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Need To Vent

miaryan

By miaryan
in Coping with Celiac Disease

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miaryan Apprentice
miaryan
Posted

Hi everyone,

It's me Mia, and i've been gluten free for about 5 weeks now almost six. i went back to work today finally after 3 months. i'm still not feeling well have been having these headaches that are killing me. i'm a csr for onstar and work is loud!!! i mean really loud... i just wish it was quiet at work but it's not... I'm proud that i made it through the day. I'm down to part time work, to me it's all i can handle right now and that's pushing it...i don't know whats going on i just wish that i could get better.... it's getting annoying. was good for about 2 weeks then bam back to normal.. well my normal headaches, tiredness... the only thing good is my bowel movements (one a day and normal) yayaya!

anyways done venting for now sorry and thanks for reading...

anyone else want to vent????

Mia :)

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tictax707 Apprentice
tictax707
Posted

Well... YAY for the good things! yeah, I do hate it when I am not feeling well and my symptoms get in the way of my life. I hate feeling totally wiped out after bouts of intestinal unhappiness. It's maddening when I can't figure out whats making me ill! It's not always gluten since I have colitis and am super sensitive to dairy too. And sometimes things just don't sit well (and that's "normal" you know?) It's hard feeling bad and then you have to use your brain, and your brain is just not working because you feel like crap... Would you believe I am actually feeling fine right now, but just reliving old frustrations? BLLACCHH!

ok - there goes MY vent. I am sure there will be more in the future... :rolleyes:

T.H. Community Regular
T.H.
Posted

Congrats on the happy gut, but sorry about the headaches!

Just a thought - have you checked out any other food issues? I never knew I had any, but AFTER I went off gluten, I suddenly started getting food issues. Peanut products gave me migraines, citrus gave me earaches, sugarcane made me feel like I was so exhausted I wanted to collapse. Maybe something similar for you? My GI doc said that many celiac folk will have that happen once they go gluten free.

Hi everyone,

It's me Mia, and i've been gluten free for about 5 weeks now almost six. i went back to work today finally after 3 months. i'm still not feeling well have been having these headaches that are killing me. i'm a csr for onstar and work is loud!!! i mean really loud... i just wish it was quiet at work but it's not... I'm proud that i made it through the day. I'm down to part time work, to me it's all i can handle right now and that's pushing it...i don't know whats going on i just wish that i could get better.... it's getting annoying. was good for about 2 weeks then bam back to normal.. well my normal headaches, tiredness... the only thing good is my bowel movements (one a day and normal) yayaya!

anyways done venting for now sorry and thanks for reading...

anyone else want to vent????

Mia :)

mcphee930 Newbie
mcphee930
Posted

I could do some venting myself! I have been gluten free for 6 weeks today. My digestional issues are almost exactly the same as they were 6 weeks ago, with the exception of them being less frequent. 2-3 times a day opposed to 4-6 times. I feel the same, accept now depressed because I can't eat what I want, and Im not feeling any better. i might have a little more energy too, but its not like I have been reading, that people feel like a new person. I have not cheated once in these 6 weeks, unless i got something accidentally. It is so irriating, and on top of it all, I am turning 30 on Friday, and not dealing with that very well at all. Its been really tough week for me, and I can't wait for it to be over. Sorry, I feel like very time I talk on here its to complain, but I do take any advice anyone gives me. I really want the digestion issue to go away, thats the symptom that really bothers me.

Congrats on the happy gut, but sorry about the headaches!

Just a thought - have you checked out any other food issues? I never knew I had any, but AFTER I went off gluten, I suddenly started getting food issues. Peanut products gave me migraines, citrus gave me earaches, sugarcane made me feel like I was so exhausted I wanted to collapse. Maybe something similar for you? My GI doc said that many celiac folk will have that happen once they go gluten free.

mushroom Proficient
mushroom
Posted

I could do some venting myself! I have been gluten free for 6 weeks today. My digestional issues are almost exactly the same as they were 6 weeks ago, with the exception of them being less frequent. 2-3 times a day opposed to 4-6 times. I feel the same, accept now depressed because I can't eat what I want, and Im not feeling any better. i might have a little more energy too, but its not like I have been reading, that people feel like a new person. I have not cheated once in these 6 weeks, unless i got something accidentally. It is so irriating, and on top of it all, I am turning 30 on Friday, and not dealing with that very well at all. Its been really tough week for me, and I can't wait for it to be over. Sorry, I feel like very time I talk on here its to complain, but I do take any advice anyone gives me. I really want the digestion issue to go away, thats the symptom that really bothers me.

Any birthday with a zero on the end of it comes as shock :( But hey, your thirties are going to be great as soon as you get this thing licked.

I noticed sandsurgirl recommended you eliminate dairy, and that you mentioned you were eating cheese. Are you still eating dairy? If so, I would agree with her recommendation to eliminate it for now and challenge it again later when you are better.

