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Can Anyone Shed Light On This Topic


miche

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miche Rookie

Hello , I live in Ontario Canada, I have been on a very strict gluten free diet in the hope that it would help my stomach issues and my fibromyalgia symptoms . I read that there can be a long period of withdrawal however I am somewhat mystified that after 9 weeks I find myself with new symptoms , reflux has improved dramatically and the pain in my chest and upper back also but now I have pain in my lower back , legs and feet , I feel weak and tired and most importanly I went from havinbg greasy formed stools to very loose stools , is this due to detox or did I wait too long to start the diet , I am worried as to what is happening to me , I do not consume any gluten free grains , I only eat meat, non gassy veggies and bananas , no dairy , if anyone has had this experience I would be very grateful fore any input , thank you

Miche


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chasbari Apprentice

I would say it looks like you are off to a good start. Yes, there is a period of feeling like withdrawal from old gluten laden foods and it may take longer than 9 weeks. Lots of changes and if there was any damage to the gut (you don't say whether you had an "official" diagnosis") there will be plenty of healing that will have to take place. I know I was fatigued in a different way than before my gluten-free fatigue. 17 months into gluten-free I am feeling stronger and seem to have much more endurance but it was a long road after a lifetime of damage at so many levels from celiac and rheumatoid arthritis and other autoimmune issues. Be patiently impatient. Keep asking questions and keep noticing what helps and what doesn't.

lorka150 Collaborator

Hello , I live in Ontario Canada, I have been on a very strict gluten free diet in the hope that it would help my stomach issues and my fibromyalgia symptoms . I read that there can be a long period of withdrawal however I am somewhat mystified that after 9 weeks I find myself with new symptoms , reflux has improved dramatically and the pain in my chest and upper back also but now I have pain in my lower back , legs and feet , I feel weak and tired and most importanly I went from havinbg greasy formed stools to very loose stools , is this due to detox or did I wait too long to start the diet , I am worried as to what is happening to me , I do not consume any gluten free grains , I only eat meat, non gassy veggies and bananas , no dairy , if anyone has had this experience I would be very grateful fore any input , thank you

Miche

Is it possible you're missing some vital parts of your diet? Specific vitamins and minerals come from specific foods that you might be neglecting.

miche Rookie

Thak you both for taking the time to respond , wishing you a Happy Easter !

Micheline

mushroom Proficient

It is also possible that you might be deficient in many nutrients due to improper food absorption in the gut. Those crucial nutrients which should be tested include Vits. D, B12 and folate, calcium and ferritin (iron). Also, have your thyroid tested, TSH, free T4 and free T3. Deficiencies in any of these areas can cause you to feel weak and tired and will require specific supplementation in addition to what you are presently able to absorb from your food. You can take sublingual B12 capsules, but your doctor really should prescribe a high-dose cholecalciferol (Vit.D) and iron and calcium supplements. I found that a Multi B complex and a Multi Mineral tablet were also helpful in getting me back to feeling good.

I may be sounding like a pill popper here, but I also found digestive enzymes to be helpful in supporting good digestion, since gluten intolerants often have deficient pancreatic output of enzymes.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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