten diet just to see what i feel like, but I'm surprised at the lack of positive celiac evidence with the indication of VERY low Vitamin D. I don't have any other risk factors for low Vit D except that I can't tolerate milk (I'm thin to underweight, and pale skinned).

Kim


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

vitamin D is also obtained through fish oils and sunlight. Where do you live and how much time do you spend in the sun?

renoyogamom Newbie

vitamin D is also obtained through fish oils and sunlight. Where do you live and how much time do you spend in the sun?

Yes, I realize those are other sources of Vit D (the sun being the primary one). I live in Reno NV, where we get sun pretty much 3/4 of the time; we get an average of 9 inches of precip a year! I do also spend a bit of time outside - at minimum 30 minutes per day. However it is winter now, and cold, so when I'm outside I'm covered except for my face. That, along with my inability to eat foods with supplemental vit D could contribute. I just learned that some of the symptoms I was thinking might be related to celiac are also indicative of vit D deficiency, so we'll see what happens when I start supplements. Thanks!

So - did my doctor do all the appropriate tests? I had read something about needing a 'total IgA' value to validate the test... is that what the last part of the assay was? thanks!

Kim

Jestgar Rising Star

It doesn't look as if total IgA was ordered. If your tests come back negative you might ask for it just to find out if they are negative because you have low IgA. If they are positive then it doesn't matter. There are other tests, but those are the basic ones.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

    4. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.