I would also recommend that you take some digestive enzymes, because celiac disease often affects the pancreas which then does not put out enough digestive enzymes to digest your food. A good health food store should be able to advise you on a comprehensive enzyme complex that is gluten free. Try to find one that you take with every meal. It is also a good idea to take some probiotics (dairy free) to promote the growth of good bacteria in the gut and help your intestines heal. Healing is a slow process and depending on the amount of damage may take several months, so do not be discouraged; every step along the gluten free path is a step toward healing. See if these additions help you out, I know they did for me.

book-worm Apprentice
book-worm
Posted

I can sympathize totally! I

AKcollegestudent Apprentice
AKcollegestudent
Posted

For the OP: have you tried cutting out known migraine triggers? By which I mean there are the obvious ones: caffeine, chocolate, nightshades (peppers, potatoes, tomatoes, etc), and there are the less known ones like black beans, sugar, milk, etc. A good nutritionist could help you, but if you don't want to deal with that (and I don't blame you), there are plenty of sites on the 'net that have comprehensive lists.

I have mixed migraines, tension headaches, and cluster headaches--because apparently one form wasn't enough--and the only way that I can keep things under control is a very strict diet that we figured out through a migraine targeted elimination diet, and a combination of drugs. Drug roulette sucks and so do neurologists, but that's the only way that I'm back to 85% on a regular basis.

...And since something happened to set off this one yesterday, I'll be curled back up with my meds for the next hour.

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JNBunnie1 Community Regular
JNBunnie1
Posted

For the OP: have you tried cutting out known migraine triggers? By which I mean there are the obvious ones: caffeine, chocolate, nightshades (peppers, potatoes, tomatoes, etc), and there are the less known ones like black beans, sugar, milk, etc. A good nutritionist could help you, but if you don't want to deal with that (and I don't blame you), there are plenty of sites on the 'net that have comprehensive lists.

I have mixed migraines, tension headaches, and cluster headaches--because apparently one form wasn't enough--and the only way that I can keep things under control is a very strict diet that we figured out through a migraine targeted elimination diet, and a combination of drugs. Drug roulette sucks and so do neurologists, but that's the only way that I'm back to 85% on a regular basis.

...And since something happened to set off this one yesterday, I'll be curled back up with my meds for the next hour.

Do you have anyone in your life who's a capable masseuse? I personally excel at it, though I haven't been to school, and I've helped a half dozen people find relief for their headaches. My boyfriend gets migraines, and I can't completely relieve them, but I can usually keep the pain down two points on the pain scale. You know, if it would've been a six I can keep it at a four. I had a friend who got tension headaches and after a few months of massage therapy almost every day he never got them again. Maybe something else changed, too, but I'm sure it helped. A chiropractor ( a good one! a bad one's worse than nothing) could help too.

AKcollegestudent Apprentice
AKcollegestudent
Posted

Do you have anyone in your life who's a capable masseuse? I personally excel at it, though I haven't been to school, and I've helped a half dozen people find relief for their headaches. My boyfriend gets migraines, and I can't completely relieve them, but I can usually keep the pain down two points on the pain scale. You know, if it would've been a six I can keep it at a four. I had a friend who got tension headaches and after a few months of massage therapy almost every day he never got them again. Maybe something else changed, too, but I'm sure it helped. A chiropractor ( a good one! a bad one's worse than nothing) could help too.

My chiropractor has kept the migraines from escalating. (The poor man did unintentionally make it worse by giving me wheat filled supplements back when we didn't know better, but that's not his fault.) Without him, I'm fairly certain that I'd be unable to function anymore. Unfortunately, I don't know of any decent ones anywhere around my campus, so I really just don't bother. Unsurprisingly, they escalate because of that.

And our school brings masseuses to campus once a week for 10 minutes per each student who signs up. (24 people can sign up, and I'm usually consistently one of them.) It helps, though for me it's a stopgap measure and not actual relief.

miaryan Apprentice
miaryan
Posted
  • Author

i have cut out coffee, chocolate, tomatoes (gerd) and peppers. didn't know about potatoes but don't eat much of them to begin with. milk since i don't drink coffee or tea no milk! started eating almond milk instead for cereal. not to sure if i'm latose intoralanct aswell.

i started a food diary yesterday with what meds i'm taking, vitamins, food, and how i'm feeling.

today is a bad day been to the bathroom 3 times already and i slepted till noon.

stomach is killing me. migraine is killing me. tired oh so tired and u think i can sleep NO!!!!!

sick of everyone asking me how i'm doing everyday! i know they care but it makes me feel useless.

i still don't know what else to do or try.

thank you all for the posts this site rocks

Black Sheep Apprentice
Black Sheep
Posted

Just a thought - have you checked out any other food issues? I never knew I had any, but AFTER I went off gluten, I suddenly started getting food issues. Peanut products gave me migraines, citrus gave me earaches, sugarcane made me feel like I was so exhausted I wanted to collapse. Maybe something similar for you? My GI doc said that many celiac folk will have that happen once they go gluten free.

Ohmygosh! :o Well, that explains why I suddenly seem to be allergic to avocados! I've been g.f. for 1 month now, and the two times I've eaten them since, they've caused stomach pain that has me doubled-over! I know, I know, "Why would eat them a second time?" :lol: The first time I blamed something else, as I simply couldn't imagine something like an avocado making me sick....esp. since I've never had any food allergies.

That I know of. Now I'm wondering, great, what next? I know how you feel, Mia--it sometimes seems like the old one-step-forward-two-steps-back routine. :angry:

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