Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Get Son Tested...has Had Stomach Pain For 5 Wks


carecare

Recommended Posts

carecare Enthusiast

Hi all,

First, I will say that my husband went gluten free (actually following the paleolythic diet) since October and has felt wonderful since. His indigestion and diarrhea have disappeared. He decided to cheat at thanksgiving and was sick for 2 wks...and indigestion was immediate. So he now knows he will never have gluten again.

Now my 8 yr old son had a stomach bug back on valentines day. He threw up a couple times that evening, slight fever and diarrhea that evening too but recovered except for stomach pain that has persisted every day since. I brought him to the dr's after 3-4 wks. She felt he had an inflamed stomach lining and started him on prilosec which has not helped much. He's now been on that for what 3 wks or more. I decided to start a probiotic on him as well back a few weeks ago. I was hoping that with the combination of the meds and the probiotic he'd be 100% but he's not. Still complains of stomach pains off and on during the day. I don't think it's as bad as it was a month ago but still he's in pain. I have not seen a correlation to his eating and the pain...it seems to be random but I've started a journal to try and pinpoint what's going on. Worst times are morning and evening.

I asked my dr about going gluten free and she said not to change his diet just yet (that was back 3 wks ago when I brought him in). I am wondering if I should bite the bullet and just have him go 100% gluten free and see if it clears up his stomach pain or if I should call his dr and ask to have the blood test drawn before I attemp going gluten free? I know the tests aren't always completely accurate but we could at least see if there's something there. Or...would you just go gluten free and forget about the testing? I bought enough things for him today that I could easily start him on a gluten free diet. My dinners are always gluten free but his lunches and breakfasts are not....but that can be changed easily. What do you think? Could something like that stomach bug have kind of triggered him to become gluten intolerant?

CC


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mrs. N Rookie

Yes, illness can trigger Celiac Disease. Testing is great if something shows up, but where gluten is concerned, negative results don't necessarily mean gluten is safe for him. The biggest thing to me is that his Dad has had such a positive response to going gluten free. Since it's genetic, and it won't hurt him, I'd be inclined to eliminate gluten and see how it goes. Keep in mind that gluten sensitivity can often be accompanied by other food issues, especially dairy. [Editing to add that you might need to take other foods into consideration if he improves but his symptoms don't go away.]

Jony Newbie

Hi,

Whatever your son has sounds very very similar to what I have experienced since Dec.28th 2009. The Flu hit and after a couple of days I got better BUT then my stomach lining inflamation never subsided and I started to loose weight quick. Acid blockers and antacids did not help at all. Mornings and Evenings are the worst for me, too.

I am going gluten-free as of April 3rd and see where it leads me. I hope that direction will help your son as well since it did seem to help your husband. The constant stomach upset can really cause emotional havoc as you might have noticed by now.

All the best and stay hopeful.

Jony

carecare Enthusiast

Thank you Mrs. M and Jony. As of Monday he's been gluten free. Today has been the first day since Valentines day he has not complained of his stomach hurting. Crossing my fingers that this is it and the gluten was the culprit. Though I will be sad for him having to watch so closely what he eats. I know it doable...just an annoyance for someone so young. I also stopped giving him the prilosec as of Monday too...so being pain free isn't being helped by meds. I hope you are having success too Jony. Keep me posted!

CC

  • 2 weeks later...
carecare Enthusiast

So, his pain over the past week hasn't completely gone away but he's not complaining that his stomach hurts. If I ask him if it hurt at all during the day he just says "a little." He definitely seems in less discomfort. Well, the other day was a cake auction for cubscouts and he really wanted a piece of the cake. I let him have it. I figured we'd see him either get worse or stay the same as he's been the last week and 1/2. He didn't seem that bad the next day...said his belly wasn't hurting much. Then he continued to have gluten things the next day and now today he said his belly was really hurting at school today. I wish I would have stuck to my guns and continued this glutenfree challenge longer before giving it back to him. I guess we continue gluten free for another longer period of time and then I think I'll see how that goes. Then part of me just wants to have him continue to eat gluten and just get tested. Since we didn't go gluten free very long maybe I should make an appointment. And a couple weeks after the onset of the stomach pain came his chewing on his shirts...first it was the cuffs and I finally broke the habit in him by constant reminders and showing him how he's ruining his shirts...but then he started chewing around the collar area of his shirts which also puts big holes in them too. He's ruined so many shirts the last 2 months. I know some kids just go through that but I wonder if it means anything more. I figured it was a form of comfort in him ...in order to help ease his stomach pain he's finding a coping mechanism which ends up being chewing/sucking on his shirts.

CC

Thank you Mrs. M and Jony. As of Monday he's been gluten free. Today has been the first day since Valentines day he has not complained of his stomach hurting. Crossing my fingers that this is it and the gluten was the culprit. Though I will be sad for him having to watch so closely what he eats. I know it doable...just an annoyance for someone so young. I also stopped giving him the prilosec as of Monday too...so being pain free isn't being helped by meds. I hope you are having success too Jony. Keep me posted!

CC

  • 4 months later...
Mrs. N Rookie

I'm sorry it has been such a long time since I've checked this. How are things going?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.